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Rare Patient Voice - A Konovo Company

Helping Patients with Rare Diseases Voice Their Opinions

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Helping patients and caregivers share their voices

Wes Michael Discusses Patients and Clinical Research on Beyond the Buzz

April 28, 2026 Laura Mullen

“Beyond the Buzz” is a short, evidence-informed podcast that helps curious adults think clearly about emerging trends in health, technology, and culture. In this interview Dr. Tara Munoz, a scientist and … READ MORE

Filed Under: Business, Interviews, Patient

Wes Michael Discusses Mental Health and Rare Disease on the Caregiver Relief Podcast

March 13, 2026 Laura Mullen

  Wes Michael of RPV recently visited the Caregiver Relief Podcast to talk about the “shadows” of the rare disease experience​,​ including the mental health burden on caregivers, the frustration … READ MORE

Filed Under: Interviews, Patient

HealthCare UnTold Podcast Welcomes RPV’s Pam Cusick

March 6, 2026 Laura Mullen

The HealthCare UnTold podcast gives a voice to everyday heroes, sharing their stories to improve health information for vulnerable communities. In this thought-provoking interview, host Barbara Ann Garcia interviews Rare … READ MORE

Filed Under: Interviews, Patient

Pam Cusick Talks Caregiving on All Home Care Matters Podcast

November 4, 2025 Laura Mullen

  All Home Care Matters is a podcast and YouTube show dedicated to helping provide resources to families as they face long-term care questions and issues for themselves and loved … READ MORE

Filed Under: Business, Interviews

Wes Michael Talks Connecting Patients and Researchers on The Pickle Jar Podcast

September 18, 2025 Laura Mullen

The Pickle Jar Podcast connects people with Adrenal Deficiency around the world. Host Jill Battle was diagnosed with Addison’s disease in 2011. In the most recent episode, Rare Patient Voice … READ MORE

Filed Under: Business, Interviews

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