I Have a Voice that Deserves to be Heard.
Are you a patient or caregiver with something to say? Make your voice heard too! Sign up and start talking to the right people. It’s free!
We provide patients and caregivers the chance to voice their opinions
Rare Patient Voice, LLC was formed to provide patients and caregivers an opportunity to voice their opinions through surveys and interviews to improve medical products and services.
Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 35 years experience in marketing research, and more than 20 years in healthcare marketing research.
- For Patients and Caregivers —We provide patients and caregivers the opportunity to voice their opinions to improve medical products and services while earning cash rewards. Sign up here.
- For Advocacy Groups —We partner with patient advocacy groups to increase donations.
- For Market Research Firms —We partner with market research firms to find the respondents and patient panels they need.
- For Pharmaceutical and Biotech Companies —We provide the respondents and patient communities pharma companies require to support your market research and business insights needs.
Why Sign Up with RPV?
Provide your input to improve products and services.
Help biopharma companies focus more on your rare disease.
Earn rewards for participating in interviews and surveys.
What are you waiting for? SIGN UP NOW!
Patient Blog Posts
Client Blog Posts
What if a patient doesn’t have a checking account?
Rare Patient Voice pays patients and caregivers by check when they complete a study. We’ve asked our panelists, and they prefer checks. You can’t pay rent or co-pays with a … READ MORE
Who Are Rare Patient Voice’s Clients?
We have worked with over 350 client firms. Many people assume our clients are the pharmaceutical, biotech or device manufacturers, but that’s not correct! Those organizations are often the end … READ MORE
My Least Favorite Topic – No-Shows
What do I least like to hear about – No-shows! When scheduled respondents don’t show up or call in or answer the phone at their appointed time. I know what … READ MORE
Does Rare Patient Voice have patients with other diseases or conditions?
Many of you probably know that we list the panels and counts on the website. You can go to https://rarepatientvoice.com/for-researchers/patient-panels. We list the counts for over 300 conditions there. But … READ MORE
