For years now, we’ve sent invites to our Rare Patient Voice studies out to you by email. Recently, we ran in to a temporary email issue and in a pinch … READ MORE
How does Rare Patient Voice Work? Can I get paid for doing surveys?
Hi, I’m Wes Michael, President of Rare Patient Voice. I founded Rare Patient Voice in 2013 to give patients and caregivers (generally family members) a chance to voice their opinions … READ MORE
Let’s Name our Zebra Mascot – but not Zebra McZebface!
Thanks for the tremendous response we’ve received to help us name our Zebra mascot! We’ve received hundreds of names. And not just the names, but great thinking behind the names. … READ MORE
A Peek Behind the Scenes at Rare Patient Voice
Rare Patient Voice is now six years old. We’ve completed over 3,000 studies, we have 95,000 patients and caregivers, and are proud to have paid over 4.1 million dollars to … READ MORE
Get to Know: ALS
Amyotrophic Lateral Sclerosis, or ALS, has been gaining a lot of recognition over the past few years. It used to be known as Lou Gehrig’s Disease. But now most people … READ MORE
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