Hi everybody, John, Rare Patient TV. Well, living life with a rare disease is hard enough. But lot of times, it’s the caregivers. They are the inspirational force in allowing … READ MORE
Meet RPV Panelist Anthony
Hi, my name is Anthony Stoecker and I first heard about Rare Patient Voice when I was at a Huntington’s disease conference. And, um, I signed up for it because … READ MORE
Meet RPV Panelist & MS Patient Kendra
Meet RPV Panelist & MS Patient Karen W
Meet Rob, RPV Panelist & Hemophilia Patient
Hey, so I’m Rob. I’m going to talk a little about my experience with Rare Patient Voice. Um, it’s been a really good experience. I like doing the surveys because … READ MORE
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