I Have a Voice that Deserves to be Heard.
Are you a patient or caregiver with something to say?
Make your voice heard, too, by participating in paid surveys, interviews and online communities!
Sign up and start talking to the right people. It’s free, and we accept rare and non-rare diagnoses!
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Learn about our Referral Program for individuals and advocacy groups.
We provide patients and caregivers the chance to voice their opinions
Rare Patient Voice connects patients and caregivers with the opportunity to voice their opinions through surveys and interviews to improve medical products and services.
Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 35 years experience in marketing research, and more than 20 years in healthcare marketing research.
- For Patients and Caregivers —We provide patients and caregivers the opportunity to voice their opinions to improve medical products and services while earning cash rewards. Sign up here.
- For Advocacy Groups —We partner with patient advocacy groups to increase donations.
- For Market Research Firms —We partner with market research firms to find the respondents and patient panels they need.
- For Pharmaceutical and Biotech Companies —We provide the respondents and patient communities pharma companies require to support your market research and business insights needs.
Why Sign Up with RPV?
Provide your input to improve products and services.
Help biopharma companies focus more on your rare disease.
Earn rewards for participating in interviews and surveys.
What are you waiting for? SIGN UP NOW!
Already a Member? UPDATE YOUR PROFILE!
Patient Blog Posts
Client Blog Posts
Join Rare Disease Day 2021
On February 28, 2021, countries around the world will celebrate Rare Disease Day. What is it and why is it important? This article sheds some light on this special day … READ MORE
Is Telehealth Here to Stay?
Image credit: Unsplash We’re excited to share this post written by Ruth Claire James! The pandemic has been disruptive, but a silver lining that came out of it is how … READ MORE
Is Telehealth Here to Stay?
Image credit: Unsplash We’re excited to share this post written by Ruth Claire James! The pandemic has been disruptive, but a silver lining that came out of it is how … READ MORE
2020 Year in Review
2020 was a very difficult year for everyone. It affected us all personally. Some businesses were hit harder than others. How did your business do? I have a friend in … READ MORE