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Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

  • Home
  • About Us
    • Meet Our Team
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    • Trusted Partners
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  • For Researchers
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    • Diseases
      • Hemophilia
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      • Breast Cancer
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      • Multiple Myeloma
      • Epilepsy
      • Non-Small Cell Lung Cancer
      • HIV
  • Referral Program
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies
    • The Long and Winding Road to Care
    • Health Literacy Initiative’s PSA
    • Patient Perspectives on Clinical Trial Participation
    • Patient Journeys and Insights for Oncology and Rare Diseases
    • Market Access: A Patient Perspective
    • The Impact of Rare Diseases on Patients and Caregivers
    • The Role of Patient Advocacy Groups
    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
    • Patient Insights on Telehealth: A Case Study
    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice

Helping patients and caregivers share their voices

Meet Our Team: Chris Cooper, Senior Project Manager

March 16, 2023 Laura Mullen

Chris Cooper is a jack of all trades. He began working with Rare Patient Voice in 2018 doing video production and website management, and is now a Senior Project Manager. … READ MORE

Filed Under: Business

Meet Our Team: Felecia Bryant, Project Manager

February 16, 2023 Laura Mullen

Hailing from Alabama, Felecia joined Rare Patient Voice in 2019 and is now a Project Manager. She feels strongly that her personal experience helps her to better meet the needs … READ MORE

Filed Under: Business

RPV President Wes Michael Interviewed on Entrepreneurship

February 14, 2023 Laura Mullen

Wes Michael, Founder and President of Rare Patient Voice, was interviewed recently by Go Solo on entrepreneurship, launching RPV, and his tips for those with ideas for a new business. … READ MORE

Filed Under: Business, Media Mentions

RPV’s Jessica Bolden Shares Her Voice for February

February 8, 2023 Laura Mullen

In honor of Black History Month and leading up to Rare Disease Day, Rare Patient Voice proposal development associate Jessica Bolden shares her voice as a woman living with Sickle … READ MORE

Filed Under: Business, Patient

10 RPV Facts for 10 Years

February 7, 2023 Laura Mullen

Rare Patient Voice has grown and evolved as a company over the years. Here is a top 10 list of our most impactful current facts!  Rare Patient Voice has over … READ MORE

Filed Under: Business

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Recent Posts

  • Weekly Warrior: Meet Iris Ann
  • Weekly Warrior: Meet Harper
  • Weekly Warrior: Meet Eric
  • Meet Our Team: Chris Cooper, Senior Project Manager
  • Weekly Warriors: Meet Morgan and Maddison

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