In 2025, RPV surveyed 2156 patients in the United States for their thoughts on participating in co-design for clinical trials. On Sept. 16, noted industry media outlet PharmaVoice referenced the … READ MORE
Wes Michael Talks Helping Give Patients a Voice on The Teaching Journeys
Dave Roberts, MSW lost his 18-year-old daughter Jeannine due to a rare form of cancer, alveolar rhabdomyosarcoma, and was later inspired to create The Teaching Journeys Podcast. In this thought-provoking … READ MORE
An Introduction to RPV from Founder and President Wes Michael
Wes Michael founded Rare Patient Voice, now a Konovo company, in 2013. Here, Wes provides an introduction to the company and the services we provide.
Wes Michael Interviewed in Leadership Today Blog
Adam Mendler is a nationally recognized authority on leadership and is the creator and host of Thirty Minute Mentors, where he regularly elicits insights from America’s top CEOs, founders, athletes, … READ MORE
RPV & Sciensus spotlight rare disease access burden in Europe with ISPOR 2026 poster
Rare Patient Voice was proud to connect Sciensus with patient participants for their study bringing attention to the rare disease access burden in Europe, the subject of the poster presented … READ MORE
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