Rare Patient Voice was proud to connect Sciensus with patient participants for their study bringing attention to the rare disease access burden in Europe, the subject of the poster presented … READ MORE
Wes Michael Discusses Patients and Clinical Research on Beyond the Buzz
“Beyond the Buzz” is a short, evidence-informed podcast that helps curious adults think clearly about emerging trends in health, technology, and culture. In this interview Dr. Tara Munoz, a scientist and … READ MORE
A Perfect Match in Healthcare Market Research
Konovo CEO Tal Rosenberg and Rare Patient Voice President Wes Michael join Brian Peterson on the Intellicast podcast to discuss Konovo’s acquisition of Rare Patient Voice and what it means … READ MORE
A Discussion of Decentralized Clinical Trials, Diversity, and RPV on All Home Care Matters
All Home Care Matters is a podcast and YouTube show dedicated to providing resources to families facing long-term care questions and issues for themselves and their loved ones. In this … READ MORE
RPV on Mental Health & Rare Disease in Rare Revolution
Living with a rare disease isn’t just a physical battle—it carries a profound mental health burden, from isolation to uncertainty about the future. Raising awareness means recognizing the emotional toll … READ MORE
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