RPV Patient Outreach Manager Melanie Havert is today’s guest blogger in the RARE Revolution Magazine “Turning the Tide for Rare Disease” feature. Read Mel’s personal story and how working with … READ MORE
Wes Michael in PharmaVOICE on How Successful Clinical Trial Recruitment Depends on Listening to Patients
Rare Patient Voice President Wes Michael was interviewed recently by PharmaVOICE’s Kim Ribbink in the article, “Rare Patient Voice’s President is Striving to Create a Five-star Experience for Patients,” which … READ MORE
RPV’s Pam Cusick Named a Woman of Distinction by MM+M
Yesterday afternoon, something we’ve known all along at Rare Patient Voice was confirmed in a major way. Our Senior Vice President, Pam Cusick, was named one of MM+M’s Women of … READ MORE
Straight Talk on Clinical Trials: Your Questions Answered
On February 16, CISCRP hosted the webinar “Straight Talk on Clinical Trials: Patient Perspectives on Study Participation,” moderated by Wes Michael of Rare Patient Voice and Mike Wenger of Informa … READ MORE
Rare Patient Voice Chosen for Inclusion in the Valuable Directory
The Valuable 500 Launch World’s First Global Directory of Disability Inclusion Specialists TOWSON, MD, March 8, 2022 – Today, on International Women’s Day, the Valuable 500, the largest network of … READ MORE
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