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Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

  • Home
  • About Us
    • Meet Our Team
    • Vision, Mission and Core Values
    • Trusted Partners
    • Giving Back
    • In the News
  • For Patients
    • Study Opportunities for Patients and Caregivers
    • Sign Up to Participate
    • Find Us in the Community
    • Frequently Asked Questions
    • How We Use Your Information
    • Newsletters
  • For Advocacy Groups
  • For Researchers
    • Patient/Caregiver Panels
    • Pricing
    • Proposal Requests
    • Diseases
      • Hemophilia
      • Multiple Sclerosis
      • Breast Cancer
      • Diabetes
  • Blog
    • Patient Blog
    • Business Blog
  • Sign In
  • Case Studies
    • Market Access: A Patient Perspective
    • The Impact of Rare Diseases on Patients and Caregivers
    • The Role of Patient Advocacy Groups
    • Zebras Do Exist: The Diagnostic Odyssey of Rare Disease Patients
    • Patient Insights on Telehealth: A Case Study
    • Hearing is Believing: Reducing Barriers to Amplify the Patient Voice

Helping Patients and Caregivers Voice Their Opinions

RPV Basics

February 26, 2021 Wes Michael

Hi, I’m Wes Michael, President of Rare Patient Voice. I founded Rare Patient Voice in 2013 to give patients and caregivers (generally family members) a chance to voice their opinions to help improve medical products and services. And get paid for doing so! We’ve grown to have over 100,000 patients, have provided thousands of studies, and paid millions of dollars to patients and caregivers.

Here’s how it works! Sign up at Rarepatientvoice.com. You’ll get an email to confirm – make sure you respond to that, and then you’ll be invited by email to take confidential surveys. You’ll get paid at the rate of $100 per hour for surveys that you qualify for and complete. We pay by check as soon as the study is completed – usually within a couple of weeks after the study closes.

The studies vary from telephone or web-cam interviews to online surveys or bulletin boards. Most you can complete from home. We don’t share or sell your information – we use an ID code. You can opt out at any time, and participation in any study is purely voluntary.

Please sign up and list any and all conditions you have. We accept all diseases and conditions, not just rare! And please refer other patients and caregivers – we’ll send you a $5 gift card for any patients that tell us you referred them. We can even give you your own referral link to share with others so you’ll be sure to get credit for everyone you help to sign up.

So please check us out and sign up at rarepatientvoice.com. We’re happy to answer any questions you may have!

 

 

Filed Under: Patient

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“I’ve had excellent interactions with the staff. The surveys are usually somewhat fun and feel like you’re actually helping someone or developing something new. They’ve always followed through on payment and I appreciate all the opportunities.”

Rare Patient Voice

711 Hampton Lane
Towson, Maryland 21286
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(410) 218-0527

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