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Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

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  • For Researchers
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    • Diseases
      • Hemophilia
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      • Breast Cancer
      • Diabetes
      • Multiple Myeloma
      • Epilepsy
      • Non-Small Cell Lung Cancer
      • HIV
  • Referral Program
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies
    • The Long and Winding Road to Care
    • Health Literacy Initiative’s PSA
    • Patient Perspectives on Clinical Trial Participation
    • Patient Journeys and Insights for Oncology and Rare Diseases
    • Market Access: A Patient Perspective
    • The Impact of Rare Diseases on Patients and Caregivers
    • The Role of Patient Advocacy Groups
    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
    • Patient Insights on Telehealth: A Case Study
    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice

Helping patients and caregivers share their voices

Meet Our Team: Jennifer Harscheid, Project Manager

January 19, 2023 Laura Mullen

What began as a phone call between friends led to a dream job for Rare Patient Voice Project Manager Jennifer Harscheid. “I began working with Rare Patient Voice in September … READ MORE

Filed Under: Business

A Testimonial from Glenna Crooks, Strategic Health Policy International

January 18, 2023 Laura Mullen

“Working with the RPV team was a pleasure from start to finish. Each team member delivered flawless support, including during some necessary hand-offs from one to the next. They were … READ MORE

Filed Under: Business

10 Questions with RPV’s President and Founder, Wes Michael

January 11, 2023 Laura Mullen

In celebration of our tenth anniversary, Wes Michael recently answered ten questions about the company’s origins, growth, future, and the advice he would share with other entrepreneurs working to launch … READ MORE

Filed Under: Business

First Ever RPV Company Retreat Takes Place in Florida

January 9, 2023 Laura Mullen

Did you know that Rare Patient Voice is an entirely remote company? Though we communicate with each other throughout the work day over the phone, email, Teams, etc., many of … READ MORE

Filed Under: Business

Founder and President Wes Michael on RPV’s First 10 Years

January 4, 2023 Laura Mullen

As we kick off the celebration of Rare Patient Voice’s ten year anniversary, Wes Michael reflects on this momentous occasion – and shares some news and milestones.

Filed Under: Business

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