Rare Patient Voice staffers live across the country and all work remotely, but share one major thing in common: we love that our work helps patients and family caregivers share … READ MORE

We take security seriously at RPV! In his latest video in celebration of our tenth anniversary, President and Founder Wes Michael talks about some of the numerous steps we take … READ MORE

At Rare Patient Voice, we pay patients and family caregivers $120 per hour of their time for participation in research studies. But when asked, that’s not the main reason they give … READ MORE

RPV President and Founder Wes Michael was a guest recently on the Inspired Insider Podcast. He and host Dr. Jeremy Weisz discussed the intricacies of patient recruitment, the potential of … READ MORE