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Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

  • Home
  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • Press Releases
  • For Patients
    • Study Opportunities for Patients and Caregivers
    • Sign Up to Participate
    • Find Us in the Community
    • Frequently Asked Questions
    • How We Use Your Information
    • Newsletters
  • For Advocacy Groups
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Diseases
      • Hemophilia
      • Multiple Sclerosis
      • Breast Cancer
      • Diabetes
  • Videos
    • Meet The Patients
    • You Ask, We Answer
    • Get To Know
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies
    • Market Access: A Patient Perspective
    • The Impact of Rare Diseases on Patients and Caregivers
    • The Role of Patient Advocacy Groups
    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
    • Patient Insights on Telehealth: A Case Study
    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice

Helping Patients and Caregivers Voice Their Opinions

I Have a Voice that Deserves to be Heard.

Are you a patient or caregiver with something to say?
Make your voice heard, too, by participating in paid surveys, interviews and online communities! Sign up and start talking to the right people. It’s free, and we accept rare and non-rare diagnoses!

Learn more about Rare Patient Voice

or

Sign Up Now!

Already a member? Update your profile here!
Learn about our Referral Program for individuals and advocacy groups.

I Have a Voice that Deserves to be Heard.

Are you a patient or caregiver with something  to say?
Make your voice heard, too, by participating in paid surveys, interviews and online communities!

Sign up and start talking to the right people. It’s free, and we accept rare and non-rare diagnoses!

SIgn Up Now!

or

Learn more about Rare Patient Voice

Already a member?
Update your profile here!


Learn about our Referral Program for individuals and advocacy groups.

I am a

Patient or Caregiver

I am an

Advocacy Group

I am a

Researcher

We provide patients and caregivers the chance to voice their opinions

Rare Patient Voice connects patients and caregivers with the opportunity to voice their opinions through surveys and interviews to improve medical products and services.

Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 35 years experience in marketing research, and more than 20 years in healthcare marketing research.

  • For Patients and Caregivers —We provide patients and caregivers the opportunity to voice their opinions to improve medical products and services while earning cash rewards.  Sign up here.
  • For Advocacy Groups —We partner with patient advocacy groups to increase donations.
  • For Market Research Firms —We partner with market research firms to find the respondents and patient panels they need.
  • For Pharmaceutical and Biotech Companies —We provide the respondents and patient communities pharma companies require to support your market research and business insights needs.

Why Sign Up with RPV?

Provide your input to improve products and services.

Help biopharma companies focus more on your rare disease.

Earn rewards for participating in interviews and surveys.

What are you waiting for? SIGN UP NOW!

Already a Member? UPDATE YOUR PROFILE!

Patient Blog Posts

Client Blog Posts

Rare Patient Voice Expands to Europe

October 4, 2020

I have important news for patients and clients! After 7 years of inviting patients to studies in the US and Canada, we are now expanding to Europe. We’ve begun recruiting … READ MORE

Thanks to We’re Not Drunk, We Have MS, our Terrific MS Partner

October 4, 2020

If you have MS, you need to check out the Facebook page of a group called We’re Not Drunk, We Have MS. They share important information for MS patients and … READ MORE

Rare Patient Voice Expands to Europe

October 4, 2020

I have important news for patients and clients! After 7 years of inviting patients to studies in the US and Canada, we are now expanding to Europe. We’ve begun recruiting … READ MORE

The North Wind and the Sun

September 27, 2020

In first grade, our teacher, Mrs. Culver would gather us on the floor in the front of the classroom at Sandy Bank school and read stories to us. There’s one … READ MORE

Read More Blog Posts
Read More Blog Posts

Recent Patient

“I’ve had excellent interactions with the staff. The surveys are usually somewhat fun and feel like you’re actually helping someone or developing something new. They’ve always followed through on payment and I appreciate all the opportunities.”

Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(410) 218-0527

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