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Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

  • Home
  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • In the News
    • Awards
    • Careers
  • For Patients
    • Study Opportunities
    • Clinical Trial Opportunities
    • Sign Up to Participate
    • Types of Research
    • Find Us in the Community
    • Frequently Asked Questions
    • How We Use Your Information
    • Newsletters
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Frequently Asked Questions
    • Industry Conferences
    • Diseases
      • Hemophilia
      • Multiple Sclerosis
      • Breast Cancer
      • Diabetes
      • Multiple Myeloma
      • Epilepsy
      • Non-Small Cell Lung Cancer
      • HIV
  • Referral Program
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies
    • The Long and Winding Road to Care
    • Health Literacy Initiative’s PSA
    • Patient Perspectives on Clinical Trial Participation
    • Patient Journeys and Insights for Oncology and Rare Diseases
    • Market Access: A Patient Perspective
    • The Impact of Rare Diseases on Patients and Caregivers
    • The Role of Patient Advocacy Groups
    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
    • Patient Insights on Telehealth: A Case Study
    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice

Helping patients and caregivers share their voices

Clinical Trial Opportunities for Patients and Caregivers

Clinical research is the study of health and illness in people. Scientists may have many reasons for doing a clinical study, such as:

  • To explore the cause of a disease or a set of symptoms
  • To test if a treatment will help with a symptom or condition
  • To learn how a certain behavior affects people’s health

We currently have a number of clinical research studies open for patients and caregivers. Links to the clinical trials we are working to fill immediately are listed below.

Feel free to also share this page with friends or family who may be interested.

United States:

Myelofibrosis adult patients United States IFMA_7104
Clinical Trial and compensation will be discussed with those that are selected to participate

Hodgkin's Lymphoma patients United States TRLS_5328
Clinical Trial and compensation will be discussed with those that are selected to participate

Non-Hodgkin's Lymphoma patients United States IFMA_6498
Clinical Trial and compensation will be discussed with those that are selected to participate

Melanoma, Lung Cancer: Non -Small Cell Lung Cancer (NSCLC) patients United States IFMA_6930
Clinical Trial and compensation will be discussed with those that are selected to participate

Cancer patients United States MBO_6923
Clinical Trial and compensation will be discussed with those that are selected to participate

Prostate Cancer patients United States MBO_6737
Clinical trial no compensation

Cytomegalovirus (CMV) IFMA_6311 United States
Clinical trial and compensation will be discussed with those that are selected to participate
https://connect.trialscope.com/studies/ec2d20f7-e305-4e9a-8ff2-7c1b7d1b198c?pv=1

Neurobehavioral Disinhibition United States TRLS_5572
Clinical trial and compensation will be discussed with those that are selected to participate
https://connect.trialscope.com/studies/430a70e6-df78-49aa-91b0-8058b25f90dc?pv=1

SARS-CoV-2 United States TRLS_5356
Clinical trial and compensation will be discussed with those that are selected to participate
https://connect.trialscope.com/studies/792e25ab-9194-4e2a-963a-9cbcff322ace?pv=1

Respiratory Syncytial Virus United States TRLS_5577
Clinical trial and compensation will be discussed with those that are selected to participate
https://connect.trialscope.com/studies/e2fa61b1-0420-4f7c-a849-b27f1582e32d?pv=1

Epstein Barr Syndrome (EBV) United States IFMA_6312
18-month long clinical trial and compensation will be discussed with those that are selected to participate
https://connect.trialscope.com/studies/e895ad22-8d02-45a3-aa56-9b75c25b555a?pv=1&utm_locale=en

Diffuse Large B-Cell Lymphoma United States IFMA_6250
Compensation will be discussed with those that are selected to participate
https://connect.trialscope.com/studies/ad761651-5441-4fd0-bfd7-5ab294cd63f1?pv=1

Atopic Dermatitis (Eczema) United States IFMA_6200
Compensation will be discussed with those that are selected to participate
https://connect.trialscope.com/studies/614045ca-0c0e-4c51-910b-20f4404fcf59?pv=1&utm_locale=en

Australia

Looking for individuals ages 18 and over who have not had their seasonal influenza vaccine within the last 6 months Australia IFMA_6931
Cinical trial no compensation

 

Latest Blog Posts

  • Weekly Warrior: Meet Kelsey
  • Need to raise funds for your org’s efforts? Join our referral program and let RPV help amplify your voice! 
  • Weekly Warrior: Meet Allie
  • Weekly Warrior: Meet Denise
  • A Thank You to Our Patients, Caregivers, and Patient Advocacy Group Partners

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