With a name like Rare Patient Voice, it is pretty obvious we recruit rare patients, right? Well, yes, but we also recruit non-rare. Reminds me of a story. When I … READ MORE

Have you heard the expression, if the mountain won’t come to Muhammed, then Muhammed must go to the mountain? It isn’t a commentary on comparative religion. It means, you can’t … READ MORE

Over the past year we’ve put a lot of videos about Rare Patient Voice on Linked In and Facebook. Each one kind of assumes you’ve seen some others and have … READ MORE

In the market research world, we throw around the term “best efforts” a lot. What does it mean? I Googled the term and Investopedia says: Best efforts is a service … READ MORE

We reward our patients and caregivers at the rate of $100 per hour for taking part in surveys or interviews. We feel that is only fair, to honor them for … READ MORE