I Have a Voice that Deserves to be Heard.

Are you a patient or caregiver with something to say?
Make your voice heard, too, by participating in paid surveys, interviews and online communities! Sign up and start talking to the right people. It’s free, and we accept rare and non-rare diagnoses!

Learn more about Rare Patient Voice

Already a member? Update your profile here!
Learn about our Referral Program for individuals and advocacy groups.

I Have a Voice that Deserves to be Heard.

Are you a patient or caregiver with something to say?
Make your voice heard, too, by participating in paid surveys, interviews and online communities!

Learn more about Rare Patient Voice

Already a member?
Update your profile here!

Learn about our Referral Program for individuals and advocacy groups.

I am a

Patient or Caregiver

I am an

Advocacy Group

I am a

Researcher

We provide patients and caregivers the chance to voice their opinions

Rare Patient Voice connects patients and caregivers with the opportunity to voice their opinions through surveys and interviews to improve medical products and services.

Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 35 years experience in marketing research, and more than 20 years in healthcare marketing research.

For Patients and Caregivers —We provide patients and caregivers the opportunity to voice their opinions to improve medical products and services while earning cash rewards. Sign up here.
For Advocacy Groups —We partner with patient advocacy groups to increase donations.
For Market Research Firms —We partner with market research firms to find the respondents and patient panels they need.
For Pharmaceutical and Biotech Companies —We provide the respondents and patient communities pharma companies require to support your market research and business insights needs.

Sharing My Voice

Hear patients and caregivers relate why sharing their voice is important to them, and what their experience with Rare Patient Voice has been.

Interested in sharing your story through a video recording? Sign up here.

Click the arrow to advance to more videos!

Why Sign Up with RPV?

Provide your input to improve products and services.

Help biopharma companies focus more on your rare disease.

Earn rewards for participating in interviews and surveys.

What are you waiting for? SIGN UP NOW!

Already a Member? UPDATE YOUR PROFILE!

Patient Blog Posts

Client Blog Posts

Second Round of January 2022 Staff Changes at RPV

January 19, 2022

TOWSON, MD, January 19, 2022 – Rare Patient Voice LLC, a leading market research patient recruitment firm, has announced another first quarter round of promotions and changes to staff, following … READ MORE

Weekly Warrior: Meet Jamie

January 10, 2022

“I am married and have two kids, a daughter that is nine and a son that is six. In January of 2018 I was diagnosed with Neuromylitis Optica. At the … READ MORE

Second Round of January 2022 Staff Changes at RPV

January 19, 2022

Rare Patient Voice Kicks off 2022 with Major Milestones and Staff Announcements

January 3, 2022

TOWSON, MD, January 3, 2022 – Rare Patient Voice LLC, a leading market research patient recruitment firm, has started the new year off by reaching a milestone and announcing several … READ MORE

RECENT FEEDBACK FROM PATIENTS, CAREGIVERS, AND CLIENTS

"I enjoyed being the "expert" and being able to share some of my son's story and our experience."

-- Abbie, patient

"I love the way this organization treats me."

-- Marian, patient

"I appreciate that you allow us to participate in these studies. The money helps to pay my co-pays and I am grateful."

-- Jane, patient

"It is satisfying to know I can do my part to help get feedback to companies about our rare disease."

-- Angela, patient

"I loved doing the survey - it was interesting and informative."

-- Karen, patient

"It was empowering to help inform people so that my learnings from this dreaded disease could help contribute to a greater good."

-- Nancy, patient

"I like voicing my opinion and getting paid for it is a needed bonus."

-- Michelle, patient

"There isn’t a more gratifying experience that I can think of that helps my own health and the health of others."

-- Indira, patient

"It was the first time for me working with Rare Patient Voice and even though it was a small study, you were super responsive! I really appreciate this and will for sure get back to you in the future."

-- Marta, Global Perspectives

"You guys really exceeded our expectations. We were thrilled with how this recruit went and will definitely continue to use your team for patient studies."

-- Courtney, InVibe Labs

"Thanks for all your help and I look forward to working with you again in the future!"

-- Catherine, Clarivate

"Thank you for the amazing work on this project that we had recruitment difficulties with another avenue. We'll definitely be back for any studies like this in the future!"

-- Mike, Charter Oak Field Services

"You knocked it out of the park with regard to my participants and I cannot wait for the opportunity to work with y’all again!"

-- Kate, KCW Global Research

“I have used RPV twice in recent years and both experiences were excellent. RPV makes the process straightforward and easy, their staff are helpful with any questions, and recruiting is very quick and efficient.”

-- Jacqueline, BioMedical Insights, Inc.

"All the respondents were fabulous, and the interviews were highly productive. I couldn’t be more pleased with the recruit."

I Have a Voice that Deserves to be Heard.

I Have a Voice that Deserves to be Heard.

I am a

Patient or Caregiver

I am an

Advocacy Group

I am a

Researcher

We provide patients and caregivers the chance to voice their opinions

Sharing My Voice

Why Sign Up with RPV?

Patient Blog Posts

Client Blog Posts

Second Round of January 2022 Staff Changes at RPV

Weekly Warrior: Meet Jamie

Second Round of January 2022 Staff Changes at RPV

Rare Patient Voice Kicks off 2022 with Major Milestones and Staff Announcements

RECENT FEEDBACK FROM PATIENTS, CAREGIVERS, AND CLIENTS

-- Abbie, patient

-- Marian, patient

-- Jane, patient

-- Angela, patient

-- Karen, patient

-- Nancy, patient

-- Michelle, patient

-- Indira, patient

-- Marta, Global Perspectives

-- Courtney, InVibe Labs

-- Catherine, Clarivate

-- Mike, Charter Oak Field Services

-- Kate, KCW Global Research

-- Jacqueline, BioMedical Insights, Inc.

-- Jeff, FCBHealth

Rare Patient Voice

For Patients

For Related Groups

I Have a Voice that Deserves to be Heard.

I Have a Voice that Deserves to be Heard.

We provide patients and caregivers the chance to voice their opinions

Sharing My Voice

Why Sign Up with RPV?

Patient Blog Posts

Client Blog Posts

RECENT FEEDBACK FROM PATIENTS, CAREGIVERS, AND CLIENTS

-- Abbie, patient

-- Marian, patient

-- Jane, patient

-- Angela, patient

-- Karen, patient

-- Nancy, patient

-- Michelle, patient

-- Indira, patient

-- Marta, Global Perspectives

-- Courtney, InVibe Labs

-- Catherine, Clarivate

-- Mike, Charter Oak Field Services

-- Kate, KCW Global Research

-- Jacqueline, BioMedical Insights, Inc.

-- Jeff, FCBHealth

Rare Patient Voice

For Patients

For Related Groups

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