All Home Care Matters is a podcast and YouTube show dedicated to helping provide resources to families as they face long-term care questions and issues for themselves and loved … READ MORE
Wes Michael Talks Connecting Patients and Researchers on The Pickle Jar Podcast
The Pickle Jar Podcast connects people with Adrenal Deficiency around the world. Host Jill Battle was diagnosed with Addison’s disease in 2011. In the most recent episode, Rare Patient Voice … READ MORE
Pam Cusick Discusses the Power of Patient Stories on Story Conversations Podcast
When a rare disease strikes, we might think only of the small populations of patients who are impacted by any single rare condition as stories too specific to be told. … READ MORE
Wes Michael Discusses Rare Disease Patient Advocacy on MM+M Podcast
The MM+M Podcast features interviews with guests from in and around the industries of pharma, biotech, med-tech ad-tech and health media. In light of Rare Chromosome Awareness Day, Managing Editor Jack … READ MORE
Pam Cusick Discusses RPV’s Mission on Run Radio Podcast
The “Run Radio Podcast” features interviews with guests who share their experiences and insights on entrepreneurship, wellness, and more. In this powerful conversation, host Trina Wilcox and Pam Cusick, SVP … READ MORE
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