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Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

  • Home
  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • Press Releases
  • For Patients
    • Study Opportunities for Patients and Caregivers
    • Sign Up to Participate
    • Find Us in the Community
    • Frequently Asked Questions
    • How We Use Your Information
    • Newsletters
  • For Advocacy Groups
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Diseases
      • Hemophilia
      • Multiple Sclerosis
      • Breast Cancer
      • Diabetes
  • Videos
    • Meet The Patients
    • You Ask, We Answer
    • Get To Know
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies
    • Market Access: A Patient Perspective
    • The Impact of Rare Diseases on Patients and Caregivers
    • The Role of Patient Advocacy Groups
    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
    • Patient Insights on Telehealth: A Case Study
    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice

Helping Patients and Caregivers Voice Their Opinions

Rare Patient Voice Expands to Europe

October 4, 2020 Wes Michael

I have important news for patients and clients! After 7 years of inviting patients to studies in the US and Canada, we are now expanding to Europe. We’ve begun recruiting … READ MORE

Filed Under: Business, Patient, Press Releases

Thanks to We’re Not Drunk, We Have MS, our Terrific MS Partner

October 4, 2020 Wes Michael

If you have MS, you need to check out the Facebook page of a group called We’re Not Drunk, We Have MS. They share important information for MS patients and … READ MORE

Filed Under: Community, Patient

Thanks to WhatNext, Our Terrific Cancer Patient Partner

October 4, 2020 Wes Michael

We started working with WhatNext not long after I founded Rare Patient Voice in 2013. If you’re not familiar with WhatNext, please take a look, whatnext.com. It is a great … READ MORE

Filed Under: Community, Patient

The North Wind and the Sun

September 27, 2020 Wes Michael

In first grade, our teacher, Mrs. Culver would gather us on the floor in the front of the classroom at Sandy Bank school and read stories to us. There’s one … READ MORE

Filed Under: Business, Community, Patient

Lessons from the Tortoise and the Hare

August 22, 2020 Wes Michael

I’m sure you all remember the story of the tortoise and the hare. The hare is much faster than the tortoise and he gets off to a much faster start … READ MORE

Filed Under: Business, Community, Patient

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Latest Blog Posts

  • Rare Patient Voice Expands to Europe
  • Thanks to We’re Not Drunk, We Have MS, our Terrific MS Partner
  • Thanks to WhatNext, Our Terrific Cancer Patient Partner
  • The North Wind and the Sun
  • Should companies do marketing to their market research panels?

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“I’ve had excellent interactions with the staff. The surveys are usually somewhat fun and feel like you’re actually helping someone or developing something new. They’ve always followed through on payment and I appreciate all the opportunities.”

Rare Patient Voice

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