I have important news for patients and clients! After 7 years of inviting patients to studies in the US and Canada, we are now expanding to Europe. We’ve begun recruiting … READ MORE
Thanks to We’re Not Drunk, We Have MS, our Terrific MS Partner
If you have MS, you need to check out the Facebook page of a group called We’re Not Drunk, We Have MS. They share important information for MS patients and … READ MORE
Thanks to WhatNext, Our Terrific Cancer Patient Partner
We started working with WhatNext not long after I founded Rare Patient Voice in 2013. If you’re not familiar with WhatNext, please take a look, whatnext.com. It is a great … READ MORE
The North Wind and the Sun
In first grade, our teacher, Mrs. Culver would gather us on the floor in the front of the classroom at Sandy Bank school and read stories to us. There’s one … READ MORE
Should companies do marketing to their market research panels?
I’ve been noticing lately that many companies with patient panels or communities that conduct market research also engage in direct marketing or advertising with their patients. They’ll send out a … READ MORE
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