Dave Roberts, MSW lost his 18-year-old daughter Jeannine due to a rare form of cancer, alveolar rhabdomyosarcoma, and was later inspired to create The Teaching Journeys Podcast. In this thought-provoking … READ MORE
An Introduction to RPV from Founder and President Wes Michael
Wes Michael founded Rare Patient Voice, now a Konovo company, in 2013. Here, Wes provides an introduction to the company and the services we provide.
Wes Michael Discusses Patients and Clinical Research on Beyond the Buzz
“Beyond the Buzz” is a short, evidence-informed podcast that helps curious adults think clearly about emerging trends in health, technology, and culture. In this interview Dr. Tara Munoz, a scientist and … READ MORE
A Discussion of Decentralized Clinical Trials, Diversity, and RPV on All Home Care Matters
All Home Care Matters is a podcast and YouTube show dedicated to providing resources to families facing long-term care questions and issues for themselves and their loved ones. In this … READ MORE
RPV on Mental Health & Rare Disease in Rare Revolution
Living with a rare disease isn’t just a physical battle—it carries a profound mental health burden, from isolation to uncertainty about the future. Raising awareness means recognizing the emotional toll … READ MORE
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