Rare Patient Voice was proud to connect Sciensus with patient participants for their study bringing attention to the rare disease access burden in Europe, the subject of the poster presented … READ MORE
New Report Shows Rare Disease Is a Mental Health Burden on Patients & Caregivers that Healthcare Professionals May Not be Meeting
Rare Disease Is a Mental Health Burden on Patients and Caregivers that Healthcare Professionals May Not be Meeting, Reveals Latest Global Data from Konovo While 82% of rare disease patients … READ MORE
Rare Patient Voice is Acquired by Konovo, a Technology-First Healthcare Intelligence Company
Konovo Achieves Significant Milestone in Connecting Patient and Healthcare Provider Insights with Rare Patient Voice Acquisition Rare Patient Voice’s 200,000+ registered patients and caregivers expand Konovo’s ability to deliver connected … READ MORE
The Critical Need to Address Mental Health in the Rare Disease Community, Upcoming Webinar Hosted by Xtalks
In this free webinar happening on Dec 11, learn how addressing mental health can improve quality of life in the rare disease community. Attendees will gain insight into survey data … READ MORE
Elevating Patient Voices for Rare Disease Day and Every Day
Towson, MD, 2.28.2025 – For over a decade, Rare Patient Voice (RPV) has empowered patients and family caregivers to have their voices heard through participating in all types of healthcare … READ MORE
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