Blog - Rare Patient Voice

How does Rare Patient Voice Work? Can I get paid for doing surveys?

August 1, 2020 Wes Michael

Hi, I’m Wes Michael, President of Rare Patient Voice. I founded Rare Patient Voice in 2013 to give patients and caregivers (generally family members) a chance to voice their opinions … READ MORE

Let’s Name our Zebra Mascot – but not Zebra McZebface!

July 29, 2020 Wes Michael

Thanks for the tremendous response we’ve received to help us name our Zebra mascot! We’ve received hundreds of names. And not just the names, but great thinking behind the names. … READ MORE

Eventually . . . Why Not Now?

July 17, 2020 Wes Michael

I joined General Mills in Minneapolis fresh out of graduate school in 1983. As a history buff, I was interested in the company history. You may know it for Cheerios, … READ MORE

We can’t see you at events, but we still want you!

July 16, 2020 Wes Michael

We at Rare Patient Voice are used to attending hundreds of patient events every year. Walks, conferences, educational symposia. Of course, they are all cancelled this year, some have become … READ MORE

Disabled Individuals Can Get a Ticket to Work

July 6, 2020 Wes Michael

Here is information on Social Security Administration’s Ticket to Work program. Individuals who receive Social Security Disability benefits often worry that they will be unable to earn any type of … READ MORE

How does Rare Patient Voice Work? Can I get paid for doing surveys?

Let’s Name our Zebra Mascot – but not Zebra McZebface!

Eventually . . . Why Not Now?

We can’t see you at events, but we still want you!

Disabled Individuals Can Get a Ticket to Work

“I’ve had excellent interactions with the staff. The surveys are usually somewhat fun and feel like you’re actually helping someone or developing something new. They’ve always followed through on payment and I appreciate all the opportunities.”

Rare Patient Voice

For Patients

For Related Groups

Recent Patient

“I’ve had excellent interactions with the staff. The surveys are usually somewhat fun and feel like you’re actually helping someone or developing something new. They’ve always followed through on payment and I appreciate all the opportunities.”

Rare Patient Voice

For Patients

For Related Groups

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