• Home
  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • In the News
  • For Patients
    • Study Opportunities for Patients and Caregivers
    • Sign Up to Participate
    • Find Us in the Community
    • Frequently Asked Questions
    • How We Use Your Information
    • Newsletters
  • For Advocacy Groups
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Diseases
      • Hemophilia
      • Multiple Sclerosis
      • Breast Cancer
      • Diabetes
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies
    • Patient Journeys and Insights for Oncology and Rare Diseases
    • Market Access: A Patient Perspective
    • The Impact of Rare Diseases on Patients and Caregivers
    • The Role of Patient Advocacy Groups
    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
    • Patient Insights on Telehealth: A Case Study
    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice

Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

  • Home
  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • In the News
  • For Patients
    • Study Opportunities for Patients and Caregivers
    • Sign Up to Participate
    • Find Us in the Community
    • Frequently Asked Questions
    • How We Use Your Information
    • Newsletters
  • For Advocacy Groups
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Diseases
      • Hemophilia
      • Multiple Sclerosis
      • Breast Cancer
      • Diabetes
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies
    • Patient Journeys and Insights for Oncology and Rare Diseases
    • Market Access: A Patient Perspective
    • The Impact of Rare Diseases on Patients and Caregivers
    • The Role of Patient Advocacy Groups
    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
    • Patient Insights on Telehealth: A Case Study
    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice

Helping Patients and Caregivers Voice Their Opinions

How much detail to reveal in survey invitations?

February 26, 2021 Wes Michael

One of the biggest complaints that we get from our Rare Patient Voice patients and caregivers who participate in our surveys is when they don’t qualify. It’s very frustrating to … READ MORE

Filed Under: Business, Community, Patient

Is Telehealth Here to Stay?

February 18, 2021 Wes Michael

Image credit: Unsplash We’re excited to share this post written by Ruth Claire James! The pandemic has been disruptive, but a silver lining that came out of it is how … READ MORE

Filed Under: Business, Community, Patient

2020 Year in Review

February 15, 2021 Wes Michael

2020 was a very difficult year for everyone. It affected us all personally. Some businesses were hit harder than others. How did your business do? I have a friend in … READ MORE

Filed Under: Business, Community

Inspiration and Motivation

February 15, 2021 Wes Michael

People often ask me what inspired me and what motivated me to start up Rare Patient Voice. Turns out they were two very different things. Several things and people inspired … READ MORE

Filed Under: Business, Community

Thanks to We’re Not Drunk, We Have MS, our Terrific MS Partner

October 4, 2020 Wes Michael

If you have MS, you need to check out the Facebook page of a group called We’re Not Drunk, We Have MS. They share important information for MS patients and … READ MORE

Filed Under: Community, Patient

  • 1
  • 2
  • 3
  • …
  • 5
  • Next Page »

Latest Blog Posts

  • RPV Basics
  • How much detail to reveal in survey invitations?
  • Impact of the Covid-19 Pandemic on Rare Disease Patients and Caregivers
  • Join Rare Disease Day 2021
  • Is Telehealth Here to Stay?

Check Out Our YouTube Channel!

https://youtu.be/cfjkqh5Ykp0
HTML tutorial

Read Our Newsletter

Read our Newsletter
What’s New at Rare Patient Voice?

Recent Patient

“I’ve had excellent interactions with the staff. The surveys are usually somewhat fun and feel like you’re actually helping someone or developing something new. They’ve always followed through on payment and I appreciate all the opportunities.”

Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(410) 218-0527

For Patients

  • Learn about us
  • Vision, Mission and Core Values
  • Sign up to participate
  • Find us in the community
  • Read our blog for patients
  • Privacy Policy

For Related Groups

  • Are you an advocacy group for a rare disease?
  • Are you a researcher?
  • Read our blog for businesses

        
   

Rare Patient Voice, LLC, Market Research, Towson, MD
©2020. Rare Patient Voice. All Rights
Reserved. Privacy Policy. Disclaimers. Sitemap

©2021 . All Rights Reserved.

Copyright © 2021 · Genesis Framework · WordPress · Log in

Search Our Website