We are excited to share news of some changes within the Rare Patient Voice Field Operations Team. Please join us in congratulating these individuals for their contributions in helping to … READ MORE
Meet Our Team: Jessica Bolden, Business Development Associate
Meet our team! The staffer in the spotlight this month is Jessica Bolden, who joined Rare Patient Voice as a Business Development Associate in 2022. This role allows her to … READ MORE
Advocating to Give Patients a Voice on Motivational Mondays
RPV’s Pam Cusick recently was interviewed by Corey Anthony Powell for “Motivational Mondays,” a weekly conversation with entrepreneurs, authors and leadership experts to unravel the secrets behind success. In … READ MORE
Beyond Clinical Walls Podcast Discusses Patient Centric Trial Design with RPV
Rare Patient Voice Senior Vice President Pam Cusick was interviewed on the Beyond Clinical Walls podcast, hosted by Dr. Bayo Curry-Winchell, discussing common barriers in clinical trials and their impact … READ MORE
Weekly Warrior: Meet Mackenzie
Our latest Weekly Warrior is Mackenzie, caregiver to her son Josiah. He lives with Familial cold autoinflammatory syndrome, a rare genetic disorder characterized by episodes of rash, fever, and joint … READ MORE
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