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Rare Patient Voice

Helping Patients with Rare Diseases Voice Their Opinions

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Helping patients and caregivers share their voices

Wes Michael on RPV in Europe

November 18, 2021 Laura Mullen

The patient voice is powerful, and helping patients and caregivers share their opinions with researchers and companies developing products to improve lives is the cornerstone mission of Rare Patient Voice. … READ MORE

Filed Under: Business Tagged With: breast cancer, British Healthcare Business Intelligence Association, Crohn's, European Union, Hemophilia, mental health, Multiple Sclerosis, PAM, proposal module, psoriasis, rheumatoid arthritis

My Caregiver Enables Me To Live A Great Live

June 13, 2019 Wes Michael

Hi everybody, John, Rare Patient TV. Well, living life with a rare disease is hard enough. But lot of times, it’s the caregivers. They are the inspirational force in allowing … READ MORE

Filed Under: Meet The Patients Tagged With: Caregivers, Multiple Sclerosis

Meet RPV Panelist & MS Patient Kendra

June 7, 2019 Wes Michael

Filed Under: Meet The Patients Tagged With: Multiple Sclerosis

Meet RPV Panelist & MS Patient Karen W

June 7, 2019 Wes Michael

Filed Under: Meet The Patients Tagged With: Multiple Sclerosis

Christian

May 28, 2019 Wes Michael

My name is Christian and I’m an RPV Patient Panelist who’s overcoming Multiple Sclerosis How does Rare Patient Voice fit into your life regarding support groups with others who understand/share … READ MORE

Filed Under: Meet The Patients Tagged With: Multiple Sclerosis

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