• About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • In the News
    • Awards
    • Careers
    • RPV Store
  • For Patients
    • Study Opportunities
    • Clinical Trial Opportunities
    • Sign Up to Participate
    • Types of Research
    • Find Us in the Community
    • Frequently Asked Questions
    • Testimonials
    • How We Use Your Information
    • Newsletters
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Frequently Asked Questions
    • Industry Conferences
    • Patient Advocacy Team Outreach
  • Clinical Trial Recruitment
  • Referral Program
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies

Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • In the News
    • Awards
    • Careers
    • RPV Store
  • For Patients
    • Study Opportunities
    • Clinical Trial Opportunities
    • Sign Up to Participate
    • Types of Research
    • Find Us in the Community
    • Frequently Asked Questions
    • Testimonials
    • How We Use Your Information
    • Newsletters
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Frequently Asked Questions
    • Industry Conferences
    • Patient Advocacy Team Outreach
  • Clinical Trial Recruitment
  • Referral Program
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies

Helping patients and caregivers share their voices

Testimonials

PATIENTS AND CAREGIVERS ON BEING PART OF
THE RARE PATIENT VOICE COMMUNITY

Play Video

“It’s rewarding to know that my participation in research may one day save not just other people’s lives, but mine as well. When a study is over I feel fantastic. Not only do I get the pleasure of a job well done, but I also get valuable knowledge and insight into my health.”
– Lacolya

“It’s just nice to know that people actually care and want to know what we go through and hope that we find cures for these diseases we struggle with!”
– Tisha

“It’s refreshing to contribute personal experience in Rare Patient Voice studies. Everyone with Myasthenia Gravis deserves opportunities to be heard and to receive compassionate care that helps them live their best quality of life.”
– Sherri

“I have been connected to Rare Patient Voice for a while and appreciate being included in studies that I qualify for. It lets me know that I am seen, heard, and respected.”
– Daniel

“Every study I do for Rare Patient Voice has been smooth with quick payment.”
– Patrick

“RPV studies are always informative and interesting. I'm glad to be a member and help with my experience.”
– Philip

“I love Rare Patient Voice. Easy to do surveys and the pay for your opinion is very generous. Thank you for giving me a say.”
– Sherry

“I’m very pleased to have a chance to participate in this study. I’m hoping my experience will help others who may be struggling with the same issues.”
– Jamie

Allowing a safe platform to share my story and know that it is contributing to assist researchers is not only cathartic, but allows me to feel that my experience and suffering is not in vain. Others will benefit and do better because of my experiences.
– Ariana

I have been a part of this site for some years now and have really enjoyed the things I've learned.
– Claudia

It is satisfying to know I can do my part to help get feedback to companies about our rare disease.
– Angela

Very easy to complete and I always look forward to offering my opinion as well as receiving the extra compensation - because disability just isn't enough for me to survive on. Every bit extra helps A LOT!
– Shereese

Everyone associated with any of the panels is always professional, courteous and friendly. They also seem compassionate and truly interested in hearing patient experiences.
– Davina

I am glad to be working with your company. This was my first experience, and I feel comforted that you run such a professional and considerate organization.
– Benjy

The process was very easy and I felt as if my opinions were valued.
– Lisa

I love how great the Rare Patient Voice staff is with communication. If only all businesses were run so well!
– Melissa

It’s reassuring to know that they’re asking real people, that the opinions of people who live with these conditions are listened to.
– Elayna

Thank you for these opportunities! I hope that my responses will help other MG patients.
– Lisa

I enjoyed being the "expert" and being able to share some of my son's story and our experience.
– Abbie

I love the way this organization treats me.
– Marian

I appreciate that you allow us to participate in these studies. The money helps to pay my co-pays and I am grateful.
– Jane

Latest Blog Posts

  • What kinds of projects does RPV do?
  • Who Are RPV’s Clients?
  • How Quickly Can RPV Recruit Patients? Wes Michael Explains
  • Meet Our Team: Sara Prosic, Business Development Associate
  • Wes Michael Talks Empowering Patients Through Research

Check out our YouTube Channel

https://youtu.be/cfjkqh5Ykp0

Read Our Newsletter

Read our Newsletter
What’s New at Rare Patient Voice?

Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(443) 986-1949

Regular business hours are Monday through Friday, 9am-5pm ET.

Careers


For Patients

  • Learn about us
  • Vision, Mission and Core Values
  • Sign up to participate
  • Find us in the community
  • Read our blog for patients
  • Privacy Policy

For Related Groups

  • Interested in Becoming a Referral Partner?
  • Are you a researcher?
  • Read our blog for businesses

Visit RPV on Facebook Visit RPV on X Visit RPV on LinkedIn Visit RPV on Instagram Visit RPV on TikTok
Visit RPV on YouTube

Intellus Worldwide logo   Insights Association Member Logo  BHBIA Corporate Member logo

EPHMRA Agency Member logo ESOMAR logo

GSA Member logo

CIRQ 27001 certified logo Rare Patient Voice, LLC, Market Research, Towson, MD

Rare Patient Voice, LLC, Market Research, Towson, MD

©2025. Rare Patient Voice. All Rights
Reserved. Privacy Policy | Sitemap

©2025 . All Rights Reserved.

Copyright © 2025 · Genesis Framework · WordPress · Log in

Search Our Website

We use cookies to ensure the best experience with Rare Patient Voice. By clicking “Accept”, you agree to our privacy policy.
Privacy Policy   |    Cookies    |    Accept
Manage consent

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.
Necessary
Always Enabled
Necessary cookies are absolutely essential for the website to function properly. These cookies ensure basic functionalities and security features of the website, anonymously.
Functional
Functional cookies help to perform certain functionalities like sharing the content of the website on social media platforms, collect feedbacks, and other third-party features.
Performance
Performance cookies are used to understand and analyze the key performance indexes of the website which helps in delivering a better user experience for the visitors.
Analytics
Analytical cookies are used to understand how visitors interact with the website. These cookies help provide information on metrics the number of visitors, bounce rate, traffic source, etc.
Advertisement
Advertisement cookies are used to provide visitors with relevant ads and marketing campaigns. These cookies track visitors across websites and collect information to provide customized ads.
Others
Other uncategorized cookies are those that are being analyzed and have not been classified into a category as yet.
SAVE & ACCEPT