I Have a Voice that Deserves to be Heard.
Are you a patient or caregiver with something to say? Make your voice heard too! Sign up and start talking to the right people. It’s free!
We provide patients and caregivers the chance to voice their opinions
Rare Patient Voice, LLC was formed to provide patients and caregivers an opportunity to voice their opinions through surveys and interviews to improve medical products and services.
Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 35 years experience in marketing research, and more than 20 years in healthcare marketing research.
- For Patients and Caregivers —We provide patients and caregivers the opportunity to voice their opinions to improve medical products and services while earning cash rewards. Sign up here.
- For Advocacy Groups —We partner with patient advocacy groups to increase donations.
- For Market Research Firms —We partner with market research firms to find the respondents and patient panels they need.
- For Pharmaceutical and Biotech Companies —We provide the respondents and patient communities pharma companies require to support your market research and business insights needs.
Why Sign Up with RPV?
Provide your input to improve products and services.
Help biopharma companies focus more on your rare disease.
Earn rewards for participating in interviews and surveys.
What are you waiting for? SIGN UP NOW!
Patient Blog Posts
Client Blog Posts
We Support Patient Registries
We work with many patient advocacy groups and attend many of their conferences. More and more of them are creating and growing patient registries. A registry collects key information about … READ MORE
Winston Churchill and Rare Diseases
You may be aware that we recruit many of the patients and caregivers in our panel by attending patient events in person. Conferences, educational symposia, walks, events like that. It … READ MORE
RPV – Really Positive Value
We were talking with a client this week, and she made a good point. Our client mentioned that when they plan on using Rare Patient Voice patients in a project … READ MORE
Get to know Intellus Worldwide
Hi, you might know me as Wes Michael of Rare Patient Voice. But today I wanted to talk about an organization that I am passionate about, Intellus Worldwide. Intellus is … READ MORE
