I Have a Voice that Deserves to be Heard.
Are you a patient or caregiver with something to say?
Make your voice heard, too, by participating in paid surveys, interviews and online communities!
Sign up and start talking to the right people. It’s free, and we accept rare and non-rare diagnoses!
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Learn about our Referral Program for individuals and advocacy groups.
We provide patients and caregivers the chance to voice their opinions
Rare Patient Voice connects patients and caregivers with the opportunity to voice their opinions through surveys and interviews to improve medical products and services.
Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 35 years experience in marketing research, and more than 20 years in healthcare marketing research.
- For Patients and Caregivers —We provide patients and caregivers the opportunity to voice their opinions to improve medical products and services while earning cash rewards. Sign up here.
- For Advocacy Groups —We partner with patient advocacy groups to increase donations.
- For Market Research Firms —We partner with market research firms to find the respondents and patient panels they need.
- For Pharmaceutical and Biotech Companies —We provide the respondents and patient communities pharma companies require to support your market research and business insights needs.
Why Sign Up with RPV?
Provide your input to improve products and services.
Help biopharma companies focus more on your rare disease.
Earn rewards for participating in interviews and surveys.
What are you waiting for? SIGN UP NOW!
Already a Member? UPDATE YOUR PROFILE!
Patient Blog Posts
Client Blog Posts
How does Rare Patient Voice Work? Can I get paid for doing surveys?
Hi, I’m Wes Michael, President of Rare Patient Voice. I founded Rare Patient Voice in 2013 to give patients and caregivers (generally family members) a chance to voice their opinions … READ MORE
Let’s Name our Zebra Mascot – but not Zebra McZebface!
Thanks for the tremendous response we’ve received to help us name our Zebra mascot! We’ve received hundreds of names. And not just the names, but great thinking behind the names. … READ MORE
Let’s Name our Zebra Mascot – but not Zebra McZebface!
Thanks for the tremendous response we’ve received to help us name our Zebra mascot! We’ve received hundreds of names. And not just the names, but great thinking behind the names. … READ MORE
Eventually . . . Why Not Now?
I joined General Mills in Minneapolis fresh out of graduate school in 1983. As a history buff, I was interested in the company history. You may know it for Cheerios, … READ MORE
