The way I see it, we make a deal with our patients. We agree to fully protect your privacy, give you a chance to share your opinions and experiences, and … READ MORE
Save Your Emails – it will help us make sure you get paid!
We love our patients! When you complete an interview or survey, we want to make sure you are paid. We are proud that we’ve paid over 4.1 million dollars to … READ MORE
We’ve paid patients over $4.1 million for taking part in our surveys!
We interrupt your regularly scheduled Linked In reading with this news update. Rare Patient Voice has now paid out over 4.1 million dollars to patients and caregivers for taking part … READ MORE
We Support Patient Registries
We work with many patient advocacy groups and attend many of their conferences. More and more of them are creating and growing patient registries. A registry collects key information about … READ MORE
Winston Churchill and Rare Diseases
You may be aware that we recruit many of the patients and caregivers in our panel by attending patient events in person. Conferences, educational symposia, walks, events like that. It … READ MORE
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