Rare Rebels™ is an ongoing effort to map the rare disease ecosystem through the people leading the charge, documenting how change happens and how connections across science, advocacy, infrastructure, and lived experience shape what becomes possible.
The Rare Rebels™ Podcast shares raw, unscripted conversations with patients, caregivers, researchers, and advocates who are changing the future of rare disease. In this episode, President and Founder of Rare Patient Voice Wes Michael shares how RPV was created to connect researchers, companies, and institutions with patients and caregivers in ways that respect their time, and compensate for their expertise. The episode is now live and can be accessed here:
https://rarerebels.podbean.com/e/s1e6-wes-michael/
