Did you know the zebra is the official mascot of the rare disease community? It was chosen to represent rare disease based on an old medical school saying: “When you … READ MORE
Weekly Warrior: Meet Oliver
Oliver is our latest Weekly Warrior. Despite living with epilepsy, KCNB1 mutation, and autism, this spunky five year-old is thriving and enjoys Karate, sports, and spending time with his friends. … READ MORE
Meet Our Team: Christopher Cramer, Assistant Project Manager
Hailing originally from Maryland, Christopher Cramer earned his BS from Towson University. He joined Rare Patient Voice in March 2021. As Assistant Project Manager, he works with clients, patients, and … READ MORE
10 Facts for 10 Years of RPV: Video #10 – Our Clients
In the final installment of our ten videos celebrating ten facts about Rare Patient Voice, President and Founder Wes Michael talks about a very important part of our community: our clients!
Weekly Warrior: Meet Kira
Our latest Weekly Warrior is Kira, who lives with hidradenitis suppurativa, a chronic inflammatory skin condition that has affected her quality of life. A brave patient advocate, Kira wants other … READ MORE
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