My name is Christian and I’m an RPV Patient Panelist who’s overcoming Multiple Sclerosis
How does Rare Patient Voice fit into your life regarding support groups with others who understand/share your condition? Helping people not feel so alone, isolated with your condition because it can definitely do that. So I definitely look forward to any time there is a tentative survey or an email that appears. Then I am always bummed out when I don’t I guess “qualify” for it. What’s it like living with your condition? It’s easier sometimes than others but all around it’s hard. You have to be willing and able to laugh at yourself. Know that this moment will pass, the struggle will pass. I know what’s going to happen today for the most part and a little bit of tomorrow. MS is a trip like that man. But yeah, just slow and steady and you know be kind to yourself.
