I Have a Voice that Deserves to be Heard.
Are you a patient or caregiver with something to say?
Make your voice heard by participating in paid surveys, interviews, and online communities!
Sign up and start talking to the right people. It’s free, and we accept rare and non-rare diagnoses!
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Already a member?
Update your profile here!
Learn about our Referral Program for individuals and advocacy groups.
In addition to the US, we also recruit patients and caregivers for studies in Canada, the UK, Germany, France, Italy, Spain, Australia,
and New Zealand! Click here to visit the RPV global site.
We provide patients and caregivers the chance to voice their opinions
Rare Patient Voice connects patients and caregivers with the opportunity to voice their opinions through surveys and interviews to improve medical products and services.
Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 40 years experience in marketing research, and more than 20 years in healthcare marketing research.
- For patients and family caregivers —we provide study opportunities to voice their opinions on medical products and services while getting paid for their time. Sign up here.
- For patient advocacy groups —we partner with advocacy and support groups to increase donations.
- For market research firms —we handle patient recruitment and help find the respondents and patient panels needed for marketing research.
- For pharmaceutical and biotech companies —we provide the respondents and patient communities required to support business insight needs and all types of research studies.
Sharing My Voice
Interested in sharing your story through a video recording? Sign up here.
Click the arrow to advance to more videos!
Why Sign Up with RPV?
Provide your input to improve products and services.
Help companies and researchers focus more on your disease.
Earn rewards for participating in interviews and surveys.
What are you waiting for? SIGN UP NOW!
Already a member? UPDATE YOUR PROFILE!
Patient Blog Posts
Client Blog Posts
Happy Thanksgiving from Rare Patient Voice!
Rarity and all of us here at Rare Patient Voice would like to wish our patients, family caregivers, clients, colleagues, families, and friends a safe and joyous Thanksgiving! Now pass … READ MORE
The Voices of Family Caregivers Need to Be Heard
Helping to care for a loved one living with a rare disease or chronic illness can be a life-changing experience for both patient and caregiver. It can be very difficult … READ MORE
Planning for Ongoing Excellence and Gold Standard Service at RPV
Whether we are connecting clients with patients and family caregivers for participation in patient journey market research, medical market research, Medical Affairs projects, or clinical trials, the goal at … READ MORE
Happy Thanksgiving from Rare Patient Voice!
Rarity and all of us here at Rare Patient Voice would like to wish our patients, family caregivers, clients, colleagues, families, and friends a safe and joyous Thanksgiving! Now pass … READ MORE