In September 2022, Rare Patient Voice conducted a survey of 1,989 patients and family caregivers in the United States. The study questions pertained to preferences about clinical trials and what might make the clinical research process more appealing to patients. Findings were presented and discussed at the Rare Disease Innovation & Partnering Summit on March 22, 2023 in Philadelphia, PA, by Wes Michael, President of Rare Patient Voice, and Richie Kahn, patient advocate and clinical research expert with Canary Advisors LLC.
Click below to access the study report as presented at the conference.
