RPV Featured in Rare Revolution Magazine, Autumn 2026
Some conferences can truly make a lasting impression. Our Patient Advocacy Director Jennifer Messier attends many each year on behalf of RPV, but the 2026 NFXF International Fragile X Conference … READ MORE
Wes Michael Talks Helping Give Patients a Voice on The Teaching Journeys
Dave Roberts, MSW lost his 18-year-old daughter Jeannine due to a rare form of cancer, alveolar rhabdomyosarcoma, and was later inspired to create The Teaching Journeys Podcast. In this thought-provoking … READ MORE
Wes Michael Interviewed in Leadership Today Blog
Adam Mendler is a nationally recognized authority on leadership and is the creator and host of Thirty Minute Mentors, where he regularly elicits insights from America’s top CEOs, founders, athletes, … READ MORE
Wes Michael Discusses Patients and Clinical Research on Beyond the Buzz
“Beyond the Buzz” is a short, evidence-informed podcast that helps curious adults think clearly about emerging trends in health, technology, and culture. In this interview Dr. Tara Munoz, a scientist and … READ MORE
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