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Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

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    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
    • Patient Insights on Telehealth: A Case Study
    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice

Helping patients and caregivers share their voices

Wes Michael in PharmaVOICE on How Successful Clinical Trial Recruitment Depends on Listening to Patients

March 24, 2022 Laura Mullen

Rare Patient Voice President Wes Michael was interviewed recently by PharmaVOICE’s Kim Ribbink in the article, “Rare Patient Voice’s President is Striving to Create a Five-star Experience for Patients,” which … READ MORE

Filed Under: Business Tagged With: EPP, erythropoietic protoporphyria, PharmaVOICE, Wes Michael

According to New Report, Today’s Diagnostic Journey for Patients Shows Progress – But Unevenly

February 17, 2022 Laura Mullen

Rare Patient Voice and MediFind Publish “The Long and Winding Road to Care: Today’s Journey to Diagnosis and Treatment for Patients Living with Complex Diseases, including Rare Diseases” TOWSON, MD, … READ MORE

Filed Under: Business, Patient, Press Releases Tagged With: clinical expertise, diagnostic odyssey, genetic testing, MediFind, Sarah Larcker, Wes Michael

Patients in Australia and New Zealand Can Now Make Their Voices Heard!

February 9, 2022 Laura Mullen

Rare Patient Voice Announces Expansion of Patient Panel to Two New Countries TOWSON, MD, February 9, 2022 – Rare Patient Voice LLC, a leading market research patient recruitment firm, has … READ MORE

Filed Under: Business, Patient, Press Releases Tagged With: Australia, Caregivers, New Zealand, panel, patients, Rare Patient Voice, Wes Michael

What diseases do we cover?

January 31, 2022 Laura Mullen

People often ask us what diseases and conditions we cover. At Rare Patient Voice, we have a panel of over 100k patients and caregivers in the US, Canada, the UK, … READ MORE

Filed Under: Business Tagged With: diseases covered, patients and caregivers, Rare Patient Voice, Wes Michael

RPV to participate in “Straight Talk on Clinical Trials,” free webinar hosted by CISCRP, 2.16.2022

January 24, 2022 Laura Mullen

It’s clear that the patient voice is essential to progress in research, but engaging patients for participation in clinical trials can be surprisingly challenging. This is particularly true in rare … READ MORE

Filed Under: Business, Patient Tagged With: CISCRP, clinical trials, Informa Pharma Intelligence, Mike Wenger, Straight Talk on Clinical Trials, webinar, Wes Michael

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Latest Blog Posts

  • Weekly Warrior: Meet Mike
  • Wes Joins RPV Community Member on “Real Thoughts and Conversations” Podcast
  • London Gets a Visit from RPV
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