On February 16, CISCRP hosted the webinar “Straight Talk on Clinical Trials: Patient Perspectives on Study Participation,” moderated by Wes Michael of Rare Patient Voice and Mike Wenger of Informa … READ MORE
Rare Patient Voice Chosen for Inclusion in the Valuable Directory
The Valuable 500 Launch World’s First Global Directory of Disability Inclusion Specialists TOWSON, MD, March 8, 2022 – Today, on International Women’s Day, the Valuable 500, the largest network of … READ MORE
RPV’s Female Leaders Celebrate International Women’s Day 2022
Leading up to International Women’s Day 2022 on March 8, members of the Rare Patient Voice leadership team reflected on female leadership, team work, role models, and lessons they’ve learned … READ MORE
A Rare Disease Day Message from RPV
#RareDiseaseDay is a time to raise awareness of the issues facing over 300 million people living with rare diseases worldwide. At Rare Patient Voice, we are committed to bringing the … READ MORE
According to New Report, Today’s Diagnostic Journey for Patients Shows Progress – But Unevenly
Rare Patient Voice and MediFind Publish “The Long and Winding Road to Care: Today’s Journey to Diagnosis and Treatment for Patients Living with Complex Diseases, including Rare Diseases” TOWSON, MD, … READ MORE
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