Rare Patient Voice (RPV) attends patient and caregiver events to connect with patients, caregivers, and families across a wide range of disease communities. We are always looking for new events to attend, as well as opportunities to connect with both new and familiar communities.
Below are some upcoming events where you can find us. If your group has an upcoming patient or caregiver event, we’d love to hear about it.
| EVENT | DATE | LOCATION |
| 2026 Annual Ataxia Conference | April 9-11, 2026 | Rosen Centre Hotel Orlando, FL |
| HFA 2026 Symposium | April 16-19, 2026 | New Orleans Marriott New Orleans, LA |
| Epilepsy Awareness Day at Walt Disney World | April 25-26, 2026 | Disney's Contemporary Resort, Orlando, FL |
| CancerCon | April 30 – May 3, 2026 | Hyatt Regency Seattle, Seattle, WA |
| NAMICon 2026 | May 28-30, 2026 | Atlanta Marriott Marquis Atlanta, GA |
| United in Vision 2026 | June 12 - 13, 2026 | Fort Worth Convention Center, Fort Worth, TX |
| The 20th NFXF International Fragile X Conference | July 16 - 19, 2026 | Louisville Marriott Downtown Louisville, KY |
| Abilities Expo - Phoenix | September 11-13, 2026 | WestWorld of Scottsdale, Scottsdale, AZ |
| Abilities Expo - Orlando | October 9 - 11, 2026 | Osceola Heritage Park Events Center, Orlando, FL |
Would you like us to attend your patient and caregiver conference, expo, or summit?
Please contact us at patientadvocacyteam@rarepatientvoice.com.
