In a special episode of the “I Care for Rare” podcast, host Sherrilynne Starkie and Sandra Markus, founder of I Care for Rare, welcome Rare Patient Voice President Wes Michael to the show in … READ MORE
Discussing the Importance of Rare Disease Day on Unlocked with Skot Waldron
“Unlocked with Skot Waldron” is a podcast dedicated to empowering and educating people to communicate more effectively. In this episode, Skot Waldron and Rare Patient Voice Senior Vice President … READ MORE
RPV’s Pam Cusick Talks with Empowered Caregivers
“Empowered Caregivers” podcast host Shelly Drymon is a caregiver for her partner Steve, who was diagnosed with transverse myelitis in September 2023. The podcast is for spouses and partners who … READ MORE
RPV’s Pam Cusick Talks Patients and Research on The Bridge Podcast
Pam Cusick, Senior Vice President of Rare Patient Voice, was recently a guest on The Bridge, the official podcast of the University of Maryland. She discussed how RPV empowers patients … READ MORE
Wes Michael Talks Patient Empowerment on 1 in 20 Rare Disease Podcast
The 1 in 20 podcast host Jonathan Cappiello was diagnosed with a rare genetic disorder that affects only 20 people in the world, 3 hydroxyacyl coa synthase deficiency, which in … READ MORE
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