Clinical trials are a critical part of our healthcare system — the phase where potentially life-saving treatments get approved for broad use. They’re also often the only way for terminally … READ MORE
Wes Michael on RPV in Europe
The patient voice is powerful, and helping patients and caregivers share their opinions with researchers and companies developing products to improve lives is the cornerstone mission of Rare Patient Voice. … READ MORE
Meet Rob, RPV Panelist & Hemophilia Patient
Hey, so I’m Rob. I’m going to talk a little about my experience with Rare Patient Voice. Um, it’s been a really good experience. I like doing the surveys because … READ MORE
Kristopher
My name is Kristopher and I’m an RPV Patient Panelist who’s overcoming Hemophilia. I really like taking the surveys because I feel like I’m making an impact. I’m able to … READ MORE