Hi, I’m Wes Michael, President of Rare Patient Voice. I founded Rare Patient Voice in 2013 to give patients and caregivers (generally family members) a chance to voice their opinions to help improve medical products and services. And get paid for doing so! We’ve grown to have over 100,000 patients, have provided thousands of studies, and paid millions of dollars to patients and caregivers.
Here’s how it works! Sign up at Rarepatientvoice.com. You’ll get an email to confirm – make sure you respond to that, and then you’ll be invited by email to take confidential surveys. You’ll get paid at the rate of $100 per hour for surveys that you qualify for and complete. We pay by check as soon as the study is completed – usually within a couple of weeks after the study closes.
The studies vary from telephone or web-cam interviews to online surveys or bulletin boards. Most you can complete from home. We don’t share or sell your information – we use an ID code. You can opt out at any time, and participation in any study is purely voluntary.
Please sign up and list any and all conditions you have. We accept all diseases and conditions, not just rare! And please refer other patients and caregivers – we’ll send you a $5 gift card for any patients that tell us you referred them. We can even give you your own referral link to share with others so you’ll be sure to get credit for everyone you help to sign up.
So please check us out and sign up at rarepatientvoice.com. We’re happy to answer any questions you may have!