In a new feature, each week we will spotlight an amazing patient or caregiver who is part of the Rare Patient Voice community. “Hi I’m Madison! At birth I was … READ MORE
It’s the Most Difficult Time of the Year: Fourth Quarter Blues
Rare Patient Voice President Wes Michael shares a song about the hectic last month of the last quarter – the busiest time of the year to get projects closed, invoices … READ MORE
The Basics of Rare Patient Voice for Clients
When we’re caught up in our projects and busy professional lives, we can forget that the basics of our work may not be crystal clear to even longtime clients. Rare … READ MORE
Rare Patient Voice Launches New “Sharing My Voice” Video Series
Patients and caregivers are the leading experts on the diseases and conditions impacting their lives everyday. Researchers and companies are increasingly listening to the patient voice in developing products and … READ MORE
CheckRare Interviews Wes Michael on RPV’s Recent Milestone
The input of patients and caregivers is essential to the development of new treatments, services, and products that can improve their lives. At RPV, we are proud to help make … READ MORE