Hi, I’m Wes Michael, President of Rare Patient Voice. I founded Rare Patient Voice in 2013 to give patients and caregivers (generally family members) a chance to voice their opinions … READ MORE
How much detail to reveal in survey invitations?
As of January 1, 2023, for new studies the honorarium for patients and family caregivers is $120 per hour. One of the biggest complaints that we get from our Rare … READ MORE
Is Telehealth Here to Stay?
Image credit: Unsplash We’re excited to share this post written by Ruth Claire James! The pandemic has been disruptive, but a silver lining that came out of it is how … READ MORE
2020 Year in Review
2020 was a very difficult year for everyone. It affected us all personally. Some businesses were hit harder than others. How did your business do? I have a friend in … READ MORE
Inspiration and Motivation
People often ask me what inspired me and what motivated me to start up Rare Patient Voice. Turns out they were two very different things. Several things and people inspired … READ MORE
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