Rare Patient Voice has grown and evolved as a company over the years. Here is a top 10 list of our most impactful current facts! Rare Patient Voice has over … READ MORE
Weekly Warrior: Meet Angela
“Hello! I’m Angela Davis. I’ve suffered Stiff Person Syndrome symptoms since I nearly died at birth due to severe body-wide rigidity as well as leg and foot malformation. Thanks to … READ MORE
Weekly Warrior: Meet Emily
“My name is Emily (@healmewholeheartedly) and I am a 32 year-old living with Sjögren’s Syndrome, FSGS, and Pulmonary Arterial Hypertension (PAH). I’ve known chronic illness my whole life, and … READ MORE
Weekly Warrior: Meet Dani
“Hi, I’m Dani. I’m 19 and from New Zealand. I’m a survivor of E-coli O157:h7 and Hemolytic Uremic Syndrome (HUS). Both life threatening illnesses have left me with multiple chronic … READ MORE
Meet Our Team: Jennifer Harscheid, Project Manager
What began as a phone call between friends led to a dream job for Rare Patient Voice Project Manager Jennifer Harscheid. “I began working with Rare Patient Voice in September … READ MORE
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