Rare disease affects over 300 million people around the world, making it a truly global health priority. Rare Patient Voice connects patients and caregivers in Germany, Spain, Italy, France, and … READ MORE
How much detail to reveal in survey invitations?
As of January 1, 2023, for new studies the honorarium for patients and family caregivers is $120 per hour. One of the biggest complaints that we get from our Rare … READ MORE
Is Telehealth Here to Stay?
Image credit: Unsplash We’re excited to share this post written by Ruth Claire James! The pandemic has been disruptive, but a silver lining that came out of it is how … READ MORE
2020 Year in Review
2020 was a very difficult year for everyone. It affected us all personally. Some businesses were hit harder than others. How did your business do? I have a friend in … READ MORE
Inspiration and Motivation
People often ask me what inspired me and what motivated me to start up Rare Patient Voice. Turns out they were two very different things. Several things and people inspired … READ MORE
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