Kirk comes to us from the ranks of the Multiple Sclerosis patient panel. Before becoming an employee of Rare Patient Voice, he and his wife participated in patient and caregiver surveys. Kirk really is a passionate patient advocate and can categorically relate to those who have RPV process questions and privacy concerns. He is highly qualified to provide the “yes, you really can get paid for your opinion” question lurking in the back of everyone’s minds. Kirk loves to attend walks, support groups, and education events, and to explore venues outside of the norm (fitness facilities, church functions, non-medical/disability specific health fairs) to spread the RPV message. He has been known to recruit in parking lots and has a portable table he carries in his car. The joke (one not far from reality) is where a few are gathered, Kirk will set up his table and start talking RPV because as he likes to say, “There is no downside to Rare Patient Voice, join us today!”
- Hobbies: Fantasy golf and football, surfing the web, learning anything new and working out
- Likes: Traditional jelly beans, popsicles, fried baloney
- Dislikes: Hypocrisy, slackers, lateness
- Fun Fact: Kirk has experienced tornados, hurricanes, and an earthquake.
- Best advice ever received (and heeded): No matter who you work for or what is promised, always be prepared to lose your job tomorrow and never ever count on anyone else but yourself for your retirement.
