• About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • In the News
    • Awards
    • Careers
    • RPV Store
  • For Patients
    • Study Opportunities
    • Clinical Trial Opportunities
    • Sign Up to Participate
    • Types of Research
    • Find Us in the Community
    • Frequently Asked Questions
    • Testimonials
    • How We Use Your Information
    • Newsletters
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Frequently Asked Questions
    • Industry Conferences
    • Patient Advocacy Team Outreach
  • Clinical Trial Recruitment
  • Referral Program
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies

Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • In the News
    • Awards
    • Careers
    • RPV Store
  • For Patients
    • Study Opportunities
    • Clinical Trial Opportunities
    • Sign Up to Participate
    • Types of Research
    • Find Us in the Community
    • Frequently Asked Questions
    • Testimonials
    • How We Use Your Information
    • Newsletters
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Frequently Asked Questions
    • Industry Conferences
    • Patient Advocacy Team Outreach
  • Clinical Trial Recruitment
  • Referral Program
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies

Helping patients and caregivers share their voices

Sitemap

Pages

  • About Us
    • Meet Our Team
      • Amela Zeljo, Assistant Project Manager
      • Amra Klico, Project Manager
      • Azra Dardagan, Panel Management Assistant
      • Becky Michael, Accounts Receivable Manager
      • Ben Shedlock, Vice President of Field Operations
      • Brooke Neal, Patient Outreach and Social Media Coordinator
      • Chantel Thompson, Qualitative Team Senior Project Manager
      • Cheryll Davies, Assistant Project Manager
      • Chris Cooper, Qualitative Team Senior Project Manager
      • Christina Cooper, Project Manager Assistant, Scheduler Team Lead
      • Christopher Cramer, Project Manager
      • David Minion, Panel Management and Information Security Manager
      • Felecia Bryant, Qualitative Team Senior Project Manager
      • Ginger Segala, Business Development Associate
      • Hana Salkanovic, Project Manager
      • Jennifer Harscheid, Qualitative Team Project Manager, Quality Assurance Specialist
      • Jennifer Messier, Director of Patient Advocacy
      • Jessica Bolden, Business Development Associate
      • Kirk Munsch, Patient Advocacy Manager
      • Laura Mullen, Director of Marketing and Communications
      • Laurie Cotumaccio, Marketing Associate
      • Lejla Zonic, Project Manager
      • Madeline Nylen, Scheduler
      • Mekenzie Oswalt, Patient Advocacy Assistant
      • Michael Taylor, Field Operations Team Lead
      • Mirza Rakovac, Helpdesk Specialist
      • Missy Smith, Panel Management Team Lead
      • Molly Mackey, Project Manager
      • Pam Cusick, Senior Vice President
      • Patrick Kobrick, Business Development Associate
      • Rheia Beganovic, Project Manager
      • Richard DeLuca, Project Manager, Field Data Validation Specialist
      • Sara Prosic, Business Development Associate
      • Sarah Nelson, Patient Advocacy Assistant
      • Sarah Sanders, Field Operations Qualitative Team Lead
      • Skyler Swagart, Patient Advocacy Associate
      • Stacey Haines, Patient Outreach and Social Media Manager
      • Tana Karamustafić, Project Manager
      • Tiffany White, Director of Business Development
      • Wes Michael, President and Founder
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • In the News
    • Awards
    • Careers
  • Blog
  • Case Studies and Papers
    • Boosting the Appeal of Clinical Trials—Making Participation of Greater Interest to Patients
    • Health Literacy Initiative’s PSA
    • Market Access: A Patient Perspective
    • Oncology Clinical Research Patient Recruitment
    • Patient Perspectives on Clinical Trial Participation
    • Patient Perspectives on Direct-to-Consumer Television Advertising
    • Rare Patient Voice and inVibe amplify The Patient Voice!
    • The Long and Winding Road to Care
    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
  • Clinical Trial Recruitment with Rare Patient Voice
  • For Researchers
  • Health Union’s 2024 in America Survey Results
  • How I got the idea for Rare Patient Voice
  • Interested in Becoming a Referral Partner?
  • Let’s Get Started
  • Newsletter #44 – January 18, 2023
  • Newsletter #45 – February 15, 2023
  • Newsletter #46 – March 15, 2023
  • Newsletter #47 – April 19, 2023
  • Newsletter #48 – May 17, 2023
  • Newsletter #55 – December 19, 2023
  • Newsletter #62 – July 23, 2024
  • Newsletter #70 – March 26, 2025
  • Newsletter #71 – April 16, 2025
  • Now Patients in the UK and EU Can Make their Voices Heard!
  • outsmary
  • Patient Communication Preferences in Clinical Trials
  • Patient Journeys and Insights Across Oncology and Rare Diseases
  • PM Survey
  • Post #25909
  • Pricing – QRCA
  • Privacy Policy
  • Rare Patient Voice Proposal Automation Module (PAM)
  • Rare Patient Voice: The Gold Standard in Healthcare Research Recruitment
    • Breast Cancer Clinical Trials Recruitment
    • Diabetes Panel Recruitment
    • Epilepsy Research Panel Recruitment
    • Frequently Asked Questions from Clients
    • Hemophilia Patient Panel Recruitment
    • HIV Research Panel Recruitment Made Simple
    • Industry Conferences
    • Lung Cancer Clinical Trials Recruitment
    • Multiple Myeloma Research Panel Recruitment
    • Multiple Sclerosis Panel Recruitment
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
  • Rare Patient Voice: The Gold Standard in Healthcare Research Recruitment
  • Review Online
  • RPV Patient Advocacy Team Overview
  • RPV Standard Operating Procedures
  • RPV Store
  • Sitemap
  • Standard PII (RPV) Version
  • The Cryptographic Key – Authenticating Users
  • The Impact of Rare Diseases on Patients and Caregivers
  • The Role of Patient Advocacy Groups
  • The Voice of the Patient: Preference in Healthcare Research Participation
  • Types of Research
  • We are sorry
  • What are hot drug development categories Part 1?
  • What Do Patients Really Think of Telehealth?
  • What Happens Next?
  • What Happens Next?
  • What Happens Next?
  • What Happens Next?
  • What Happens Next?
  • What Happens Next?
  • What Happens Next?
  • What Happens Next?
  • What Happens Next?
  • What Happens Next?
  • What Happens Next?
  • What Happens Next?
  • What Happens Next?
  • What Happens Next?
  • What Happens Next?
  • What Happens Next?
  • What Happens Next?
  • What Happens Next?
  • What Happens Next?
  • What Happens Next?
  • What Happens Next?
  • What Happens Next?
  • What Happens Next?
  • Why Join Rare Patient Voice?
  • Working Smarter Together: The Impact of Accommodations in Business and the Neurodiverse Community
  • You Ask, We Answer
  • You recruite caregivers?
  • Providing patients and caregivers a voice
  • Become a Referral Partner
  • Categories
  • Locations
  • My Bookings
  • Tags
  • Clinical Trial Opportunities for Patients and Family Caregivers
  • Find Us in the Community
  • For Patients
  • Frequently Asked Questions
  • How we use your information
  • Newsletters
  • Patient and Family Caregiver Study Opportunities
  • Sign Up and Enjoy Patient Benefits
  • Testimonials
  • Do you recruit caregivers?
  • Newsletter #49 – June 20, 2023
  • Newsletter #50 – July 18, 2023
  • Newsletter #51 – August 23, 2023
  • Newsletter #52 – September 19, 2023
  • Newsletter #53 – October 18, 2023
  • Newsletter #54 – November 16, 2023
  • Newsletter #56 – January 17, 2024
  • Newsletter #57 – February 21, 2024
  • Newsletter #58 – March 20, 2024
  • Newsletter #59 – April 17, 2024
  • Newsletter #60 – May 16, 2024
  • Newsletter #61 – June 18, 2024
  • Newsletter #63 – August 21, 2024
  • Newsletter #64 – September 18, 2024
  • Newsletter #65 – October 17, 2024
  • Newsletter #66 – November 20, 2024
  • Newsletter #67 – December 18, 2024
  • Newsletter #68 – January 15, 2025
  • Newsletter #69 – February 19, 2025

Latest Blog Posts

  • What kinds of projects does RPV do?
  • Who Are RPV’s Clients?
  • How Quickly Can RPV Recruit Patients? Wes Michael Explains
  • Meet Our Team: Sara Prosic, Business Development Associate
  • Wes Michael Talks Empowering Patients Through Research

Check out our YouTube Channel

https://youtu.be/cfjkqh5Ykp0

Read Our Newsletter

Read our Newsletter
What’s New at Rare Patient Voice?

Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(443) 986-1949

Regular business hours are Monday through Friday, 9am-5pm ET.

Careers


For Patients

  • Learn about us
  • Vision, Mission and Core Values
  • Sign up to participate
  • Find us in the community
  • Read our blog for patients
  • Privacy Policy

For Related Groups

  • Interested in Becoming a Referral Partner?
  • Are you a researcher?
  • Read our blog for businesses

Visit RPV on Facebook Visit RPV on X Visit RPV on LinkedIn Visit RPV on Instagram Visit RPV on TikTok
Visit RPV on YouTube

Intellus Worldwide logo   Insights Association Member Logo  BHBIA Corporate Member logo

EPHMRA Agency Member logo ESOMAR logo

GSA Member logo

CIRQ 27001 certified logo Rare Patient Voice, LLC, Market Research, Towson, MD

Rare Patient Voice, LLC, Market Research, Towson, MD

©2025. Rare Patient Voice. All Rights
Reserved. Privacy Policy | Sitemap

©2025 . All Rights Reserved.

Copyright © 2025 · Genesis Framework · WordPress · Log in

Search Our Website

We use cookies to ensure the best experience with Rare Patient Voice. By clicking “Accept”, you agree to our privacy policy.
Privacy Policy   |    Cookies    |    Accept
Manage consent

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.
Necessary
Always Enabled
Necessary cookies are absolutely essential for the website to function properly. These cookies ensure basic functionalities and security features of the website, anonymously.
Functional
Functional cookies help to perform certain functionalities like sharing the content of the website on social media platforms, collect feedbacks, and other third-party features.
Performance
Performance cookies are used to understand and analyze the key performance indexes of the website which helps in delivering a better user experience for the visitors.
Analytics
Analytical cookies are used to understand how visitors interact with the website. These cookies help provide information on metrics the number of visitors, bounce rate, traffic source, etc.
Advertisement
Advertisement cookies are used to provide visitors with relevant ads and marketing campaigns. These cookies track visitors across websites and collect information to provide customized ads.
Others
Other uncategorized cookies are those that are being analyzed and have not been classified into a category as yet.
SAVE & ACCEPT