Here are our current U.S. patient and caregiver counts. We typically obtain 50% response for non-cancers, and up to 20% for cancers.
| Disease/Condition - Non-Cancer | Caregiver | Patient | Total |
| Achalasia | 3 | 19 | 22 |
| Acromegaly | 3 | 15 | 18 |
| Addiction | 31 | 106 | 137 |
| Addison's Disease (Adreanal insufficiency) | 25 | 99 | 124 |
| Albinism | 18 | 12 | 30 |
| Allergies | 325 | 409 | 734 |
| Alopecia | 11 | 17 | 28 |
| Alpha 1 Antitrypsin Deficiency (A1AD) | 11 | 35 | 46 |
| Alzheimer's Disease (AD) | 1070 | 57 | 1127 |
| Amyloidosis | 4 | 4 | 8 |
| Amyotrophic Lateral Sclerosis (ALS) | 92 | 44 | 136 |
| Anemia | 41 | 255 | 296 |
| Ankylosing Spondylitis (AS) | 25 | 246 | 271 |
| Antiphospholipid Syndrome (APS) | 3 | 30 | 33 |
| Anxiety | 317 | 1836 | 2153 |
| Aplastic Anemia (AA) | 73 | 76 | 149 |
| Arachnoiditis | 3 | 12 | 15 |
| Arthrogryposis Multiplex Congenita (AMC) | 26 | 19 | 45 |
| Asthma | 498 | 1324 | 1822 |
| Ataxia | 45 | 70 | 115 |
| Atrial Fibrillation (AFIB) | 51 | 115 | 166 |
| Attention Deficit Hyperactivity Disorder (ADHD, ADD) | 551 | 483 | 1034 |
| Atypical Hemolytic Uremic Syndrome (aHUS) | 13 | 27 | 40 |
| Autism | 956 | 139 | 1095 |
| Avascular Necrosis (AVN, Osteonecrosis) | 7 | 27 | 34 |
| Barth Syndrome (BTHS) | 10 | 0 | 10 |
| Batten Disease | 4 | 1 | 5 |
| Behcet's Disease (BD) | 11 | 31 | 42 |
| Bipolar | 240 | 763 | 1003 |
| Borderline Personality Disorder (BPD) | 17 | 112 | 129 |
| Brain Aneurysm | 9 | 17 | 26 |
| Bronchiectasis | 2 | 18 | 20 |
| Bronchitis | 8 | 46 | 54 |
| Caroli Disease | 7 | 1 | 8 |
| Carpal Tunnel Syndrome (CTS) | 9 | 86 | 95 |
| Celiac Disease (CCD) | 125 | 276 | 401 |
| Cerebral Palsy (CP) | 387 | 99 | 486 |
| Cervical Dystonia | 1 | 9 | 10 |
| Charge Syndrome | 5 | 3 | 8 |
| Chiari Malformation (CM) | 88 | 158 | 246 |
| Chronic Fatigue Syndrome (CFS, ME) | 6 | 136 | 142 |
| Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) | 5 | 57 | 62 |
| Chronic obstructive pulmonary disease (COPD) | 336 | 425 | 761 |
| Chronic Pain, Back Pain | 119 | 551 | 670 |
| Cleft | 23 | 4 | 27 |
| Cluster Headache | 29 | 129 | 158 |
| Complex Regional Pain Syndrome (CRPS, RSD) | 17 | 93 | 110 |
| Congenital Sucrase-Isomaltase Deficiency (CSID) | 9 | 0 | 9 |
| Craniosynostosis | 15 | 0 | 15 |
| Crohn's Disease (CD) | 258 | 596 | 854 |
| Cushing's Disease (CS) | 13 | 109 | 122 |
| Cyclic Vomiting Syndrome (CVS) | 21 | 28 | 49 |
| Cystic Fibrosis (CF) | 1002 | 720 | 1722 |
| Dandy Walker Syndrome (DWS) | 10 | 4 | 14 |
| Deep Vein Thrombosis (DVT) | 8 | 47 | 55 |
| Degenerative Disc Disease (DDD) | 53 | 332 | 385 |
| Deletion Duplication Syndrome | 166 | 19 | 185 |
| Depression (MDD) | 366 | 2161 | 2527 |
| Dercum's Disease (adiposis dolorosa) | 1 | 9 | 10 |
| Developmental Delay (DD) | 126 | 7 | 133 |
| Diabetes (DM) | 1739 | 2579 | 4318 |
| Diverticulitis | 9 | 54 | 63 |
| Down Syndrome (DS) | 121 | 6 | 127 |
| Dupuytren's Contracture | 1 | 6 | 7 |
| Dwarfism | 31 | 15 | 46 |
| Dysautonomia | 69 | 300 | 369 |
| Dyslexia | 12 | 11 | 23 |
| Dystonia | 17 | 30 | 47 |
| Eating Disorder | 11 | 43 | 54 |
| Eczema | 77 | 118 | 195 |
| Ehlers-Danlos Syndrome (EDS) | 117 | 537 | 654 |
| Endometriosis | 12 | 185 | 197 |
| Eosinophilic Esophagitis (EOE) | 155 | 79 | 234 |
| Eosinophilic Gasteroenteritis (EG) | 5 | 12 | 17 |
| Epidermolysis Bullosa (EB) | 8 | 5 | 13 |
| Epilepsy | 1629 | 645 | 2274 |
| Epstein Barr Syndrome (EBV) | 2 | 20 | 22 |
| Fabry disease | 27 | 83 | 110 |
| Familial Adenomatous Polyposis (FAP) | 4 | 37 | 41 |
| Fatty Oxidation Disorder (FAOD) | 57 | 18 | 75 |
| Fetal Alcohol Syndrome (FAS) | 18 | 2 | 20 |
| Fibrodysplasia Ossificans Progressiva (FOP) | 8 | 4 | 12 |
| Fibromyalgia (FM) | 140 | 1167 | 1307 |
| Fragile X Syndrome (FXS) | 58 | 20 | 78 |
| Friedreich's Ataxia (FA) | 13 | 18 | 31 |
| Gastritis | 7 | 39 | 46 |
| Gastroesophageal Reflux Disease (GERD) | 124 | 412 | 536 |
| Gastroparesis (GP) | 58 | 190 | 248 |
| Gaucher Disease (GD) | 17 | 39 | 56 |
| Gout | 25 | 57 | 82 |
| Grave's Disease (GD) | 13 | 82 | 95 |
| Guillain-Barre Syndrome (GBS) | 6 | 39 | 45 |
| Hashimoto's Disease (HT) | 27 | 261 | 288 |
| Hearing Loss | 113 | 171 | 284 |
| Heart Disease | 781 | 775 | 1556 |
| Hemochromatosis (Iron Overload) | 9 | 16 | 25 |
| Hemophilia | 917 | 685 | 1602 |
| Hepatitis | 70 | 210 | 280 |
| Hereditary Angioedema (HAE) | 8 | 25 | 33 |
| Hereditary hemorrhagic telangiectasia (HHT) | 2 | 6 | 8 |
| Hereditary Spastic Paraparesis (HSP) | 3 | 9 | 12 |
| Hernia | 19 | 56 | 75 |
| Herpes (HSV) | 4 | 29 | 33 |
| Hidradenitis Suppurativa (HS) | 8 | 108 | 116 |
| High Blood Pressure (Hypertension, HBP) | 492 | 1389 | 1881 |
| High Cholesterol (Hyperlipidemia) | 106 | 451 | 557 |
| Hip Dysplasia | 14 | 7 | 21 |
| Hirschsprung's Disease (HD, HSCR) | 19 | 1 | 20 |
| HIV | 79 | 513 | 592 |
| Human Growth Hormone Deficiency (GHD) | 137 | 100 | 237 |
| Huntington's Disease (HD) | 284 | 136 | 420 |
| Hydrocephalus | 143 | 91 | 234 |
| Hyperhidrosis | 2 | 9 | 11 |
| Hyperkalemia | 1 | 4 | 5 |
| Hyperparathyroidism | 1 | 12 | 13 |
| Hypoglycemia (Low Blood Sugar) | 13 | 32 | 45 |
| Hypokalemia | 0 | 6 | 6 |
| Hypoparathyroidism | 1 | 14 | 15 |
| Hypothyroidism | 107 | 729 | 836 |
| Hypotonia | 49 | 6 | 55 |
| Hypoxic Ischemic Encephalopathy (HIE) | 12 | 1 | 13 |
| Immune Thrombocytopenic Purpura (ITP) | 13 | 63 | 76 |
| Immunoglobulin Monoclonal Gammopathy of Undetermined Significance (IgM-MGUS) | 0 | 1 | 1 |
| Incontinence | 31 | 34 | 65 |
| Incontinentia Pigmenti (IP) | 26 | 4 | 30 |
| Insomnia | 18 | 159 | 177 |
| Interstitial Cystitis (IC) | 3 | 63 | 66 |
| Interstitial Lung Disease (ILD) | 9 | 36 | 45 |
| Intracranial Hypertension (IH, Pseudotumor Cerebri) | 10 | 78 | 88 |
| Iritis | 0 | 8 | 8 |
| Irritable Bowel Syndrome (IBS) | 35 | 322 | 357 |
| Juvenile Arthritis (JA) | 86 | 31 | 117 |
| Kidney Disease | 305 | 369 | 674 |
| Klippel-Feil Syndrome (KFS) | 4 | 8 | 12 |
| Landau Kleffner Syndrome (LKS) | 4 | 1 | 5 |
| Langerhans Cell Histiocytosis (LCH) | 3 | 3 | 6 |
| LEOPARD Syndrome | 2 | 2 | 4 |
| Leukodsytrophy | 14 | 3 | 17 |
| Lichen Sclerosis (LS) | 0 | 9 | 9 |
| Lipedema | 5 | 17 | 22 |
| Lissencephaly | 17 | 0 | 17 |
| Liver Disease (not hepatitis) | 99 | 162 | 261 |
| Loin Pain Hematuria Syndrome (LPHS) | 0 | 5 | 5 |
| Lupus | 190 | 774 | 964 |
| Lyme Disease | 17 | 80 | 97 |
| Lymphedema | 17 | 52 | 69 |
| Macular Degeneration | 27 | 30 | 57 |
| Maple Syrup Urine Disease (MSUD) | 13 | 7 | 20 |
| Marfan Syndrome (MFS) | 17 | 20 | 37 |
| Mastocytosis (Mast Cell Activating Disease, MCAD) | 35 | 98 | 133 |
| McCune-Albright Syndrome (MAS) | 3 | 4 | 7 |
| Meniere's Disease (MD) | 6 | 47 | 53 |
| Mental Retardation | 34 | 5 | 39 |
| Microcephaly | 28 | 0 | 28 |
| Migraine | 106 | 810 | 916 |
| Mitochondrial Disease | 75 | 42 | 117 |
| Mixed Connective Tissue Disease (MCTD) | 3 | 79 | 82 |
| Moebius Syndrome | 6 | 3 | 9 |
| Monoclonal gammopathy of undetermined significance (MGUS) | 0 | 10 | 10 |
| Mood Disorder | 20 | 20 | 40 |
| MTHFR | 6 | 32 | 38 |
| Mucopolysaccharidoses (MPS) | 49 | 5 | 54 |
| Multiple Sclerosis (MS) | 628 | 4065 | 4693 |
| Multiple System Atrophy (MSA) | 8 | 1 | 9 |
| Muscular Dystrophy (MD) | 310 | 173 | 483 |
| Myasthenia Gravis (MG) | 65 | 126 | 191 |
| Myelodysplastic syndrome (MDS) | 26 | 43 | 69 |
| Myositis | 8 | 53 | 61 |
| Narcolepsy | 20 | 159 | 179 |
| Neuralgia | 6 | 75 | 81 |
| Neurofibromatosis (NF) | 19 | 42 | 61 |
| Neurogenic Bladder | 19 | 30 | 49 |
| Neuromyelitis optica (NMO) | 10 | 15 | 25 |
| Neuropathy | 93 | 335 | 428 |
| Neutropenia | 38 | 6 | 44 |
| Noonan Syndrome (NS) | 8 | 3 | 11 |
| Obesity | 27 | 158 | 185 |
| Obsessive Compulsive Disorder (OCD) | 58 | 103 | 161 |
| Oppositional Defiant Disorder (ODD) | 63 | 12 | 75 |
| Organ Transplant | 80 | 104 | 184 |
| Organic Acidemia (OA) | 42 | 4 | 46 |
| Osteoarthritis (OA) | 240 | 912 | 1152 |
| Osteogenesis Imperfecta (OI) | 51 | 56 | 107 |
| Osteomyelitis (OM) | 1 | 2 | 3 |
| Osteopenia | 8 | 38 | 46 |
| Osteoporosis | 50 | 128 | 178 |
| Pancreatitis | 13 | 35 | 48 |
| Paralysis | 97 | 70 | 167 |
| Parkinson's Disease (PD) | 368 | 337 | 705 |
| Paroxysmal Nocturnal Hemoglobinuria (PNH) | 32 | 64 | 96 |
| Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep.(PANDAS) | 14 | 5 | 19 |
| Pemphigus | 9 | 96 | 105 |
| Phenylketonuria (PKU) | 27 | 28 | 55 |
| Pheochromocytoma (PCC) | 1 | 13 | 14 |
| Pierre Robin Sequence (PRS) | 19 | 0 | 19 |
| Plantar Fasciitis (PF) | 3 | 33 | 36 |
| Polychrondritis | 0 | 14 | 14 |
| Polycystic Ovarian Syndrome (PCOS) | 28 | 287 | 315 |
| Polycythemia Vera (PV) | 4 | 44 | 48 |
| Polymicrogyria (PMG) | 15 | 0 | 15 |
| Polymyositis (PM) | 1 | 11 | 12 |
| Pompe Disease | 25 | 16 | 41 |
| Posttraumatic Stress Disorder (PTSD) | 132 | 557 | 689 |
| Primary Ciliary Dyskinesia (PCD) | 4 | 1 | 5 |
| Primary Immunodeficiency (PID) | 59 | 141 | 200 |
| Progressive Supranuclear Palsy (PSP) | 3 | 1 | 4 |
| Psoriasis/Psoriatic Arthritis | 31 | 205 | 236 |
| Pulmonary Arterial Hypertension (PAH) | 208 | 644 | 852 |
| Pulmonary Fibrosis (PF) | 30 | 92 | 122 |
| Raynaud's Syndrome | 21 | 177 | 198 |
| Restless Leg Syndrome (RLS) | 22 | 98 | 120 |
| Rheumatoid Arthritis (RA) | 81 | 425 | 506 |
| Rosacea | 1 | 22 | 23 |
| Sarcoidosis | 20 | 96 | 116 |
| Scheuermann's Kyphosis | 3 | 5 | 8 |
| Schinzel-Giedion Syndrome (SGS) | 3 | 0 | 3 |
| Schizencephaly | 22 | 2 | 24 |
| Schizophrenia | 125 | 92 | 217 |
| Sciatica | 5 | 57 | 62 |
| Scleroderma | 25 | 195 | 220 |
| Scoliosis | 66 | 206 | 272 |
| Sensory Processing Disorder (SPD) | 108 | 13 | 121 |
| Shaken Baby Syndrome (SBS) | 6 | 1 | 7 |
| Short Bowel Syndrome (SBS, Short Gut) | 28 | 28 | 56 |
| Sickle Cell Disease (SCD) | 250 | 418 | 668 |
| Sjogren's Syndrome (SjS, SS) | 21 | 324 | 345 |
| Sleep Apnea (OSA) | 131 | 422 | 553 |
| Spina Bifida (SB) | 98 | 63 | 161 |
| Spinal Cord | 112 | 318 | 430 |
| Spinal Muscular Atrophy (SMA) | 298 | 142 | 440 |
| Stickler Syndrome | 13 | 7 | 20 |
| Stroke | 245 | 126 | 371 |
| Syncope | 2 | 36 | 38 |
| Syringomyelia | 7 | 56 | 63 |
| Tay Sachs (TSD) | 15 | 8 | 23 |
| Temporomandibular joint (TMJ) | 3 | 31 | 34 |
| Thoracic Outlet Syndrome (TOS) | 2 | 18 | 20 |
| Thrombocytopenia (TCP) | 1 | 7 | 8 |
| Thyroid Eye Disease (TED) | 0 | 13 | 13 |
| Tourette's Syndrome (TS) | 26 | 26 | 52 |
| Traumatic Brain Injury (TBI) | 95 | 92 | 187 |
| Trisomy X (XXX) | 10 | 1 | 11 |
| Ulcerative Colitis (UC) | 106 | 234 | 340 |
| Urea Cycle Disorder (UCD) | 13 | 25 | 38 |
| Uveitis | 6 | 15 | 21 |
| Various | 4 | 15 | 19 |
| Vasculitis | 5 | 20 | 25 |
| Vertebral Artery Dissection (VAD) | 0 | 6 | 6 |
| Vertigo | 10 | 52 | 62 |
| Vision Impairment | 233 | 280 | 513 |
| Vitamin D Deficiency | 4 | 28 | 32 |
| Vitiligo | 9 | 29 | 38 |
| Von Willebrand Disease (VWD) | 143 | 220 | 363 |
| Waldenstrom’s Macroglobulinemia (WM) | 17 | 105 | 122 |
| Wegener's Granulomatosis with Polyangiitis (GPA) | 2 | 14 | 16 |
| Williams Syndrome (WS) | 34 | 7 | 41 |
| Wilson's Disease (hepatolenticular degeneration) | 20 | 7 | 27 |
| Wolff-Parkinson-White (WPW) Syndrome | 8 | 9 | 17 |
| X-Linked Hypophosphatemia (XLH) | 2 | 6 | 8 |
| Wolf-Hirschhorn Syndrome (WHS) | 2 | 0 | 2 |
For each type of cancer, patients are identified by stage of cancer, stage of treatment, age, and geographical location. Clients continue to tell us how impressed they are with the high quality of our respondents. This is a result of:
These practices set our respondents apart from those screened across the general population (“please check all the conditions you have”). It takes more time and attention, but we feel the highest quality data is certainly worth it. With more than 30 years in market research experience on both the client and supplier side, we are happy to give you advice on the design of your research. And since we know our panelist very well, we can advise you on the best way to work with them to get the insights you and your clients require.
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