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Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

  • Home
  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • Press Releases
  • For Patients
    • Study Opportunities for Patients and Caregivers
    • Sign Up to Participate
    • Find Us in the Community
    • Frequently Asked Questions
    • How We Use Your Information
    • Newsletters
  • For Advocacy Groups
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Diseases
      • Hemophilia
      • Multiple Sclerosis
      • Breast Cancer
      • Diabetes
  • Videos
    • Meet The Patients
    • You Ask, We Answer
    • Get To Know
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies
    • Market Access: A Patient Perspective
    • The Impact of Rare Diseases on Patients and Caregivers
    • The Role of Patient Advocacy Groups
    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
    • Patient Insights on Telehealth: A Case Study
    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice

Helping Patients and Caregivers Voice Their Opinions

Proposal Requests

We don’t conduct the research, we focus on finding the respondents. So we are happy to work with all research firms to supply all the patient/caregiver sample needed, or supplement what you may have.

Click Here to Submit a Proposal Request


"I had a very difficult recruit and Rare Patient not only made it happen, but they were an active partner along the way, AND the participants were spectacular! The project timeline was not traditional, nor were my expectations, but all 12 participants were engaged, articulate, and ultimately, each participant played a crucial role in driving my end client’s next steps. I could not be more satisfied!" — Kate Wagenlander Watson, KCW Global Research

"Rare Patient Voice is above and beyond other patient recruiters – in that their panel allows us to connect with specific and targeted patient and caregiver populations.  Their access is unique, and the quality of the participants is high. The RPV team provides quick and efficient solutions to our research needs, and they are always our first choice when conducting patient research." — Erin Canuso, OLSON RESEARCH GROUP, INC.

"I’ve been personally working with RPV for almost two years and I cannot thank them enough. The Rare Patient Voice panel is a great compliment to our HCP panel. They are my 'go to' source when our clients are working with us on hybrid studies that require both doctor and patient respondents. The PAM tool is a life saver for getting quick-turn requests done! They are able to provide quality respondents, time and time again." — Vicki Watson, MedSurvey

“You were by far the most valuable partner that we have worked with on this study, both in recruits and collaboration.” — Mike Smiley, Project Manager, Charter Oak Field Services

“Awesome! You guys are seriously lifesavers!”

“You guys are rock stars.” — Project Manager

“All of the recruits have been really amazing.” — Moderator

There are many firms that excel at recruiting healthcare professionals. We focus solely on patient and caregiver recruiting. Let us propose on your next hard-to-recruit project. Click the button below to get to our Proposal Automation Module (PAM) where you'll be able to enter your specs, see feasibility, and get costs all automatically!

Or send your RFP info to: pam.cusick@rarepatientvoice.com

Click Here to Submit a Proposal Request

Latest Blog Posts

  • Rare Patient Voice Expands to Europe
  • Thanks to We’re Not Drunk, We Have MS, our Terrific MS Partner
  • Thanks to WhatNext, Our Terrific Cancer Patient Partner
  • The North Wind and the Sun
  • Should companies do marketing to their market research panels?

Check Out Our YouTube Channel!

https://youtu.be/kPihaNOjekw

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What’s New at Rare Patient Voice?

Recent Patient

“I’ve had excellent interactions with the staff. The surveys are usually somewhat fun and feel like you’re actually helping someone or developing something new. They’ve always followed through on payment and I appreciate all the opportunities.”

Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(410) 218-0527

For Patients

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For Related Groups

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