It’s been a very busy year at Rare Patient Voice, and we hope to soon join our zebra friend Rarity in taking a cozy holiday break! In the meantime, here are … READ MORE
Happy Thanksgiving from RPV!
We are so grateful for our community of patients and family caregivers, our clients, and our staff. Thank you from Rarity, our hungry zebra mascot, and all of us at … READ MORE
RPV on the Road: Meeting Our Community at Patient Events and Conferences
At Rare Patient Voice, we love getting out from behind our screens and meeting our community in person. There’s nothing better than being in person and hearing the stories that … READ MORE
Sharing My Voice: Kathryn’s Story
Kathryn was diagnosed with colon cancer in 2024, and is passionate about contributing to research, specifically research aimed at young adults. She loves working with Rare Patient Voice so much … READ MORE
Weekly Warrior: Meet Autumn
“Hi lovely spoonie friends! My name is Autumn Meadows (she/her), and I’m a 21-year-old disability, chronic illness, and mental health advocate from western Colorado, living with M.E, Dysautonomia, and several … READ MORE
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