Our latest WeeklyWarrior is Amy, a doctoral student, violinist, and violin teacher from Texas. She lives with Ehlers-Danlos syndrome, a rare condition that affects connective tissue. Amy shares her story … READ MORE
Planning for Ongoing Excellence and Gold Standard Service at RPV
Whether we are connecting clients with patients and family caregivers for participation in patient journey market research, medical market research, Medical Affairs projects, or clinical trials, the goal at … READ MORE
Happy Thanksgiving from Rare Patient Voice!
Rarity and all of us here at Rare Patient Voice would like to wish our patients, family caregivers, clients, colleagues, families, and friends a safe and joyous Thanksgiving! Now pass … READ MORE
The Voices of Family Caregivers Need to Be Heard
Helping to care for a loved one living with a rare disease or chronic illness can be a life-changing experience for both patient and caregiver. It can be very difficult … READ MORE
Weekly Warrior: Meet Emily
Weekly Warrior Emily has been living with psoriasis and psoriatic arthritis for 20 years and shares her story so others with these conditions don’t feel alone. “We have to stay … READ MORE
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