I Have a Voice that Deserves to be Heard.
Are you a patient or caregiver with something to say? Make your voice heard too! Sign up and start talking to the right people. It’s free!
We provide patients and caregivers the chance to voice their opinions
Rare Patient Voice, LLC was formed to provide patients and caregivers an opportunity to voice their opinions through surveys and interviews to improve medical products and services.
Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 35 years experience in marketing research, and more than 20 years in healthcare marketing research.
- For Patients and Caregivers —We provide patients and caregivers the opportunity to voice their opinions to improve medical products and services while earning cash rewards. Sign up here.
- For Advocacy Groups —We partner with patient advocacy groups to increase donations.
- For Market Research Firms —We partner with market research firms to find the respondents and patient panels they need.
- For Pharmaceutical and Biotech Companies —We provide the respondents and patient communities pharma companies require to support your market research and business insights needs.
Why Sign Up with RPV?
Provide your input to improve products and services.
Help biopharma companies focus more on your rare disease.
Earn rewards for participating in interviews and surveys.
Already a Member? CLICK HERE TO UPDATE YOUR PROFILE!
What are you waiting for? SIGN UP NOW!
Patient Blog Posts
Client Blog Posts
We love referrals. But read the invite carefully!
We found a long time ago, patients (and caregivers) know other patients and caregivers. Many of our Rare Patient Voice members came from referrals from others. So, we love referrals! … READ MORE
Not all surveys can be done on mobile devices. Please read the invites carefully!
It is 2020. Everyone uses smart phones, tablets and who knows what other mobile devices. Which is great, as when we send an invite via email, many people can see … READ MORE
Not Just Rare Patients
With a name like Rare Patient Voice, it is pretty obvious we recruit rare patients, right? Well, yes, but we also recruit non-rare. Reminds me of a story. When I … READ MORE
Surveys need to be mobile-friendly!
Have you heard the expression, if the mountain won’t come to Muhammed, then Muhammed must go to the mountain? It isn’t a commentary on comparative religion. It means, you can’t … READ MORE
