I Have a Voice that Deserves to be Heard.
Are you a patient or caregiver with something to say? Make your voice heard too! Sign up and start talking to the right people. It’s free!
We provide patients and caregivers the chance to voice their opinions
Rare Patient Voice, LLC was formed to provide patients and caregivers an opportunity to voice their opinions through surveys and interviews to improve medical products and services.
Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 35 years experience in marketing research, and more than 20 years in healthcare marketing research.
- For Patients and Caregivers —We provide patients and caregivers the opportunity to voice their opinions to improve medical products and services while earning cash rewards. Sign up here.
- For Advocacy Groups —We partner with patient advocacy groups to increase donations.
- For Market Research Firms —We partner with market research firms to find the respondents and patient panels they need.
- For Pharmaceutical and Biotech Companies —We provide the respondents and patient communities pharma companies require to support your market research and business insights needs.
Why Sign Up with RPV?
Provide your input to improve products and services.
Help biopharma companies focus more on your rare disease.
Earn rewards for participating in interviews and surveys.
What are you waiting for? SIGN UP NOW!
Patient Blog Posts
Client Blog Posts
Get to Know: Sickle Cell Disease (SCD)
This is the first of our series about various diseases and health conditions that we are calling, “Get to Know.” We’ll provide some facts you may not have known about … READ MORE
Why didn’t I qualify for a survey? And will my data be used even if I didn’t?
One of the most frustrating things we hear from our patients is when they don’t qualify for a study. They are interested, they have great opinions to offer, and they’ve … READ MORE
Get to Know: Sickle Cell Disease (SCD)
This is the first of our series about various diseases and health conditions that we are calling, “Get to Know.” We’ll provide some facts you may not have known about … READ MORE
Why do companies take so long to pay?
Remember Joan Rivers? She used to ask, “Can we talk?” Now I’m asking – can we talk? This might be sensitive to many of our clients. But I bet many … READ MORE
