Hi, I’m Wes Michael, President of Rare Patient Voice. I founded Rare Patient Voice in 2013 to give patients and caregivers (generally family members) a chance to voice their opinions … READ MORE
Let’s Name our Zebra Mascot – but not Zebra McZebface!
Thanks for the tremendous response we’ve received to help us name our Zebra mascot! We’ve received hundreds of names. And not just the names, but great thinking behind the names. … READ MORE
We can’t see you at events, but we still want you!
We at Rare Patient Voice are used to attending hundreds of patient events every year. Walks, conferences, educational symposia. Of course, they are all cancelled this year, some have become … READ MORE
Disabled Individuals Can Get a Ticket to Work
Here is information on Social Security Administration’s Ticket to Work program. Individuals who receive Social Security Disability benefits often worry that they will be unable to earn any type of … READ MORE
What is the SSA’s PASS (Plan for Achieving Self Support) Program?
We wanted to pass this along about the Social Security Administrations’ PASS program. The Social Security Administration’s Plan for Achieving Self Support (PASS) is a program intended to help people with disabilities … READ MORE
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