By Jane Davis There comes a time in everyone’s life as they age, that they need help with general everyday life. For some, moving into retirement communities adapted to those … READ MORE
Rare Can Be Good
I’m a regular Red Cross blood donor. I’m not a saint or anything. My father always gave blood, and I remember first giving in high school. I hate needles, but … READ MORE
Change to Gift Card Values for Online sign-ups
We are proud that with the help of many of you we have sent gift cards for more than $92,000 to new patients/caregivers and referrers in 2014. I wanted to … READ MORE
Sympathy and Empathy
This spring I’ve been to many patient events like walks and forums – for multiple sclerosis, cystic fibrosis, sickle cell, pulmonary arterial hypertension, and Waldenstrom’s Macroglobulinemia. As you can expect, … READ MORE
Coalition for Hemophilia B 8th Annual Symposium
Today I attended my first Coalition for Hemophilia B Annual Symposium (the group’s 8th annual) in New York City. What a terrific event. I got to meet several of our … READ MORE
