Young Jayden is our newest Weekly Warrior. He lives with Spina Bifida, a congenital defect of the spine. Jayden’s mobility is affected and he walks with braces, but he’s doing … READ MORE

Did you know the zebra is the official mascot of the rare disease community? It was chosen to represent rare disease based on an old medical school saying: “When you … READ MORE

Oliver is our latest Weekly Warrior. Despite living with epilepsy, KCNB1 mutation, and autism, this spunky five year-old is thriving and enjoys Karate, sports, and spending time with his friends. … READ MORE

Our latest Weekly Warrior is Kira, who lives with hidradenitis suppurativa, a chronic inflammatory skin condition that has affected her quality of life. A brave patient advocate, Kira wants other … READ MORE

  Our latest Weekly Warrior is sunny Iris, who hails from the Hawaiian island of Kauai. Diagnosed with Crohn’s disease at age two, Iris has faced some challenges, but is … READ MORE