February is Black History Month, and in anticipation of Rare Disease Day on February 28, we are highlighting inventions and developments by African Americans that have provided support and improvements … READ MORE
Hear How RPV Was Created to Connect Patients, Caregivers, and Researchers
Rare Rebels™ is an ongoing effort to map the rare disease ecosystem through the people leading the charge, documenting how change happens and how connections across science, advocacy, infrastructure, and … READ MORE
A Look Back at RPV’s 2025
2025 was an exciting year for us at Rare Patient Voice! In this video message, recorded in late December, RPV President and Founder Wes Michael looks back at 2025 and … READ MORE
Season’s Greetings from Rare Patient Voice!
It’s been a very busy year at Rare Patient Voice, and we hope to soon join our zebra friend Rarity in taking a cozy holiday break! In the meantime, here are … READ MORE
Happy Thanksgiving from RPV!
We are so grateful for our community of patients and family caregivers, our clients, and our staff. Thank you from Rarity, our hungry zebra mascot, and all of us at … READ MORE
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