• About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • In the News
    • Awards
    • Careers
    • RPV Store
  • For Patients
    • Study Opportunities
    • Clinical Trial Opportunities
    • Sign Up to Participate
    • Types of Research
    • Find Us in the Community
    • Frequently Asked Questions
    • Testimonials
    • How We Use Your Information
    • Newsletters
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Frequently Asked Questions
    • Industry Conferences
    • Patient Advocacy Team Outreach
  • Clinical Trial Recruitment
  • Referral Program
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies

Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • In the News
    • Awards
    • Careers
    • RPV Store
  • For Patients
    • Study Opportunities
    • Clinical Trial Opportunities
    • Sign Up to Participate
    • Types of Research
    • Find Us in the Community
    • Frequently Asked Questions
    • Testimonials
    • How We Use Your Information
    • Newsletters
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Frequently Asked Questions
    • Industry Conferences
    • Patient Advocacy Team Outreach
  • Clinical Trial Recruitment
  • Referral Program
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies

Helping patients and caregivers share their voices

Please don’t speed through our surveys!

January 5, 2020 Wes Michael

The way I see it, we make a deal with our patients. We agree to fully protect your privacy, give you a chance to share your opinions and experiences, and pay you at the rate of $100 per hour. You agree to be honest and give your time and attention to the surveys and interviews that you want to take part in. And like most things, 99% of the time, it works great. But, from time to time, a respondent to a survey will be “pulled over” for speeding. Or other forms of cheating – “straight-lining” – which means answering all the questions the same (obviously not thinking about answers). Or putting in contradictory answers, or giving non-sensical answers to open ended questions – the ones where you can type in longer answers.

How do we know when people might be speeding or cheating? Because our clients check for these answers. They can see if someone is speeding. We just had someone do a 20-minute survey in 5 minutes. I get that some people can be faster than others, but 5 mins for a 20-minute survey? That defies credibility. So, when our clients see that, they flag it. They toss out the data and won’t pay us for that response. Same when they see straight-lining, or contradictory answers.

What do we do? First, we ask for more information. How fast was the respondent? Is there an explanation? We ask the respondent also. When the response is reasonable, we plead your case! Sometimes clients listen to us and accept the answers. But sometimes they just can’t.

But this can all be avoided. Please, hold up your side of the bargain. Take your time, think about your answers. Even if you feel you can speed through, slow down! The information you provide is used by the study sponsors to make important decisions. Please take it seriously, just as you want your doctors to take you seriously.

Thanks!

Filed Under: Community, Patient

Latest Blog Posts

  • Happy Thanksgiving from RPV!
  • The Critical Need to Address Mental Health in the Rare Disease Community, Upcoming Webinar Hosted by Xtalks
  • The Co-Design Revolution: Patients and the Future of Clinical Trials
  • Lessons Learned on MR Fraud – New Article by Wes Michael in Greenbook
  • Pam Cusick Talks Caregiving on All Home Care Matters Podcast

Check out our YouTube Channel

https://youtu.be/cfjkqh5Ykp0

Read Our Newsletter

Read our Newsletter
What’s New at Rare Patient Voice?

Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
ContactUs@RarePatientVoice.com
(443) 986-1949

Regular business hours are Monday through Friday, 9am-5pm ET.

Careers


For Patients

  • Learn about us
  • Vision, Mission and Core Values
  • Sign up to participate
  • Find us in the community
  • Read our blog for patients
  • Privacy Policy

For Related Groups

  • Interested in Becoming a Referral Partner?
  • Are you a researcher?
  • Read our blog for businesses

Visit RPV on Facebook Visit RPV on X Visit RPV on LinkedIn Visit RPV on Instagram Visit RPV on TikTok
Visit RPV on YouTube

Rare Patient Voice, LLC, Market Research, Towson, MD
Rare Patient Voice, LLC, Market Research, Towson, MD

BHBIA Corporate Member logo
CIRQ 27001 certified logo

EPHMRA Agency Member logo

ESOMAR logo
GSA Member logo
Insights Association Company Member

Intellus Worldwide logo

©2025. Rare Patient Voice. All Rights
Reserved. Privacy Policy | Sitemap

©2025 . All Rights Reserved.

Copyright © 2025 · Genesis Framework · WordPress · Log in

Search Our Website

We use cookies to ensure the best experience with Rare Patient Voice. By clicking “Accept”, you agree to our privacy policy.
Privacy Policy   |    Cookies    |    Accept
Manage consent

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.
Necessary
Always Enabled
Necessary cookies are absolutely essential for the website to function properly. These cookies ensure basic functionalities and security features of the website, anonymously.
Functional
Functional cookies help to perform certain functionalities like sharing the content of the website on social media platforms, collect feedbacks, and other third-party features.
Performance
Performance cookies are used to understand and analyze the key performance indexes of the website which helps in delivering a better user experience for the visitors.
Analytics
Analytical cookies are used to understand how visitors interact with the website. These cookies help provide information on metrics the number of visitors, bounce rate, traffic source, etc.
Advertisement
Advertisement cookies are used to provide visitors with relevant ads and marketing campaigns. These cookies track visitors across websites and collect information to provide customized ads.
Others
Other uncategorized cookies are those that are being analyzed and have not been classified into a category as yet.
SAVE & ACCEPT