Wes Michael of RPV recently visited the Caregiver Relief Podcast to talk about the “shadows” of the rare disease experience, including the mental health burden on caregivers, the frustration … READ MORE
HealthCare UnTold Podcast Welcomes RPV’s Pam Cusick
The HealthCare UnTold podcast gives a voice to everyday heroes, sharing their stories to improve health information for vulnerable communities. In this thought-provoking interview, host Barbara Ann Garcia interviews Rare … READ MORE
Pam Cusick Talks Caregiving on All Home Care Matters Podcast
All Home Care Matters is a podcast and YouTube show dedicated to helping provide resources to families as they face long-term care questions and issues for themselves and loved … READ MORE
Wes Michael Talks Connecting Patients and Researchers on The Pickle Jar Podcast
The Pickle Jar Podcast connects people with Adrenal Deficiency around the world. Host Jill Battle was diagnosed with Addison’s disease in 2011. In the most recent episode, Rare Patient Voice … READ MORE
Pam Cusick Discusses the Power of Patient Stories on Story Conversations Podcast
When a rare disease strikes, we might think only of the small populations of patients who are impacted by any single rare condition as stories too specific to be told. … READ MORE
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