What is the RPV referral program? Rare Patient Voice connects patients and family caregivers with opportunities to take part in paid research studies and share their insights to help researchers … READ MORE
The Rare Disorder Podcast interviews RPV’s Wes Michael
It’s important to nurture the next generation of patient advocates, but also to listen to and learn from them now. One of these impressive young people is Shivani Vyas, a graduating … READ MORE
RPV’s Pam Cusick, a 2022 Woman of Distinction
At Rare Patient Voice we are distinctly proud of our Senior Vice President, Pam Cusick. In an awards program yesterday in NYC, Pam was named one of the 2022 MM+M … READ MORE
AMA Baltimore Honors RPV with Market Research Award
BALTIMORE, MD – The American Marketing Association Baltimore Chapter (AMA Baltimore) announced the winners of its annual MX Awards, on Thursday, May 19, 2022 at the Frederick Douglass-Isaac Myers Maritime … READ MORE
Wes Joins RPV Community Member on “Real Thoughts and Conversations” Podcast
On Tuesday, May 10, RPV President Wes Michael was a guest on “Real Thoughts and Conversations,” a podcast hosted by Leon Thomas. The topic was patient advocacy and rare disease, … READ MORE
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