I Have a Voice That Deserves to Be Heard!
Why Sign Up with Rare Patient Voice?
- Provide your input as a patient or family caregiver to improve products and services.
- Help companies and researchers focus more on your disease.
- Earn rewards for participating in interviews and surveys.
We provide patients and caregivers the chance to voice their opinions
Rare Patient Voice connects patients and caregivers with the opportunity to voice their opinions through surveys and interviews to improve medical products and services.
Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 40 years experience in marketing research, and more than 20 years in healthcare marketing research.
- For patients and family caregivers —we provide study opportunities to voice their opinions on medical products and services while getting paid for their time. Sign up here.
- For patient advocacy groups —we partner with advocacy and support groups to increase donations.
- For market research firms —we handle patient recruitment and help find the respondents and patient panels needed for marketing research.
- For pharmaceutical and biotech companies —we provide the respondents and patient communities required to support business insight needs and all types of research studies.
Sharing My Voice
Interested in sharing your story through a video recording? Sign up here.
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Patient Blog Posts
Client Blog Posts
Weekly Warrior: Meet Lisa
Weekly Warrior Lisa lives with multiple chronic conditions and posts on Instagram about her journey, using the handle @autoimmunewarriorinfo. “In July 2004 I woke up in severe body pain. It seemed … READ MORE
Weekly Warrior
Our latest Weekly Warrior lives with Fabry disease and posts on Instagram as @we.are.rare.2023. “I struggled with burning skin, nerve pain, headaches, and hearing loss since childhood. Misdiagnosed for years, I … READ MORE
Learn More About the RPV Premium Outreach Package
The Rare Patient Voice Golden Rule means recruiting the right patients, at the right time, for the right studies. How do we do that? Our Patient Advocacy Team is always … READ MORE
The RPV Golden Rule: Precision in Patient Recruitment
The RPV Golden Rule is simple yet powerful: Recruit the right patients, at the right time, for the right study. With a community of 180,000+ patients and family caregivers spanning 1,500+ … READ MORE