Rarity and all of us here at Rare Patient Voice would like to wish our patients, family caregivers, clients, colleagues, families, and friends a safe and joyous Thanksgiving! Now pass … READ MORE
The Voices of Family Caregivers Need to Be Heard
Helping to care for a loved one living with a rare disease or chronic illness can be a life-changing experience for both patient and caregiver. It can be very difficult … READ MORE
Weekly Warrior: Meet Emily
Weekly Warrior Emily has been living with psoriasis and psoriatic arthritis for 20 years and shares her story so others with these conditions don’t feel alone. “We have to stay … READ MORE
Weekly Warrior: Meet Jen
Our latest Weekly Warrior is Jen, who was diagnosed with Rheumatoid Arthritis in 2012. Despite allergic reactions and other setbacks over the years, she has a positive outlook and has … READ MORE
Weekly Warrior: Meet Jayden
Young Jayden is our newest Weekly Warrior. He lives with Spina Bifida, a congenital defect of the spine. Jayden’s mobility is affected and he walks with braces, but he’s doing … READ MORE
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