Huntington’s disease (HD) is a genetic disorder that causes the gradual breakdown and death of nerve cells in the brain. Help 4 HD is the first podcast created to solely … READ MORE

Presented by Salem Oaks and CureGPX4, the “Raising Rare” podcast follows a parent’s journey to find a treatment for their child’s ultra rare genetic disorder. The podcast also features stories of other rare disease families, … READ MORE

“The Pickle Jar Podcast” host Jill Battle lives with a rare autoimmune disease. Her mission is to advocate, educate and empower people living with Addison’s disease and other invisible illnesses to … READ MORE

Oak Wealth Advisors’ “The Special Needs Voice” podcast features interviews with top leaders in the special needs community. Host Tony Schneider hopes that listeners will learn something new and gain information for … READ MORE

RARE Revolution Magazine Engagement Associate Becky Pender recently caught up with Rare Patient Voice Senior Vice President Pam Cusick to learn how RPV is turning the tide for people living … READ MORE