Rare Patient Voice, LLC connects patients and family caregivers of rare and non-rare diseases with opportunities to share their opinions with companies and researchers by participating in all types of research studies. These include surveys and phone interviews, online bulletin boards, focus groups, clinical trials, and more.
Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, family caregivers, physicians, nurses, and patient advocacy group leaders. Wes has more than 40 years experience in market research, and more than 20 years in healthcare market research.
While RPV began with a focus on rare diseases, we now welcome patients and family caregivers living with all medical conditions. We currently cover over 1,400 rare and non-rare diseases and conditions. For more information (including a video from Wes) and to join RPV, visit our patient and family caregiver sign-up page. Over the years, we have paid patients and family caregivers over $10 million for participating in research.
We work with thousands of organizations, patient advocacy groups, and individuals to spread the word about RPV. Check out our referral program and receive $10 for every new person who signs up with RPV through the unique link we create for you.
At Rare Patient Voice, we recently celebrated our tenth anniversary! Since launching in the United States in 2013, RPV has expanded across the globe. We now recruit patients and caregivers for research studies in the United States, United Kingdom, Canada, Germany, Italy, France, Spain, Australia, and New Zealand. Visit our global site for more information.