Community Archives - Rare Patient Voice

Thanks to We’re Not Drunk, We Have MS, our Terrific MS Partner

October 4, 2020 Wes Michael

If you have MS, you need to check out the Facebook page of a group called We’re Not Drunk, We Have MS. They share important information for MS patients and … READ MORE

Thanks to WhatNext, Our Terrific Cancer Patient Partner

October 4, 2020 Wes Michael

We started working with WhatNext not long after I founded Rare Patient Voice in 2013. If you’re not familiar with WhatNext, please take a look, whatnext.com. It is a great … READ MORE

The North Wind and the Sun

September 27, 2020 Wes Michael

In first grade, our teacher, Mrs. Culver would gather us on the floor in the front of the classroom at Sandy Bank school and read stories to us. There’s one … READ MORE

Lessons from the Tortoise and the Hare

August 22, 2020 Wes Michael

I’m sure you all remember the story of the tortoise and the hare. The hare is much faster than the tortoise and he gets off to a much faster start … READ MORE

Don’t be surprised to get a text from Rare Patient Voice

August 9, 2020 Wes Michael

For years now, we’ve sent invites to our Rare Patient Voice studies out to you by email. Recently, we ran in to a temporary email issue and in a pinch … READ MORE

Thanks to We’re Not Drunk, We Have MS, our Terrific MS Partner

Thanks to WhatNext, Our Terrific Cancer Patient Partner

The North Wind and the Sun

Lessons from the Tortoise and the Hare

Don’t be surprised to get a text from Rare Patient Voice

“I’ve had excellent interactions with the staff. The surveys are usually somewhat fun and feel like you’re actually helping someone or developing something new. They’ve always followed through on payment and I appreciate all the opportunities.”

Rare Patient Voice

For Patients

For Related Groups

Recent Patient

“I’ve had excellent interactions with the staff. The surveys are usually somewhat fun and feel like you’re actually helping someone or developing something new. They’ve always followed through on payment and I appreciate all the opportunities.”

Rare Patient Voice

For Patients

For Related Groups

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