Kiera is our latest Weekly Warrior. An advocate and researcher, she lives with Addisons disease and Ehlers-Danlos syndrome. She shares her story here. https://www.linkedin.com/feed/update/urn:li:activity:7159210935558053888
Michael & Mom’s RPV Rap
On January 5, Michael and Ashlee Cramer joined RPV for an inspiring talk during our virtual company retreat. A bit of background: Michael Cramer is a 22-year-old cancer survivor, bone … READ MORE
Weekly Warrior: Meet Anita
Anita is our latest Weekly Warrior. In 2020 she was diagnosed with Multiple Sclerosis, and her life has changed dramatically since then. Anita shares her story here. https://www.linkedin.com/feed/update/urn:li:activity:7154126202507595776
Weekly Warriors: Meet Karen and Dominic
Our latest Weekly Warriors are caregiver Karen and her six year-old son Dominic, who lives with Congenital Disorders of Glycosylation and is nonverbal. Karen shares their story here. https://www.linkedin.com/feed/update/urn:li:activity:7151589544901931008
A Very Happy New Year from RPV!
We’d like to take a moment to wish the entire Rare Patient Voice community – our staffers, patients, family caregivers, clients, and colleagues – a wonderfully Happy New Year! Here’s … READ MORE
- « Previous Page
- 1
- 2
- 3
- 4
- 5
- 6
- …
- 38
- Next Page »