We are proud to have supported Cards2Warriors for several years in their mission to uplift patients facing long-term illnesses and rare diseases, while also honoring the vital role of family caregivers. Our partnership has included featuring the RPV logo on their cards and envelopes, contributing stickers of zebra mascot Rarity, and hosting a card writing event. During this event, 21 RPV team members handwrote 90 heartfelt notes of encouragement, which were mailed to 90 warriors.
During our first ever company meeting in Florida, Rare Patient Voice packed and delivered snack bags to the local Ronald McDonald House in Tampa Bay. Ronald McDonald House Charities provide lodging for families spending time at hospitals far from home.
So proud of the Rare Patient Voice LLC team for supporting the #HopeReads program at the Happy Hope Factory! Our team recorded themselves reading children's books which will be shared with hospitalized children nationwide. For more information about how your team can get involved, click here: https://1l.ink/LLWQR32
Rare Patient Voice-sponsored student & non-profit studies
Rare Patient Voice has helped a number of students and non-profits with their research by allowing access to patients and caregivers at no cost. Some of the studies we have supported are listed below.
| University/Organization | Topic | Type | |
| Columbia University | Crohn's Disease and Ulcerative Colitis | Qualitative | |
| Seton Hall University | Sickle Cell Disease (SCD) | Quantitative | |
| University of Texas | Sickle Cell Disease (SCD) | Quantitative | |
| DeltaQuest | Hemophilia A&B | Quantitative | |
| University of Mississippi | Hemophilia | Quantitative | |
| Indiana University | Ovarian Cancer | Quantitative | |
| DeltaQuest | Hemophilia | Quantitative | |
| Xavier University | Endometrial Cancer | Quantitative | |
| Kent State University | Cancer | Qualitative | |
| University of Minnesota | Hemophilia | Quantitative | |
| Stanford University | Breast Cancer | Quantitative | |
| DeltaQuest | MS | Qualitative | |
| University of Mississippi | Hemophilia | Quantitative | |
| Stanford University | Breast Cancer | Quantitative | |
| University of Maryland Baltimore | Older Couples | Qualitative | |
| University of Mississippi | Parkinson's Disease | Quantitative | |
| DeltaQuest | DMD | Quantitative | |
| Rice University | Alzheimer's Disease | Quantitative | |
| University of Mississippi | Sickle Cell Disease (SCD) | Quantitative | |
| Xavier | Prostate Cancer | Quantitative | |
| University of Mississippi | Alzheimers and Autism | Quantitative | |
| University of Mississippi | Rheumatoid Arthritis | Quantitative |
