In this free webinar happening on Dec 11, learn how addressing mental health can improve quality of life in the rare disease community. Attendees will gain insight into survey data showing that anxiety, stress and isolation are widespread among rare disease patients and caregivers, reinforcing the need to make mental health a core part of support strategies. Featured speaker Pam Cusick of Rare Patient Voice will discuss why most respondents struggled to find providers familiar with rare diseases, highlighting opportunities to expand access to specialized mental health care. She will be joined by Chris Anselmo, who lives with the rare muscle disease limb-girdle muscular dystrophy type 2Ba rare muscle and will share his perspectives on rare disease and mental health. They will discuss why peer networks, advocacy groups and online communities are essential sources of emotional support, with evidence that community-building improves well-being. Attendees will gain insights into the need for holistic care approaches, as patients and caregivers want healthcare, advocacy and industry to actively support emotional health.
Link to press release: https://www.prnewswire.com/news-releases/the-critical-need-to-address-mental-health-in-the-rare-disease-community-upcoming-webinar-hosted-by-xtalks-302622126.html?tc=eml_cleartime
