Every conference we go to, I get a lot of people telling me, “I see you all the time on Linked In!” I sometimes wonder if that is a good … READ MORE
PAM is Here!
We are super excited to announce the launch of our new Proposal Automation Module – PAM! Clients can now enter their project specs – disease type, project methodology, length of … READ MORE
Why didn’t I qualify for a survey? And will my data be used even if I didn’t qualify?
One of the most frustrating things we hear from our patients is when they don’t qualify for a study. They are interested, they have great opinions to offer, and they’ve … READ MORE
What health conditions do you accept?
Patients and caregivers ask, will I qualify to join Rare Patient Voice? We accept people with all health conditions! You’d think with a name like Rare Patient Voice, it would … READ MORE
Get to Know Hemophilia
The first patients we ever worked with were those with Hemophilia. We go to a lot of wonderful hemophilia events such as the National Hemophilia Foundation annual conference and the … READ MORE
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