I Have a Voice that Deserves to be Heard.
Are you a patient or caregiver with something to say?
Make your voice heard, too, by participating in paid surveys, interviews and online communities! Sign up and start talking to the right people. It’s free, and we accept rare and non-rare diagnoses!
or
Already a member? Update your profile here!
Learn about our Referral Program for individuals and advocacy groups.
I Have a Voice that Deserves to be Heard.
Are you a patient or caregiver with something to say?
Make your voice heard, too, by participating in paid surveys, interviews and online communities!
Sign up and start talking to the right people. It’s free, and we accept rare and non-rare diagnoses!
or
Already a member?
Update your profile here!
Learn about our Referral Program for individuals and advocacy groups.
In addition to the US, we also recruit patients and caregivers for studies in Canada, the UK, Germany, France, Italy, Spain, Australia,
and New Zealand! Click here to visit the RPV global site.
We provide patients and caregivers the chance to voice their opinions
Rare Patient Voice connects patients and caregivers with the opportunity to voice their opinions through surveys and interviews to improve medical products and services.
Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 35 years experience in marketing research, and more than 20 years in healthcare marketing research.
- For patients and caregivers —we provide the opportunity to voice their opinions to improve medical products and services while earning cash rewards. Sign up here.
- For patient advocacy groups —we partner with advocacy and support groups to increase donations.
- For market research firms —we help find the respondents and patient panels needed for research studies.
- For pharmaceutical and biotech companies —we provide the respondents and patient communities required to support market research and business insight needs.
Sharing My Voice
Interested in sharing your story through a video recording? Sign up here.
Click the arrow to advance to more videos!
Why Sign Up with RPV?
Provide your input to improve products and services.
Help companies and researchers focus more on your disease.
Earn rewards for participating in interviews and surveys.
What are you waiting for? SIGN UP NOW!
Already a member? UPDATE YOUR PROFILE!
Patient Blog Posts
Client Blog Posts
Real & Rare with Sarah: The Stages of Life with a Rare Disease
Life is all about choices. What career path do you want to take? Turn left, or right? Do you want to be single or find a partner? What would you … READ MORE
Weekly Warrior: Meet Rachel
“Hi I’m Rachel,@rachcutiepie, I’m 17 years old, and I have (get ready): Crohn’s Disease, Juvenile Ideopathic Arthritis, Uveitis, Osteoporosis, POTS, Adrenal Insufficiency, Chronic Fatigue Syndrome (as well as anxiety, depression, … READ MORE
The Rare Disorder Podcast interviews RPV’s Wes Michael
It’s important to nurture the next generation of patient advocates, but also to listen to and learn from them now. One of these impressive young people is Shivani Vyas, a graduating … READ MORE
RPV’s Pam Cusick, a 2022 Woman of Distinction
At Rare Patient Voice we are distinctly proud of our Senior Vice President, Pam Cusick. In an awards program yesterday in NYC, Pam was named one of the 2022 MM+M … READ MORE
