Feedback from clients is so useful to us! How else can we learn what we are doing right and where we need to make improvements? One way we get feedback … READ MORE
Are Rare Patient Voice panelists spread across the United States?
We get several variations of this question. Since many people know we recruit patients at patient events like walks and conferences, they wonder if we have patients from all over … READ MORE
My Least Favorite Topic – No-Shows
What do I least like to hear about – No-shows! When scheduled respondents don’t show up or call in or answer the phone at their appointed time. I know what … READ MORE
Does Rare Patient Voice have patients with other diseases or conditions?
Many of you probably know that we list the panels and counts on the website. You can go to https://rarepatientvoice.com/for-researchers/patient-panels. We list the counts for over 300 conditions there. But … READ MORE
What if a patient doesn’t have a checking account?
Rare Patient Voice pays patients and caregivers by check when they complete a study. We’ve asked our panelists, and they prefer checks. You can’t pay rent or co-pays with a … READ MORE
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