Let’s Talk Rare is a new podcast from P4A: Partners4Access. Hosted by Georgie Rack and Owen Bryant, it highlights the most important developments in the world of rare diseases, orphan drug, cell … READ MORE

Huntington’s disease (HD) is a genetic disorder that causes the gradual breakdown and death of nerve cells in the brain. Help 4 HD is the first podcast created to solely … READ MORE

Mirza Mujdzic-Jojic joined RPV in December 2023 as a Business Development Associate – EU, helping to drive RPV’s growth strategy by identifying new business opportunities in the European market and … READ MORE

Earlier this year, Rare Patient Voice survey 735 caregivers of loved ones living with a rare disease on how their caring role has affected their lives.  The survey results then … READ MORE