As horrible a group of diseases as cancer is, there have been great improvements in treatments over the past few years. We can see this interest directly, as we have … READ MORE
What is the Patient Advocate Team?
Our Patient Advocate Team (PAT) is one of my favorite new developments at Rare Patient Voice over the past couple of years. When I started Rare Patient Voice in 2013, … READ MORE
What is a Handover?
What is a Handover? That may be the question we get most in response to proposals we send! We recruit patients for both qualitative and quantitative studies. When we do … READ MORE
Do We Recruit Caregivers?
Often we talk about patients, but sometimes they can’t speak for themselves. Can we recruit caregivers? The answer is a resounding Yes. For many diseases, the patients are children, and … READ MORE
What are the hot drug development categories?
Are we in the golden age of orphan drug development? The FDA continues to move full speed ahead to approve new drugs, especially for rare and orphan diseases. In 2018 … READ MORE
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