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Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

  • Home
  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • Press Releases
  • For Patients
    • Study Opportunities for Patients and Caregivers
    • Sign Up to Participate
    • Find Us in the Community
    • Frequently Asked Questions
    • How We Use Your Information
    • Newsletters
  • For Advocacy Groups
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Diseases
      • Hemophilia
      • Multiple Sclerosis
      • Breast Cancer
      • Diabetes
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies
    • Market Access: A Patient Perspective
    • The Impact of Rare Diseases on Patients and Caregivers
    • The Role of Patient Advocacy Groups
    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
    • Patient Insights on Telehealth: A Case Study
    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice

Helping Patients and Caregivers Voice Their Opinions

Sign Up and Enjoy Patient Benefits

Click Here to Sign Up!

Rare Patient Voice connects patients and caregivers with research opportunities.

Who knows better than you about your journey and experiences? We connect you with researchers who are developing products and services which can help you and others with your condition. These researchers need patient input so that they develop products and services that have a meaningful impact on patients’ lives.

When you join Rare Patient Voice, you may be invited to participate in interviews, surveys, or online communities where you will share your insights.

  • By signing up, you will earn $100 (USD) per hour for participating in these studies.
  • Read more about how we use your information.
  • You will earn $100 (USD) per hour for participating in these studies.
  • Read more about how we use your information.

By making your voice heard, you are a catalyst for change. Rest assured that your input will be used to help other patients like you!

We usually have over 100 studies running at any time, so there are many opportunities to participate.  Currently, we are looking for patients and caregivers with many different health conditions. However, that does not guarantee we will have surveys for you. You might not hear from us for several months, or you might hear from us twice in one week!

We are proud to say that we’ve rewarded patients with over $6 million for participating in surveys in the past eight years! 

Click Here to Sign Up!

Latest Blog Posts

  • RPV Basics
  • How much detail to reveal in survey invitations?
  • Impact of the Covid-19 Pandemic on Rare Disease Patients and Caregivers
  • Join Rare Disease Day 2021
  • Is Telehealth Here to Stay?

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What’s New at Rare Patient Voice?

Recent Patient

“I’ve had excellent interactions with the staff. The surveys are usually somewhat fun and feel like you’re actually helping someone or developing something new. They’ve always followed through on payment and I appreciate all the opportunities.”

Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(410) 218-0527

For Patients

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For Related Groups

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