I Have a Voice that Deserves to be Heard.
Are you a patient or caregiver with something to say?
Make your voice heard, too, by participating in paid surveys, interviews and online communities!
Sign up and start talking to the right people. It’s free, and we accept rare and non-rare diagnoses!
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Learn about our Referral Program for individuals and advocacy groups.
We provide patients and caregivers the chance to voice their opinions
Rare Patient Voice connects patients and caregivers with the opportunity to voice their opinions through surveys and interviews to improve medical products and services.
Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 35 years experience in marketing research, and more than 20 years in healthcare marketing research.
- For Patients and Caregivers —We provide patients and caregivers the opportunity to voice their opinions to improve medical products and services while earning cash rewards. Sign up here.
- For Advocacy Groups —We partner with patient advocacy groups to increase donations.
- For Market Research Firms —We partner with market research firms to find the respondents and patient panels they need.
- For Pharmaceutical and Biotech Companies —We provide the respondents and patient communities pharma companies require to support your market research and business insights needs.
Why Sign Up with RPV?
Provide your input to improve products and services.
Help biopharma companies focus more on your rare disease.
Earn rewards for participating in interviews and surveys.
What are you waiting for? SIGN UP NOW!
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Patient Blog Posts
Client Blog Posts
Lessons from the Tortoise and the Hare
I’m sure you all remember the story of the tortoise and the hare. The hare is much faster than the tortoise and he gets off to a much faster start … READ MORE
Don’t be surprised to get a text from Rare Patient Voice
For years now, we’ve sent invites to our Rare Patient Voice studies out to you by email. Recently, we ran in to a temporary email issue and in a pinch … READ MORE
Should companies do marketing to their market research panels?
I’ve been noticing lately that many companies with patient panels or communities that conduct market research also engage in direct marketing or advertising with their patients. They’ll send out a … READ MORE
Some companies have customer service backwards
I have a story about customer service that happened this week. I’m reading Edmund Morris’s book about Thomas Edison, which he tells from the end and works back to the … READ MORE
