With a name like Rare Patient Voice, it is pretty obvious we recruit rare patients, right? Well, yes, but we also recruit non-rare. Reminds me of a story. When I … READ MORE
We love referrals. But read the invite carefully!
We found a long time ago, patients (and caregivers) know other patients and caregivers. Many of our Rare Patient Voice members came from referrals from others. So, we love referrals! … READ MORE
Not all surveys can be done on mobile devices. Please read the invites carefully!
It is 2020. Everyone uses smart phones, tablets and who knows what other mobile devices. Which is great, as when we send an invite via email, many people can see … READ MORE
Please don’t speed through our surveys!
The way I see it, we make a deal with our patients. We agree to fully protect your privacy, give you a chance to share your opinions and experiences, and … READ MORE
Surveys need to be mobile-friendly!
Have you heard the expression, if the mountain won’t come to Muhammed, then Muhammed must go to the mountain? It isn’t a commentary on comparative religion. It means, you can’t … READ MORE
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