One of the biggest complaints that we get from our Rare Patient Voice patients and caregivers who participate in our surveys is when they don’t qualify. It’s very frustrating to … READ MORE
Is Telehealth Here to Stay?
Image credit: Unsplash We’re excited to share this post written by Ruth Claire James! The pandemic has been disruptive, but a silver lining that came out of it is how … READ MORE
2020 Year in Review
2020 was a very difficult year for everyone. It affected us all personally. Some businesses were hit harder than others. How did your business do? I have a friend in … READ MORE
Inspiration and Motivation
People often ask me what inspired me and what motivated me to start up Rare Patient Voice. Turns out they were two very different things. Several things and people inspired … READ MORE
The Importance of Patient Advocacy Groups
Patient advocacy groups educate and support patients and their families throughout their healthcare journey. Many of these organizations are started and run by patients or former patients themselves alongside caregivers, … READ MORE
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