RPV Featured in Rare Revolution Magazine, Autumn 2026
Some conferences can truly make a lasting impression. Our Patient Advocacy Director Jennifer Messier attends many each year on behalf of RPV, but the 2026 NFXF International Fragile X Conference … READ MORE
Wes Michael Talks Helping Give Patients a Voice on The Teaching Journeys
Dave Roberts, MSW lost his 18-year-old daughter Jeannine due to a rare form of cancer, alveolar rhabdomyosarcoma, and was later inspired to create The Teaching Journeys Podcast. In this thought-provoking … READ MORE
An Introduction to RPV from Founder and President Wes Michael
Wes Michael founded Rare Patient Voice, now a Konovo company, in 2013. Here, Wes provides an introduction to the company and the services we provide.
Wes Michael Discusses Patients and Clinical Research on Beyond the Buzz
“Beyond the Buzz” is a short, evidence-informed podcast that helps curious adults think clearly about emerging trends in health, technology, and culture. In this interview Dr. Tara Munoz, a scientist and … READ MORE
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