I Have a Voice That Deserves to Be Heard!
Why Sign Up with Rare Patient Voice?
- Provide your input as a patient or family caregiver to improve products and services.
- Help companies and researchers focus more on your disease.
- Earn rewards for participating in interviews and surveys.
We provide patients and caregivers the chance to voice their opinions
Rare Patient Voice connects patients and caregivers with the opportunity to voice their opinions through surveys and interviews to improve medical products and services.
Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 40 years experience in marketing research, and more than 20 years in healthcare marketing research.
- For patients and family caregivers —we provide study opportunities to voice their opinions on medical products and services while getting paid for their time. Sign up here.
- For patient advocacy groups —we partner with advocacy and support groups to increase donations.
- For market research firms —we handle patient recruitment and help find the respondents and patient panels needed for marketing research.
- For pharmaceutical and biotech companies —we provide the respondents and patient communities required to support business insight needs and all types of research studies.
Sharing My Voice
Hear patients and caregivers relate why sharing their voice is important to them, and what their experience with Rare Patient Voice has been.
Interested in sharing your story through a video recording? Sign up here.
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Patient Blog Posts
New Report Shows Rare Disease Is a Mental Health Burden on Patients & Caregivers that Healthcare Professionals May Not be Meeting
Rare Disease Is a Mental Health Burden on Patients and Caregivers that Healthcare Professionals May Not be Meeting, Reveals Latest Global Data from Konovo While 82% of rare disease patients … READ MORE
Wes Michael Visits Skot Woldron’s Unlocked for Rare Disease Day 2026
With Rare Disease Day 2026 coming up later this week, Wes Michael recently discussed the power of the rare disease patient voice, the importance of trust, and RPV’s joining with … READ MORE
Client Blog Posts
New Report Shows Rare Disease Is a Mental Health Burden on Patients & Caregivers that Healthcare Professionals May Not be Meeting
Rare Disease Is a Mental Health Burden on Patients and Caregivers that Healthcare Professionals May Not be Meeting, Reveals Latest Global Data from Konovo While 82% of rare disease patients … READ MORE
Wes Michael Visits Skot Woldron’s Unlocked for Rare Disease Day 2026
With Rare Disease Day 2026 coming up later this week, Wes Michael recently discussed the power of the rare disease patient voice, the importance of trust, and RPV’s joining with … READ MORE
