We interrupt your regularly scheduled Linked In reading with this news update. Rare Patient Voice has now paid out over 4.1 million dollars to patients and caregivers for taking part … READ MORE
We Support Patient Registries
We work with many patient advocacy groups and attend many of their conferences. More and more of them are creating and growing patient registries. A registry collects key information about … READ MORE
Winston Churchill and Rare Diseases
You may be aware that we recruit many of the patients and caregivers in our panel by attending patient events in person. Conferences, educational symposia, walks, events like that. It … READ MORE
Tell me more about the check I will get from Rare Patient Voice
One of the great things about participating in a Rare Patient Voice study is that we pay you by check. So, you can use it for whatever you need, you … READ MORE
I get a gift card for signing up with Rare Patient Voice?
When you sign up with Rare Patient Voice, if you qualify, we’ll send you a gift card! How does the process work? We send the gift cards by email. We … READ MORE
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