The patient voice is powerful, and helping patients and caregivers share their opinions with researchers and companies developing products to improve lives is the cornerstone mission of Rare Patient Voice. … READ MORE
RPV’s Pam Cusick on Supporting Ourselves and Others
Taking time to think about who we are and where we are going can easily fall by the wayside in our busy lives. But practicing some introspection, goal-setting, and self-care … READ MORE
The Basics of Rare Patient Voice for Clients
When we’re caught up in our projects and busy professional lives, we can forget that the basics of our work may not be crystal clear to even longtime clients. Rare … READ MORE
Bloodstream Podcast Interview Wes Michael on Origins of RPV
Nearly every successful venture has its origins in a fresh idea, or a new twist on an old one. On the latest episode of Believe Ltd’s Bloodstream podcast, Wes Michael … READ MORE
Rare Patient Voice Launches New “Sharing My Voice” Video Series
Patients and caregivers are the leading experts on the diseases and conditions impacting their lives everyday. Researchers and companies are increasingly listening to the patient voice in developing products and … READ MORE
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