In a special episode of the “I Care for Rare” podcast, host Sherrilynne Starkie and Sandra Markus, founder of I Care for Rare, welcome Rare Patient Voice President Wes Michael to the show in … READ MORE
Elevating Patient Voices for Rare Disease Day and Every Day
Towson, MD, 2.28.2025 – For over a decade, Rare Patient Voice (RPV) has empowered patients and family caregivers to have their voices heard through participating in all types of healthcare … READ MORE
RPV’s Pam Cusick Talks with Empowered Caregivers
“Empowered Caregivers” podcast host Shelly Drymon is a caregiver for her partner Steve, who was diagnosed with transverse myelitis in September 2023. The podcast is for spouses and partners who … READ MORE
Happy Valentine’s Day from RPV!
At Rare Patient Voice, we love our patients, family caregivers, clients, and colleagues! Our zebra mascot Rarity and all of us at RPV wish all of you a Happy Valentine’s … READ MORE
Weekly Warrior: Meet Lisa
Weekly Warrior Lisa lives with multiple chronic conditions and posts on Instagram about her journey, using the handle @autoimmunewarriorinfo. “In July 2004 I woke up in severe body pain. It seemed … READ MORE
- « Previous Page
- 1
- 2
- 3
- 4
- …
- 46
- Next Page »
