• About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • In the News
    • Awards
    • Careers
    • RPV Store
  • For Patients
    • Study Opportunities
    • Clinical Trial Opportunities
    • Sign Up to Participate
    • Types of Research
    • Find Us in the Community
    • Frequently Asked Questions
    • Testimonials
    • How We Use Your Information
    • Newsletters
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Frequently Asked Questions
    • Industry Conferences
    • Patient Advocacy Team Outreach
  • Clinical Trial Recruitment
  • Referral Program
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies

Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • In the News
    • Awards
    • Careers
    • RPV Store
  • For Patients
    • Study Opportunities
    • Clinical Trial Opportunities
    • Sign Up to Participate
    • Types of Research
    • Find Us in the Community
    • Frequently Asked Questions
    • Testimonials
    • How We Use Your Information
    • Newsletters
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Frequently Asked Questions
    • Industry Conferences
    • Patient Advocacy Team Outreach
  • Clinical Trial Recruitment
  • Referral Program
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies

Helping patients and caregivers share their voices

Germany’s +3 Magazine Interviews Pam Cusick on the Patient Voice

September 3, 2021 Laura Mullen

Rare disease affects over 300 million people around the world, making it a truly global health priority. Rare Patient Voice connects patients and caregivers in Germany, Spain, Italy, France, and the UK, as well as the US and Canada, with opportunities to take part in research studies. Recently, RPV Senior Vice President Pam Cusick shared her thoughts on the importance of including the patient voice in any discussion of rare disease issues in the new issue of the German magazine, #Plus3Magazin.

See p. 20:

https://joom.ag/orjI

https://www.linkedin.com/posts/warum-verlag-gmbh_plus3magazin-saesddeutschezeitung-erneuerbareenergien-activity-6839471498860748800-hTUv

Article in English:

Pam Cusick, Senior Vice President, Rare Patient Voice

Important Voice

Rare diseases affect 300 million people worldwide. But because the number of those suffering from a particular disease can be small, medical knowledge can also be limited, making the search for a diagnosis an odyssey for patients and, as a result, their lives a challenge. Fortunately, there are researchers and companies working on therapies and cures. New drugs have to go through an approval process and companies can start marketing and selling once they have approval. Patients play a critical role in this whole process via their participation in clinical trials and market research. My motivation is to make sure they are heard by those who develop the products so that they actually improve their lives. At Rare Patient Voice, we provide opportunities for patients and their families to connect and share their perspectives with researchers and companies – because their products and services affect them. Our network counts more than 100,000 people from the U.S., Canada, the U.K., Italy, Germany, France and Spain who have signed up to participate in studies and are paid for their time. My hope is that policymakers, pharmaceutical companies, and healthcare system stakeholders will take patients’ experiences and perspectives into account in their decision-making processes.

 

Filed Under: Business, Community, Patient Tagged With: +3 Magazine, Pam Cusick, rare disease, Rare Patient Voice

Latest Blog Posts

  • What kinds of projects does RPV do?
  • Who Are RPV’s Clients?
  • How Quickly Can RPV Recruit Patients? Wes Michael Explains
  • Meet Our Team: Sara Prosic, Business Development Associate
  • Wes Michael Talks Empowering Patients Through Research

Check out our YouTube Channel

https://youtu.be/cfjkqh5Ykp0

Read Our Newsletter

Read our Newsletter
What’s New at Rare Patient Voice?

Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(443) 986-1949

Regular business hours are Monday through Friday, 9am-5pm ET.

Careers


For Patients

  • Learn about us
  • Vision, Mission and Core Values
  • Sign up to participate
  • Find us in the community
  • Read our blog for patients
  • Privacy Policy

For Related Groups

  • Interested in Becoming a Referral Partner?
  • Are you a researcher?
  • Read our blog for businesses

Visit RPV on Facebook Visit RPV on X Visit RPV on LinkedIn Visit RPV on Instagram Visit RPV on TikTok
Visit RPV on YouTube

Intellus Worldwide logo   Insights Association Member Logo  BHBIA Corporate Member logo

EPHMRA Agency Member logo ESOMAR logo

GSA Member logo

CIRQ 27001 certified logo Rare Patient Voice, LLC, Market Research, Towson, MD

Rare Patient Voice, LLC, Market Research, Towson, MD

©2025. Rare Patient Voice. All Rights
Reserved. Privacy Policy | Sitemap

©2025 . All Rights Reserved.

Copyright © 2025 · Genesis Framework · WordPress · Log in

Search Our Website

We use cookies to ensure the best experience with Rare Patient Voice. By clicking “Accept”, you agree to our privacy policy.
Privacy Policy   |    Cookies    |    Accept
Manage consent

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.
Necessary
Always Enabled
Necessary cookies are absolutely essential for the website to function properly. These cookies ensure basic functionalities and security features of the website, anonymously.
Functional
Functional cookies help to perform certain functionalities like sharing the content of the website on social media platforms, collect feedbacks, and other third-party features.
Performance
Performance cookies are used to understand and analyze the key performance indexes of the website which helps in delivering a better user experience for the visitors.
Analytics
Analytical cookies are used to understand how visitors interact with the website. These cookies help provide information on metrics the number of visitors, bounce rate, traffic source, etc.
Advertisement
Advertisement cookies are used to provide visitors with relevant ads and marketing campaigns. These cookies track visitors across websites and collect information to provide customized ads.
Others
Other uncategorized cookies are those that are being analyzed and have not been classified into a category as yet.
SAVE & ACCEPT