In this thoughtful interview, Rare Patient Voice‘s Wes Michael speaks with Rare Connection podcast host Joanna Ball, who lives with homocystinuria. They discuss how RPV also includes people living with common conditions, creating one of the most trusted patient‑insight networks worldwide. Wes breaks down why finding the right patients matters, how patient voices influence research and product development, and why paying patients for their expertise and time is essential for ethical, high‑quality insights.
The episode is live now: https://podcasts.apple.com/us/podcast/rare-patient-voice-with-wes-michael-president-founder/id1693084135?i=1000791673161
