Did you know that there are over 300 million living with a rare disease worldwide, and approximately 30 million in the United States alone? Just in time for #RareDiseaseDay, Rare … READ MORE
Weekly Warrior: Meet Grace
Grace Charrier, who is of African heritage, resides in Brooklyn, New York. She is a Stage 3 Triple-Negative breast cancer survivor. Shocking, because she had no symptoms whatsoever. A global … READ MORE
Weekly Warrior
“It all started in November 2021 when I became very ill; I thought I had a severe case of COVID-19, but my tests kept coming back negative. My symptoms lessened, … READ MORE
Weekly Warrior: Meet Jen
“Hi, my name is Jen. I suffer from Myasthenia Gravis. It is a rare neuromuscular autoimmune disease. My body creates antibodies that block the receiving signals in my muscles. So my … READ MORE
RPV’s Jessica Bolden Shares Her Voice for February
In honor of Black History Month and leading up to Rare Disease Day, Rare Patient Voice proposal development associate Jessica Bolden shares her voice as a woman living with Sickle … READ MORE
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