The MM+M Podcast features interviews with guests from in and around the industries of pharma, biotech, med-tech ad-tech and health media. In light of Rare Chromosome Awareness Day, Managing Editor Jack O’Brien spoke with Rare Patient Voice’s Wes Michael to get a sense of the state of rare disease patient advocacy in mid-2025. Wes also discusses the importance of patient centricity, emphasizing that pharma companies need to improve their communications and utilize information from patients directly. Patients do not just “check a box,” and it is important to listen to their needs and concerns from the very beginning of the clinical trial process.
Listen now: https://www.mmm-online.com/podcasts/reassessing-rare-disease-awareness-efforts-podcast/
