Our latest Weekly Warrior is Keyla, who shared her story with us recently. “Hi, I’m Keyla, I’m 38 yrs old and I have Crohn’s Disease, and I am a care … READ MORE
Meet Our Team: Ginger Segala, Business Development Associate
Ginger Segala earned a BA from the University of Maryland, College Park and her Masters in Social Work from the University of Maryland, Baltimore. As a member of the Rare … READ MORE
RPV’s Pam Cusick on A Spoon Full of Strength Chronic Illness Podcast
“Spoon Full of Strength” is a new podcast discussing all things chronic, for patients and their caregivers. In this episode, RPV Senior Vice President Pam Cusick speaks with hosts Rachel and … READ MORE
Weekly Warrior: Meet Tyesha
Tyesha is our latest Weekly Warrior. She lives with Spinal Muscular Atrophy Type 3, a rare genetic condition that weakens muscles throughout the body, which has impacted her mobility. “I … READ MORE
Wes Michael on Patients and Caregivers Sharing Their Voices
Wes Michael recently talked to Run Radio Podcast host Trina Wilcox about patients and caregivers sharing their voices with researchers and companies to develop products, devices, and treatments to improve … READ MORE
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