Patient/Caregiver Panels

Here are our current U.S. patient and caregiver counts. We typically obtain 50% response for non-cancers, and up to 20% for cancers.

Disease/Condition Patients/Caregivers
Achalasia 17
Acromegaly 11
Addiction 96
Addison’s Disease (Adrenal insufficiency) 113
Albinism 29
Allergies 609
Alopecia 29
Alpha 1 Antitrypsin Deficiency (A1AD) 47
Alzheimer’s Disease (AD) 958
Amyloidosis 4
Amyotrophic Lateral Sclerosis (ALS) 104
Anemia 240
Angelman Syndrome (AS) 20
Ankylosing Spondylitis (AS) 261
Antiphospholipid Syndrome (APS) 30
Anxiety 1745
Aplastic Anemia (AA) 149
Arachnoiditis 13
Arthrogryposis Multiplex Congenita (AMC) 44
Asthma 1510
Ataxia 105
Atrial Fibrillation (AFIB) 130
Attention Deficit Hyperactivity Disorder (ADHD, ADD) 861
Atypical Hemolytic Uremic Syndrome (aHUS) 40
Autism 981
Avascular Necrosis (AVN, Osteonecrosis) 31
Barth Syndrome (BTHS) 10
Batten Disease 5
Behcet’s Disease (BD) 40
Biliary Atresia (BA) 14
Bipolar 842
Borderline Personality Disorder (BPD) 105
Brain Aneurysm 15
Bronchiectasis 18
Bronchitis 43
Caroli Disease 8
Carpal Tunnel Syndrome (CTS) 70
CDKL5 19
Celiac Disease (CCD) 300
Cerebral Palsy (CP) 406
Cervical Dystonia 9
Charge Syndrome 8
Chiari Malformation (CM) 235
Chronic Fatigue Syndrome (CFS, ME) 110
Chronic Inflammatory Demyelinating  Polyneuropathy (CIDP) 86
Chronic obstructive pulmonary disease (COPD) 632
Chronic Pain, Back Pain 569
Cirrhosis (LC) 45
Cleft 40
Cluster Headache 136
Complex Regional Pain Syndrome (CRPS, RSD) 91
Congenital Sucrase-Isomaltase Deficiency (CSID) 7
Craniosynostosis 15
Crohn’s Disease (CD) 809
Cushing’s Disease (CS) 118
Cyclic Vomiting Syndrome (CVS) 38
Cystic Fibrosis (CF) 1704
Dandy Walker Syndrome (DWS) 13
Deep Vein Thrombosis (DVT) 50
Degenerative Disc Disease (DDD) 323
Deletion Duplication Syndrome 177
Depression (MDD) 2074
Dercum’s Disease (adiposis dolorosa) 10
Dermatomyositis (DM) 28
Developmental Delay (DD) 98
Diabetes (DM) 3720
Diverticulitis 49
Doose Syndrome (MAE) 7
Down Syndrome (DS) 118
Dravet Syndrome (DS) 35
Dupuytren’s Contracture 6
Dwarfism 40
Dysautonomia 343
Dyslexia 16
Dystonia 39
Eating Disorder 42
Eczema 150
Ehlers-Danlos Syndrome (EDS) 636
Endometriosis 158
Eosinophilic Esophagitis (EOE) 229
Eosinophilic Gasteroenteritis (EG) 13
Epidermolysis Bullosa (EB) 11
Epilepsy 2027
Epstein Barr Syndrome (EBV) 24
Fabry disease 111
Familial Adenomatous Polyposis (FAP) 36
Fatty Liver Disease (NAFLD) 33
Fatty Oxidation Disorder (FAOD) 79
Fetal Alcohol Syndrome (FAS) 16
Fibrodysplasia Ossificans Progressiva (FOP) 11
Fibromyalgia (FM) 1190
Fragile X Syndrome (FXS) 101
Friedreich’s Ataxia (FA) 31
Gastritis 39
Gastroesophageal Reflux Disease (GERD) 434
Gastroparesis (GP) 215
Gaucher Disease (GD) 55
Gout 64
Grave’s Disease (GD) 85
Guillain-Barre Syndrome (GBS) 43
Hashimoto’s Disease (HT) 239
Hearing Loss 243
Heart Disease 1434
Hemochromatosis (Iron Overload) 18
Hemophilia 1519
Hemophilia A 930
Hemophilia B 439
Hepatitis 248
Hereditary Angioedema (HAE) 28
Hereditary Hemorrhagic Telangiectasia (HHT) 7
Hereditary Spastic Paraparesis (HSP) 9
Hernia 60
Herpes (HSV) 27
Hidradenitis Suppurativa (HS) 96
High Blood Pressure (Hypertension, HBP) 1482
High Cholesterol (Hyperlipidemia) 414
Hip Dysplasia 15
Hirschsprung’s Disease (HD, HSCR) 19
HIV 516
Human Growth Hormone Deficiency (GHD) 239
Huntington’s Disease (HD) 388
Hydrocephalus 217
Hyperhidrosis 11
Hyperkalemia 5
Hyperparathyroidism 9
Hypoglycemia (Low Blood Sugar) 35
Hypokalemia 4
Hypoparathyroidism 10
Hypothyroidism 716
Hypotonia 43
Hypoxic Ischemic Encephalopathy (HIE) 8
Immune Thrombocytopenic Purpura (ITP) 76
Inclusion Body Myositis (IBM) 7
Incontinence 49
Incontinentia Pigmenti (IP) 31
Infantile Spasms (IS) 42
Insomnia 139
Interstitial Cystitis (IC) 59
Interstitial Lung Disease (ILD) 45
Intracranial Hypertension (IH, Pseudotumor Cerebri) 84
Iritis 7
Irritable Bowel Syndrome (IBS) 297
Juvenile Arthritis (JA) 112
Kidney Disease 567
Klippel-Feil Syndrome (KFS) 12
Landau Kleffner Syndrome (LKS) 4
Langerhans Cell Histiocytosis (LCH) 6
Lennox Gastaut Syndrome (LGS) 358
LEOPARD Syndrome 4
Leukodsytrophy 16
Lichen Sclerosis (LS) 7
Lipedema 15
Lissencephaly 16
Liver Disease (not hepatitis) 227
Loin Pain Hematuria Syndrome (LPHS) 4
Lupus 871
Lyme Disease 85
Lymphedema 66
Macular Degeneration 46
Maple Syrup Urine Disease (MSUD) 21
Marfan Syndrome (MFS) 41
Mastocytosis (Mast Cell Activating Disease, MCAD) 126
McCune-Albright Syndrome (MAS) 7
Meniere’s Disease (MD) 44
Mental Retardation 26
Microcephaly 22
Migraine 749
Mitochondrial Disease 111
Mixed Connective Tissue Disease (MCTD) 81
Moebius Syndrome 7
Monoclonal gammopathy of undetermined significance (MGUS) 8
Mood Disorder 33
MTHFR 36
Mucopolysaccharidoses (MPS) 53
Multiple Sclerosis (MS) 4547
Multiple System Atrophy (MSA) 7
Muscular Dystrophy (MD) 340
Myasthenia Gravis (MG) 141
Myelodysplastic syndrome (MDS) 57
Myositis 27
Narcolepsy 164
NASH 24
Neuralgia 74
Neurofibromatosis (NF) 52
Neurogenic Bladder 40
Neuromyelitis optica (NMO) 21
Neuropathy 369
Neutropenia 46
Noonan Syndrome (NS) 9
Obesity 137
Obsessive Compulsive Disorder (OCD) 138
Oppositional Defiant Disorder (ODD) 66
Organ Transplant 176
Organic Acidemia (OA) 45
Osteoarthritis (OA) 979
Osteogenesis Imperfecta (OI) 111
Osteomyelitis (OM) 4
Osteopenia 35
Osteoporosis 145
Pancreatitis 39
Paralysis 135
Parkinson’s Disease (PD) 660
Paroxysmal Nocturnal Hemoglobinuria (PNH) 90
Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep.(PANDAS) 17
Pemphigus 107
Pervasive Development Disorder (PDD, PDD-NOS) 3
Phenylketonuria (PKU) 20
Pheochromocytoma (PCC) 13
Pierre Robin Sequence (PRS) 17
Pitt-Hopkins Syndrome (PTHS) 6
Plantar Fasciitis (PF) 24
Polychrondritis 15
Polycystic Ovarian Syndrome (PCOS) 257
Polycythemia Vera (PV) 53
Polymicrogyria (PMG) 13
Polymyositis (PM) 12
Pompe Disease 38
Posttraumatic Stress Disorder (PTSD) 557
Postural Orthostatic Tachycardia Syndrome (POTS) 4
Primary Biliary Cholangitis (PBC, Primary Biliary Cirrhosis) 24
Primary Ciliary Dyskinesia (PCD) 4
Primary Immunodeficiency (PID) 202
Primary Sclerosing Cholangitis (PSC) 12
Progressive Supranuclear Palsy (PSP) 4
Psoriasis Psoriatic Arthritis 332
Pulmonary Arterial Hypertension (PAH) 830
Pulmonary Fibrosis (PF) 116
Raynaud’s Syndrome 207
Restless Leg Syndrome (RLS) 105
Rett Syndrome (RTT) 78
Rheumatoid Arthritis (RA) 657
Rosacea 18
Sarcoidosis 108
Scheuermann’s Kyphosis 5
Schinzel-Giedion Syndrome (SGS) (SGS) 3
Schizencephaly 25
Schizophrenia 191
Sciatica 55
Scleroderma 225
Scoliosis 230
Sensory Processing Disorder (SPD) 108
Shaken Baby Syndrome (SBS) 7
Short Bowel Syndrome (SBS, Short Gut) 54
Sickle Cell Disease (SCD) 587
Sjogren’s Syndrome (SjS, SS) 346
Sleep Apnea (OSA) 473
Spina Bifida (SB) 144
Spinal Cord 407
Spinal Muscular Atrophy (SMA) 408
Stickler Syndrome 21
Stroke 310
Sturge Weber Syndrome (SWS) 14
Syncope 41
Syringomyelia 68
Tay Sachs (TSD) 22
Temporomandibular joint (TMJ) 33
Thoracic Outlet Syndrome (TOS) 19
Thrombocytopenia (TCP) 9
Thyroid Eye Disease (TED) 12
Tourette’s Syndrome (TS) 49
Traumatic Brain Injury (TBI) 150
Trisomy X (XXX) 9
Tuberous Sclerosis (TSC) 222
Ulcerative Colitis (UC) 294
Urea Cycle Disorder (UCD) 38
Uveitis 21
Vasculitis 23
Vertebral Artery Dissection (VAD) 6
Vertigo 55
Vision Impairment 479
Vitamin D Deficiency 24
Vitiligo 33
Von Willebrand Disease (VWD) 363
Waldenstrom’s Macroglobulinemia (WM) 124
Wegener’s Granulomatosis with Polyangiitis (GPA) 14
Williams Syndrome (WS) 41
Wilson’s Disease (hepatolenticular degeneration) 27
Wolff-Parkinson-White (WPW) syndrome 16
Wolf-Hirschhorn Syndrome (WHS) 2
X-Linked Hypophosphatemia (XLH) 7
Cancers Patients/Caregivers
Adrenal Cortical Cancer (Adrenal Cortex Carcinoma) 27
Anal Cancer 256
Bile Duct (Cholangiocarcinoma) Cancer 100
Bladder Cancer 284
Bone Cancer 218
Brain and Spinal Cord Tumors in Adults 591
Breast Cancer 8300
Breast Cancer in Men 48
Cancer of Unknown Primary 211
Cervical Cancer 554
Colorectal (Colon) Cancer 1643
Endometrial (Uterine) Cancer 893
Esophagus (Esophageal) Cancer 340
Eye Cancer 35
Gallbladder Cancer 53
Head & Neck/Throat Cancer 838
Hodgkin Disease 462
Kidney Cancer 378
Leukemia 879
Liver Cancer 232
Lung Cancer 1883
Lung Carcinoid Tumor 53
Lymphoma of the Skin 21
Malignant Mesothelioma 2
Multiple Myeloma 411
Non-Hodgkin Lymphoma (NHL) 1155
Ovarian and Fallopian Tube Cancer 1128
Pancreatic Cancer 564
Penile Cancer 5
Pituitary Tumors 16
Prostate Cancer 695
Rare Cancers 140
Sarcoma – Adult Soft Tissue Cancer 278
Skin Cancer – Melanoma 437
Skin Cancer – Non-Melanoma 145
Small Intestine Cancer 95
Stomach Cancer 200
Testicular Cancer 164
Thymus Cancer 40
Thyroid Cancer 433
Vaginal Cancer 54
Vulvar Cancer 75
Achalasia 17
Acromegaly 11
Addiction 96
Addison’s Disease (Adrenal insufficiency) 113
Albinism 29
Allergies 609
Alopecia 29
Alpha 1 Antitrypsin Deficiency (A1AD) 47
Alzheimer’s Disease (AD) 958
Amyloidosis 4
Amyotrophic Lateral Sclerosis (ALS) 104
Anemia 240
Angelman Syndrome (AS) 20
Ankylosing Spondylitis (AS) 261
Antiphospholipid Syndrome (APS) 30
Anxiety 1745
Aplastic Anemia (AA) 149
Arachnoiditis 13
Arthrogryposis Multiplex Congenita (AMC) 44
Asthma 1510
Ataxia 105
Atrial Fibrillation (AFIB) 130
Attention Deficit Hyperactivity Disorder (ADHD, ADD) 861
Atypical Hemolytic Uremic Syndrome (aHUS) 40
Autism 981
Avascular Necrosis (AVN, Osteonecrosis) 31
Barth Syndrome (BTHS) 10
Batten Disease 5
Behcet’s Disease (BD) 40
Biliary Atresia (BA) 14
Bipolar 842
Borderline Personality Disorder (BPD) 105
Brain Aneurysm 15
Bronchiectasis 18
Bronchitis 43
Caroli Disease 8
Carpal Tunnel Syndrome (CTS) 70
CDKL5 19
Celiac Disease (CCD) 300
Cerebral Palsy (CP) 406
Cervical Dystonia 9
Charge Syndrome 8
Chiari Malformation (CM) 235
Chronic Fatigue Syndrome (CFS, ME) 110
Chronic Inflammatory Demyelinating  Polyneuropathy (CIDP) 86
Chronic obstructive pulmonary disease (COPD) 632
Chronic Pain, Back Pain 569
Cirrhosis (LC) 45
Cleft 40
Cluster Headache 136
Complex Regional Pain Syndrome (CRPS, RSD) 91
Congenital Sucrase-Isomaltase Deficiency (CSID) 7
Craniosynostosis 15
Crohn’s Disease (CD) 809
Cushing’s Disease (CS) 118
Cyclic Vomiting Syndrome (CVS) 38
Cystic Fibrosis (CF) 1704
Dandy Walker Syndrome (DWS) 13
Deep Vein Thrombosis (DVT) 50
Degenerative Disc Disease (DDD) 323
Deletion Duplication Syndrome 177
Depression (MDD) 2074
Dercum’s Disease (adiposis dolorosa) 10
Dermatomyositis (DM) 28
Developmental Delay (DD) 98
Diabetes (DM) 3720
Diverticulitis 49
Doose Syndrome (MAE) 7
Down Syndrome (DS) 118
Dravet Syndrome (DS) 35
Dupuytren’s Contracture 6
Dwarfism 40
Dysautonomia 343
Dyslexia 16
Dystonia 39
Eating Disorder 42
Eczema 150
Ehlers-Danlos Syndrome (EDS) 636
Endometriosis 158
Eosinophilic Esophagitis (EOE) 229
Eosinophilic Gasteroenteritis (EG) 13
Epidermolysis Bullosa (EB) 11
Epilepsy 2027
Epstein Barr Syndrome (EBV) 24
Fabry disease 111
Familial Adenomatous Polyposis (FAP) 36
Fatty Liver Disease (NAFLD) 33
Fatty Oxidation Disorder (FAOD) 79
Fetal Alcohol Syndrome (FAS) 16
Fibrodysplasia Ossificans Progressiva (FOP) 11
Fibromyalgia (FM) 1190
Fragile X Syndrome (FXS) 101
Friedreich’s Ataxia (FA) 31
Gastritis 39
Gastroesophageal Reflux Disease (GERD) 434
Gastroparesis (GP) 215
Gaucher Disease (GD) 55
Gout 64
Grave’s Disease (GD) 85
Guillain-Barre Syndrome (GBS) 43
Hashimoto’s Disease (HT) 239
Hearing Loss 243
Heart Disease 1434
Hemochromatosis (Iron Overload) 18
Hemophilia 1519
Hemophilia A 930
Hemophilia B 439
Hepatitis 248
Hereditary Angioedema (HAE) 28
Hereditary Hemorrhagic Telangiectasia (HHT) 7
Hereditary Spastic Paraparesis (HSP) 9
Hernia 60
Herpes (HSV) 27
Hidradenitis Suppurativa (HS) 96
High Blood Pressure (Hypertension, HBP) 1482
High Cholesterol (Hyperlipidemia) 414
Hip Dysplasia 15
Hirschsprung’s Disease (HD, HSCR) 19
HIV 516
Human Growth Hormone Deficiency (GHD) 239
Huntington’s Disease (HD) 388
Hydrocephalus 217
Hyperhidrosis 11
Hyperkalemia 5
Hyperparathyroidism 9
Hypoglycemia (Low Blood Sugar) 35
Hypokalemia 4
Hypoparathyroidism 10
Hypothyroidism 716
Hypotonia 43
Hypoxic Ischemic Encephalopathy (HIE) 8
Immune Thrombocytopenic Purpura (ITP) 76
Inclusion Body Myositis (IBM) 7
Incontinence 49
Incontinentia Pigmenti (IP) 31
Infantile Spasms (IS) 42
Insomnia 139
Interstitial Cystitis (IC) 59
Interstitial Lung Disease (ILD) 45
Intracranial Hypertension (IH, Pseudotumor Cerebri) 84
Iritis 7
Irritable Bowel Syndrome (IBS) 297
Juvenile Arthritis (JA) 112
Kidney Disease 567
Klippel-Feil Syndrome (KFS) 12
Landau Kleffner Syndrome (LKS) 4
Langerhans Cell Histiocytosis (LCH) 6
Lennox Gastaut Syndrome (LGS) 358
LEOPARD Syndrome 4
Leukodsytrophy 16
Lichen Sclerosis (LS) 7
Lipedema 15
Lissencephaly 16
Liver Disease (not hepatitis) 227
Loin Pain Hematuria Syndrome (LPHS) 4
Lupus 871
Lyme Disease 85
Lymphedema 66
Macular Degeneration 46
Maple Syrup Urine Disease (MSUD) 21
Marfan Syndrome (MFS) 41
Mastocytosis (Mast Cell Activating Disease, MCAD) 126
McCune-Albright Syndrome (MAS) 7
Meniere’s Disease (MD) 44
Mental Retardation 26
Microcephaly 22
Migraine 749
Mitochondrial Disease 111
Mixed Connective Tissue Disease (MCTD) 81
Moebius Syndrome 7
Monoclonal gammopathy of undetermined significance (MGUS) 8
Mood Disorder 33
MTHFR 36
Mucopolysaccharidoses (MPS) 53
Multiple Sclerosis (MS) 4547
Multiple System Atrophy (MSA) 7
Muscular Dystrophy (MD) 340
Myasthenia Gravis (MG) 141
Myelodysplastic syndrome (MDS) 57
Myositis 27
Narcolepsy 164
NASH 24
Neuralgia 74
Neurofibromatosis (NF) 52
Neurogenic Bladder 40
Neuromyelitis optica (NMO) 21
Neuropathy 369
Neutropenia 46
Noonan Syndrome (NS) 9
Obesity 137
Obsessive Compulsive Disorder (OCD) 138
Oppositional Defiant Disorder (ODD) 66
Organ Transplant 176
Organic Acidemia (OA) 45
Osteoarthritis (OA) 979
Osteogenesis Imperfecta (OI) 111
Osteomyelitis (OM) 4
Osteopenia 35
Osteoporosis 145
Pancreatitis 39
Paralysis 135
Parkinson’s Disease (PD) 660
Paroxysmal Nocturnal Hemoglobinuria (PNH) 90
Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep.(PANDAS) 17
Pemphigus 107
Pervasive Development Disorder (PDD, PDD-NOS) 3
Phenylketonuria (PKU) 20
Pheochromocytoma (PCC) 13
Pierre Robin Sequence (PRS) 17
Pitt-Hopkins Syndrome (PTHS) 6
Plantar Fasciitis (PF) 24
Polychrondritis 15
Polycystic Ovarian Syndrome (PCOS) 257
Polycythemia Vera (PV) 53
Polymicrogyria (PMG) 13
Polymyositis (PM) 12
Pompe Disease 38
Posttraumatic Stress Disorder (PTSD) 557
Postural Orthostatic Tachycardia Syndrome (POTS) 4
Primary Biliary Cholangitis (PBC, Primary Biliary Cirrhosis) 24
Primary Ciliary Dyskinesia (PCD) 4
Primary Immunodeficiency (PID) 202
Primary Sclerosing Cholangitis (PSC) 12
Progressive Supranuclear Palsy (PSP) 4
Psoriasis Psoriatic Arthritis 332
Pulmonary Arterial Hypertension (PAH) 830
Pulmonary Fibrosis (PF) 116
Raynaud’s Syndrome 207
Restless Leg Syndrome (RLS) 105
Rett Syndrome (RTT) 78
Rheumatoid Arthritis (RA) 657
Rosacea 18
Sarcoidosis 108
Scheuermann’s Kyphosis 5
Schinzel-Giedion Syndrome (SGS) (SGS) 3
Schizencephaly 25
Schizophrenia 191
Sciatica 55
Scleroderma 225
Scoliosis 230
Sensory Processing Disorder (SPD) 108
Shaken Baby Syndrome (SBS) 7
Short Bowel Syndrome (SBS, Short Gut) 54
Sickle Cell Disease (SCD) 587
Sjogren’s Syndrome (SjS, SS) 346
Sleep Apnea (OSA) 473
Spina Bifida (SB) 144
Spinal Cord 407
Spinal Muscular Atrophy (SMA) 408
Stickler Syndrome 21
Stroke 310
Sturge Weber Syndrome (SWS) 14
Syncope 41
Syringomyelia 68
Tay Sachs (TSD) 22
Temporomandibular joint (TMJ) 33
Thoracic Outlet Syndrome (TOS) 19
Thrombocytopenia (TCP) 9
Thyroid Eye Disease (TED) 12
Tourette’s Syndrome (TS) 49
Traumatic Brain Injury (TBI) 150
Trisomy X (XXX) 9
Tuberous Sclerosis (TSC) 222
Ulcerative Colitis (UC) 294
Urea Cycle Disorder (UCD) 38
Uveitis 21
Vasculitis 23
Vertebral Artery Dissection (VAD) 6
Vertigo 55
Vision Impairment 479
Vitamin D Deficiency 24
Vitiligo 33
Von Willebrand Disease (VWD) 363
Waldenstrom’s Macroglobulinemia (WM) 124
Wegener’s Granulomatosis with Polyangiitis (GPA) 14
Williams Syndrome (WS) 41
Wilson’s Disease (hepatolenticular degeneration) 27
Wolff-Parkinson-White (WPW) syndrome 16
Wolf-Hirschhorn Syndrome (WHS) 2
X-Linked Hypophosphatemia (XLH) 7
Cancers Patients/Caregivers
Adrenal Cortical Cancer (Adrenal Cortex Carcinoma) 27
Anal Cancer 256
Bile Duct (Cholangiocarcinoma) Cancer 100
Bladder Cancer 284
Bone Cancer 218
Brain and Spinal Cord Tumors in Adults 591
Breast Cancer 8300
Breast Cancer in Men 48
Cancer of Unknown Primary 211
Cervical Cancer 554
Colorectal (Colon) Cancer 1643
Endometrial (Uterine) Cancer 893
Esophagus (Esophageal) Cancer 340
Eye Cancer 35
Gallbladder Cancer 53
Head & Neck/Throat Cancer 838
Hodgkin Disease 462
Kidney Cancer 378
Leukemia 879
Liver Cancer 232
Lung Cancer 1883
Lung Carcinoid Tumor 53
Lymphoma of the Skin 21
Malignant Mesothelioma 2
Multiple Myeloma 411
Non-Hodgkin Lymphoma (NHL) 1155
Ovarian and Fallopian Tube Cancer 1128
Pancreatic Cancer 564
Penile Cancer 5
Pituitary Tumors 16
Prostate Cancer 695
Rare Cancers 140
Sarcoma – Adult Soft Tissue Cancer 278
Skin Cancer – Melanoma 437
Skin Cancer – Non-Melanoma 145
Small Intestine Cancer 95
Stomach Cancer 200
Testicular Cancer 164
Thymus Cancer 40
Thyroid Cancer 433
Vaginal Cancer 54
Vulvar Cancer 75

 

For each type of cancer, patients are identified by stage of cancer, stage of treatment, age, and geographical location.

Clients continue to tell us how impressed they are with the high quality of our respondents. This is a result of:

  • Source – we recruit patients personally at advocacy events and other patient events; cancer patients come in through the American Cancer Society website; we ask physicians and pharmacists to refer patients with the desired specs to us; and our reliable panelists refer others they know with like conditions
  • Vetting – We vet each patient and caregiver who signs up both manually (looking at the answers to questions about the condition and treatment) and technologically (does their contact information match independent sources? are IP addresses unique?). If unsure, we contact the patient directly and discuss. Amazing how fraudulent entries will simply go away.
  • Review of data – We gain agreements from our clients to review survey data to make sure it aligns with other information about the respondents; and we apply our knowledge of the condition and its treatments to flag possible fraudulent respondents.

These practices set our respondents apart from those screened across the general population (“please check all the conditions you have”). It takes more time and attention, but we feel the highest quality data is certainly worth it.

With more than 30 years in market research experience on both the client and supplier side, we are happy to give you advice on the design of your research. And since we know our panelist very well, we can advise you on the best way to work with them to get the insights you and your clients require.