We are super excited to announce the launch of our new Proposal Automation Module – PAM! Clients can now enter their project specs – disease type, project methodology, length of … READ MORE
Get to Know Hemophilia
The first patients we ever worked with were those with Hemophilia. We go to a lot of wonderful hemophilia events such as the National Hemophilia Foundation annual conference and the … READ MORE
We now have more health conditions!
Many clients know we list our patient panels and counts on our website: rarepatientvoice.com/for-researchers/patient-panels/ There are so many diseases and health conditions. In the rare disease community, we talk of … READ MORE
Does Rare Patient Voice Just Recruit Rare Patients?
This is a great question. With a name like Rare Patient Voice, we just recruit rare patients, right? No! When we started Rare Patient Voice 6 years ago, we just … READ MORE
Get to Know Macular Degeneration
I was able to attend a Macular Degeneration event yesterday in Charlottesville, VA. It was one of several put on by the Macular Degeneration Association across the country, a non-profit … READ MORE
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