I Have a Voice that Deserves to be Heard.
Are you a patient or caregiver with something to say?
Make your voice heard, too, by participating in paid surveys, interviews and online communities!
Sign up and start talking to the right people. It’s free, and we accept rare and non-rare diagnoses!
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Learn about our Referral Program for individuals and advocacy groups.
We provide patients and caregivers the chance to voice their opinions
Rare Patient Voice connects patients and caregivers with the opportunity to voice their opinions through surveys and interviews to improve medical products and services.
Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 35 years experience in marketing research, and more than 20 years in healthcare marketing research.
- For Patients and Caregivers —We provide patients and caregivers the opportunity to voice their opinions to improve medical products and services while earning cash rewards. Sign up here.
- For Advocacy Groups —We partner with patient advocacy groups to increase donations.
- For Market Research Firms —We partner with market research firms to find the respondents and patient panels they need.
- For Pharmaceutical and Biotech Companies —We provide the respondents and patient communities pharma companies require to support your market research and business insights needs.
Why Sign Up with RPV?
Provide your input to improve products and services.
Help biopharma companies focus more on your rare disease.
Earn rewards for participating in interviews and surveys.
What are you waiting for? SIGN UP NOW!
Already a Member? UPDATE YOUR PROFILE!
Patient Blog Posts
Client Blog Posts
Germany’s +3 Magazine Interviews Pam Cusick on the Patient Voice
Rare disease affects over 300 million people around the world, making it a truly global health priority. Rare Patient Voice connects patients and caregivers in Germany, Spain, Italy, France, and … READ MORE
CheckRare Interviews Wes Michael on RPV’s Recent Milestone
The input of patients and caregivers is essential to the development of new treatments, services, and products that can improve their lives. At RPV, we are proud to help make … READ MORE
PharmaVOICE Hosts Webinar with RPV and Clinakos: Combining Patient Data with the Patient Voice
Recent technological and regulatory changes have enabled an innovative approach to real world data and market research. Combining the patient’s actual medical data with their experience and opinions provides unique … READ MORE
Rare Patient Voice Finalist for 2021 Panel Company of the Year Award from Quirk’s
Rare Patient Voice Named Panel Company of the Year Award Finalist by Quirk’s Winner to Be Announced During Marketing Research and Insight Excellence Awards Virtual Ceremony on November 9 TOWSON, … READ MORE
