With Rare Disease Day 2026 coming up later this week, Wes Michael recently discussed the power of the rare disease patient voice, the importance of trust, and RPV’s joining with … READ MORE
Rare Patient Voice is Acquired by Konovo, a Technology-First Healthcare Intelligence Company
Konovo Achieves Significant Milestone in Connecting Patient and Healthcare Provider Insights with Rare Patient Voice Acquisition Rare Patient Voice’s 200,000+ registered patients and caregivers expand Konovo’s ability to deliver connected … READ MORE
Hear How RPV Was Created to Connect Patients, Caregivers, and Researchers
Rare Rebels™ is an ongoing effort to map the rare disease ecosystem through the people leading the charge, documenting how change happens and how connections across science, advocacy, infrastructure, and … READ MORE
Join Us on 2.4 for a Discussion of AI Agents & Patient-Level Data – From Confirmation of Diagnosis to Insights
In AI Agents & Patient-Level Data from Confirmation of Diagnosis to Insights, a live webinar happening on Wednesday, February 4th, 11am ET, Rare Patient Voice President Wes Michael and Clinakos, Inc. … READ MORE
A Look Back at RPV’s 2025
2025 was an exciting year for us at Rare Patient Voice! In this video message, recorded in late December, RPV President and Founder Wes Michael looks back at 2025 and … READ MORE
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