It’s clear that the patient voice is essential to progress in research, but engaging patients for participation in clinical trials can be surprisingly challenging. This is particularly true in rare diseases, where the numbers can be small and patients hard to find. In 2021, Rare Patient Voice and Informa Pharma Intelligence surveyed 900 patients on their perceptions regarding clinical trial participation. On Wednesday, February 16 at 12pm ET, CISCRP is hosting “Straight Talk on Clinical Trials,” a free webinar in which RPV’s Wes Michael, Informa Pharma Intelligence’s Mike Wenger, and a panel of patients and advocates will discuss the findings of the report resulting from that survey. Join us for a discussion on attitudes about the patient experience in clinical trials, why a patient might not want to participate, what would make taking part more appealing, the #1 suggested change to the clinical trial experience that emerged from the survey, and more.
Register for “Straight Talk on Clinical Trials” here: