This is to all of the wonderful patient advocacy groups that we’ve partnered with. We love to attend and exhibit at your events – conferences, symposia and walks. We get … READ MORE
What are we doing about COVID 19?
I don’t need to tell you, all anyone is talking about is COVID 19, also known as the Coronavirus. All the in-person conferences and patient events we’ve been scheduled to … READ MORE
We are not a scam!
As I hope you know, we at Rare Patient Voice are very proud of what we do and how we do it. We bring research opportunities to patients and pay … READ MORE
Thank you to our patients and caregivers
Since it’s February, it’s already too late to say Happy New Year. But I didn’t want to miss the opportunity to say thank you. The many patients and caregivers who … READ MORE
We love referrals. But read the invite carefully!
We found a long time ago, patients (and caregivers) know other patients and caregivers. Many of our Rare Patient Voice members came from referrals from others. So, we love referrals! … READ MORE
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