The patient voice is powerful, and helping patients and caregivers share their opinions with researchers and companies developing products to improve lives is the cornerstone mission of Rare Patient Voice. … READ MORE
My Caregiver Enables Me To Live A Great Live
Hi everybody, John, Rare Patient TV. Well, living life with a rare disease is hard enough. But lot of times, it’s the caregivers. They are the inspirational force in allowing … READ MORE
Meet RPV Panelist & MS Patient Kendra
Meet RPV Panelist & MS Patient Karen W
Christian
My name is Christian and I’m an RPV Patient Panelist who’s overcoming Multiple Sclerosis How does Rare Patient Voice fit into your life regarding support groups with others who understand/share … READ MORE