Kait from Monterey, CA is our latest Weekly Warrior. She lives with Miserable malalignment syndrome (MMS), a rare condition that can cause pain and discomfort in the joints. Kait shares … READ MORE

Vanessa from Austin, TX is our latest Weekly Warrior. She lives with multiple chronic illnesses including Addison’s disease, which destroys the adrenal glands. Previously a very physically active person, Vanessa … READ MORE

Our latest Weekly Warrior is Sarah, a mom and caregiver to her 11 year-old daughter who lives with Wiedemann-Steiner syndrome, a rare genetic condition that can affect multiple organ systems. … READ MORE

Wes Michael, President and Founder of Rare Patient Voice, provides an accessible explanation of how RPV works in this video primer.