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Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

  • Home
  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • Press Releases
  • For Patients
    • Study Opportunities for Patients and Caregivers
    • Sign Up to Participate
    • Find Us in the Community
    • Frequently Asked Questions
    • How We Use Your Information
    • Newsletters
  • For Advocacy Groups
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Diseases
      • Hemophilia
      • Multiple Sclerosis
      • Breast Cancer
      • Diabetes
  • Videos
    • Meet The Patients
    • You Ask, We Answer
    • Get To Know
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies
    • Market Access: A Patient Perspective
    • The Impact of Rare Diseases on Patients and Caregivers
    • The Role of Patient Advocacy Groups
    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
    • Patient Insights on Telehealth: A Case Study
    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice

Helping Patients and Caregivers Voice Their Opinions

Don’t be surprised to get a text from Rare Patient Voice

August 9, 2020 Wes Michael

For years now, we’ve sent invites to our Rare Patient Voice studies out to you by email. Recently, we ran in to a temporary email issue and in a pinch … READ MORE

Filed Under: Community, Patient

How does Rare Patient Voice Work? Can I get paid for doing surveys?

August 1, 2020 Wes Michael

Hi, I’m Wes Michael, President of Rare Patient Voice. I founded Rare Patient Voice in 2013 to give patients and caregivers (generally family members) a chance to voice their opinions … READ MORE

Filed Under: Community, Patient

Let’s Name our Zebra Mascot – but not Zebra McZebface!

July 29, 2020 Wes Michael

Thanks for the tremendous response we’ve received to help us name our Zebra mascot! We’ve received hundreds of names. And not just the names, but great thinking behind the names. … READ MORE

Filed Under: Business, Community, Patient

A Peek Behind the Scenes at Rare Patient Voice

July 21, 2019 Wes Michael

Rare Patient Voice is now six years old. We’ve completed over 3,000 studies, we have 95,000 patients and caregivers, and are proud to have paid over 4.1 million dollars to … READ MORE

Filed Under: Community, Patient

Get to Know: ALS

July 13, 2019 Wes Michael

Amyotrophic Lateral Sclerosis, or ALS, has been gaining a lot of recognition over the past few years. It used to be known as Lou Gehrig’s Disease. But now most people … READ MORE

Filed Under: Business, Get To Know, Patient

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Latest Blog Posts

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What’s New at Rare Patient Voice?

Recent Patient

“I’ve had excellent interactions with the staff. The surveys are usually somewhat fun and feel like you’re actually helping someone or developing something new. They’ve always followed through on payment and I appreciate all the opportunities.”

Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(410) 218-0527

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