Hi, I’m Wes Michael, President of Rare Patient Voice. I founded Rare Patient Voice in 2013 to give patients and caregivers (generally family members) a chance to voice their opinions … READ MORE

We at Rare Patient Voice are used to attending hundreds of patient events every year. Walks, conferences, educational symposia. Of course, they are all cancelled this year, some have become … READ MORE

Here is information on Social Security Administration’s Ticket to Work program. Individuals who receive Social Security Disability benefits often worry that they will be unable to earn any type of … READ MORE

We wanted to pass this along about the Social Security Administrations’ PASS program. The Social Security Administration’s Plan for Achieving Self Support (PASS) is a program intended to help people with disabilities … READ MORE