Fraud in research is real and growing, but it doesn’t have to be overwhelming. With vigilance, thoughtful sourcing, and transparency, preserving the integrity of our insights can be a reality. … READ MORE
Read About Overcoming Challenges to Engaging Rare Patients in Clinical Research
Clinical research is key to medical progress, providing the data necessary to develop new treatments, improve outcomes, and offer hope to patients. Nowhere is this hope more urgently needed than … READ MORE
RPV’s Rare Caregiver Survey Featured in Rare Revolution Magazine
Earlier this year, Rare Patient Voice survey 735 caregivers of loved ones living with a rare disease on how their caring role has affected their lives. The survey results then … READ MORE
New on the Bookshelf: Reinventing Patient Centricity
Reinventing Patient Centricity: Bringing patient-led business models to life, by Sharon Suchotliff and Hensley Evans We hear a lot about patient centricity these days. A Google search on the term … READ MORE
Rare Revolution Magazine Features Wes Michael in Rare Entrepreneur Spotlight
President and founder Wes Michael’s belief in the power of patient insights in improving treatment options, and ultimately lives, motivated him to found Rare Patient Voice in 2013. He discusses … READ MORE
