Skyler Swagart joined Rare Patient Voice in 2021 as a Data Specialist and Outreach Associate. He graduated with a BA in Digital Media: Game Design from the University of Central … READ MORE

Towson, MD, 9.16.2024 – Since 2013, Rare Patient Voice (RPV) has empowered patients and family caregivers to have their opinions and insights heard by decision makers through participation in research. … READ MORE

At the Intellus Fall Institute awards ceremony on September 12, RPV President Wes Michael received an Intellus Impact Award for Advocacy, recognizing his contributions in empowering patients and family caregivers to … READ MORE

“The Pickle Jar Podcast” host Jill Battle lives with a rare autoimmune disease. Her mission is to advocate, educate and empower people living with Addison’s disease and other invisible illnesses to … READ MORE

Oak Wealth Advisors’ “The Special Needs Voice” podcast features interviews with top leaders in the special needs community. Host Tony Schneider hopes that listeners will learn something new and gain information for … READ MORE