Rare Patient Voice connects patients and caregivers with research opportunities. Who knows better than you about your journey and experiences? We connect you with researchers who are developing products and services which can help you and others with your condition. These researchers need patient input so that they develop products and services that have a meaningful impact on patients' lives.
When you join Rare Patient Voice, you may be invited to participate in interviews, surveys, or online communities where you will share your insights. You will earn $100 per hour for participating in these studies. In addition, by making your voice heard, you are a catalyst for change and can rest assured that your input will be used to help other patients like you.
We usually have over 100 studies running at any time, so there are many opportunities to participate. Join us and share your voice!
If you would like to join Rare Patient Voice, please click below to get started!