On Rare Disease Day, we recognize the more than 300 million people worldwide living with a rare disease — and the countless family members, friends, and caregivers who help to … READ MORE
New Report Shows Rare Disease Is a Mental Health Burden on Patients & Caregivers that Healthcare Professionals May Not be Meeting
Rare Disease Is a Mental Health Burden on Patients and Caregivers that Healthcare Professionals May Not be Meeting, Reveals Latest Global Data from Konovo While 82% of rare disease patients … READ MORE
Wes Michael Visits Skot Woldron’s Unlocked for Rare Disease Day 2026
With Rare Disease Day 2026 coming up later this week, Wes Michael recently discussed the power of the rare disease patient voice, the importance of trust, and RPV’s joining with … READ MORE
Rare Patient Voice is Acquired by Konovo, a Technology-First Healthcare Intelligence Company
Konovo Achieves Significant Milestone in Connecting Patient and Healthcare Provider Insights with Rare Patient Voice Acquisition Rare Patient Voice’s 200,000+ registered patients and caregivers expand Konovo’s ability to deliver connected … READ MORE
Hear How RPV Was Created to Connect Patients, Caregivers, and Researchers
Rare Rebels™ is an ongoing effort to map the rare disease ecosystem through the people leading the charge, documenting how change happens and how connections across science, advocacy, infrastructure, and … READ MORE
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