Wishing all of you a wonderful Labor Day, from all of us at Rare Patient Voice!
Weekly Warrior: Meet Keyla
Our latest Weekly Warrior is Keyla, who shared her story with us recently. “Hi, I’m Keyla, I’m 38 yrs old and I have Crohn’s Disease, and I am a care … READ MORE
Weekly Warrior: Meet Tyesha
Tyesha is our latest Weekly Warrior. She lives with Spinal Muscular Atrophy Type 3, a rare genetic condition that weakens muscles throughout the body, which has impacted her mobility. “I … READ MORE
Weekly Warrior: Meet Sydney
Sydney is our latest Weekly Warrior, and she lives with multiple chronic illnesses. First diagnosed in 2020 with hypothyroidism, things snowballed from there. But she has a positive attitude, choosing to … READ MORE
Weekly Warrior: Meet Tiffany
Tiffany is a blindness accessibility and audio description consultant. She has danced professionally with the company Jess Curtis Gravity in San Francisco and Berlin and serves on their Board of … READ MORE
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