Rare Disease Is a Mental Health Burden on Patients and Caregivers that Healthcare Professionals May Not be Meeting, Reveals Latest Global Data from Konovo While 82% of rare disease patients … READ MORE
Wes Michael Visits Skot Woldron’s Unlocked for Rare Disease Day 2026
With Rare Disease Day 2026 coming up later this week, Wes Michael recently discussed the power of the rare disease patient voice, the importance of trust, and RPV’s joining with … READ MORE
Black History Month Meets Rare Disease Day
February is Black History Month, and in anticipation of Rare Disease Day on February 28, we are highlighting inventions and developments by African Americans that have provided support and improvements … READ MORE
Hear How RPV Was Created to Connect Patients, Caregivers, and Researchers
Rare Rebels™ is an ongoing effort to map the rare disease ecosystem through the people leading the charge, documenting how change happens and how connections across science, advocacy, infrastructure, and … READ MORE
A Look Back at RPV’s 2025
2025 was an exciting year for us at Rare Patient Voice! In this video message, recorded in late December, RPV President and Founder Wes Michael looks back at 2025 and … READ MORE
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