There is great potential in having a 360 degree view of a patient’s healthcare journey, particularly in terms of research and progress in the development of new treatments and cures. … READ MORE
My Caregiver Enables Me To Live A Great Live
Hi everybody, John, Rare Patient TV. Well, living life with a rare disease is hard enough. But lot of times, it’s the caregivers. They are the inspirational force in allowing … READ MORE
Meet RPV Panelist and Caregiver Julie R.
Hi, I’m Julie. I’ve been a member of Rare Patient Voice for over four years. And what comes to mind when I think about Rare Patient Voice is all the … READ MORE
CAREGIVERS: Does RPV Recruit Caregivers?
Do you recruit Caregivers? The other day was National Caregiver Day, so perfect timing for this great question! Often we talk about patients, but sometimes they can’t speak for themselves. … READ MORE
